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Conference Agenda

Day 1 – October 23rd. Registration Opens: 7:00 AM. Start time: 8:30 AM. Finish time: 5:10 PM.
Day 2 – October 24th. Start time: 8:55 AM. Finish time: 3:45 PM.



TUESDAY 23RD OCTOBER 2018: DAY 1 CONFERENCE PROGRAM


07:00
-
08:30
REGISTRATION, EXHIBITION & WELCOME BREAKFAST
08:30
-
08:40
Opening Remarks

eyeforpharma Paul Simms Chairman eyeforpharma

08:40
-
09:00
Crossing the patient engagement adoption chasm
  • Understand where patient engagement sits on the adoption curve in your company
  • Identify tactics to make patient engagement in drug development the rule, not the exception
  • Recognize how the implementation of FDA actions is pushing patient engagement into the early majority

National Health Council Marc Boutin Chief Executive Officer National Health Council

09:00
-
09:20
Help patients help you: embedding patient centricity in a lasting way
  • Patients as the centerpoint of an evolving healthcare ecosystem
  • Three keys to making patient centricity stick
  • Examples from today and tomorrow

UCB James Musick Vice President, Head of Neurology Patient Technology UCB

09:20
-
10:00
PANEL: Perform your research with patients, not just for patients
  • Base your research priorities on patient priorities
  • Create metrics that measure the impact that’s of the greatest concern to the patient
  • Constantly engage with patients throughout the trial process for the best co-created solutions

Merck Jan Nissen Vice President Patient Innovation and Engagement Merck

Janssen Katie Mazuk Senior Director, Global Head Investigator and Patient Engagement Janssen

Company_Name TJ Sharpe Patient Advocate

FDA Samir Shaikh Deputy Director, Patient Affairs FDA

Moderator: FontierBPM Scott Rose Chief Commercial Officer FontierBPM

10:00
-
10:20
Caregiving and the Empathy Gap: Why Caregivers May Be the Secret to Achieving Patient Centricity
  • Get a first look at new research that reveals hidden dimensions of the caregiving experience
  • Understand why caregivers are critical in better understanding and talking about the patient experience
  • Dig into ways to cultivate empathy to achieve a more authentic model of engagement

Syneos Health Communications Carolyn Stephenson Insights Syneos Health Communications

Syneos Health Communications Marie Emms Site & Patient Access Syneos Health Communications

10:20
-
10:40
EXHIBITION & NETWORKING COFFEE BREAK
10:40
-
11:00
Case Study: Novartis’ patient app that is breaking physical constraints through virtual interaction
  • Comprehend how this approach minimizes the impact on the patient’s life
  • Understand how data can still be collected and analysed without site visits
  • Identify how patient involvement in design led to the best possible product

Novartis Mohanad Fors Global Head Digital Innovation Lab - Global Drug Development Novartis

11:00
-
11:20
Breaking Down the Siloes: Integrate Commercial & Clinical Efforts to Enhance Patient Engagement
  • Improve clinical trial experiences and brand strategies with insights from health research online communities
  • Engage market influencers to understand how to become a better partner for patients
  • Cultivate ongoing engagement with Alumni Programs built through clinical trial patient relationships

health_perspectives_group Jean McCoy Senior Vice President, Partnerships Health Perspectives Group

11:20
-
11:40
The evolution of the patient: from ‘data contributors’ to ‘driving forces’
  • See how the evolution of the patient is transforming ‘business as usual’ in pharma
  • Build your new model with the principle ‘nothing about them without them’
  • Case study: the world’s first patient-led research in dermatology

LEO Pharma Camilla Krogh Lauritzen Chief Patient Officer, Rare Diseases LEO Pharma

International Alliance of Dermatology Patient Organizations Christine Janus Chief Executive Officer International Alliance of Dermatology Patient Organizations

11:40
-
12:35
Patient-led roundtables
11:40
-
12:35

Join our disease experience experts for an interactive discussion around the problems we still face with engagement in healthcare, and the solutions we can develop together.

Leaders include:

Patient Power Esther Schorr Co-Founder Patient Power

Heidi Floyd Heidi Floyd Breast Cancer Advocate


Teen Cancer America Simon Davies Executive Director Teen Cancer America

Melissa Mehaffey Melissa Mehaffey Patient Advocate


National Hemophilia Foundation Michelle Rice Senior Vice President External Affairs National Hemophilia Foundation

TJ Sharpe TJ Sharpe Patient Advocate


Cancer 101 Sarah Krug Patient Advocate Cancer 101

Pete Dyson Pete Dyson Patient Advocate


Sickle Cell Disease Community Forum Dominique Goodson Patient Advocate Sickle Cell Disease Community Forum

The Pink Fund Molly MacDonald Founder, CEO The Pink Fund


Erin Moriarty Erin Moriarty Rare Disease Carer

International Alliance of Dermatology Patient Organizations Christine Janus Chief Executive Officer International Alliance of Dermatology Patient Organizations


Lou Lanza Lou Lanza Lou Lanza

Society for Women's Health Research Amy Miller President and Chief Executive Officer Society for Women's Health Research


12:35
-
13:55
EXHIBITION & NETWORKING LUNCH BREAK
Work With Patients, Not for Patients
Digital Disruption of Trial Design
13:55
-
14:00
Chair Address:

Frontier BPM Christina Morris Practice Director Life Sciences Frontier BPM

Chair Address:

eyeforpharma Paul Simms Chairman eyeforpharma

14:00
-
14:20
Industry and Patient Advocacy Groups: Doing what is best for Patients, Together
  • Compliance and ethics are key to positive relationships
  • The benefit to Patients must be at the heart of all interactions
  • It is critical for industry to get insights to succeed in addressing the needs of patients and caregivers

Merck Hilary Hansen Executive Director, Advocacy and Strategic Alliances Merck

Case Study: Janssen’s patient voice initiative
  • See how patient insights have affected real trial design changes
  • Why even the voice of one patient has the influence to change a trial for the better of all
  • How the Patient Voice initiative has led to new retention strategies

Janssen Maura Snyder Director, Patient Engagement Strategy Janssen

14:20
-
14:40
Addressing unmet needs of the patients and providers in rare and complex disease
  • Identify the unmet needs of patients and providers
  • Provide strategies for overcoming barriers facing patients and providers in rare and complex disease
  • Uncover how utilizing a Clinical Nurse Educator can differentiate the patient and provider experience to improve outcomes.

VMS BioMarketing Andrea Heslin Smiley President and Chief Executive Officer VMS BioMarketing

The Digitome: The first digital representation of health and disease to empower patients
  • How the Digitome will revolutionized medicine by making clinical trials a care option and a consumer experience while dramatically reducing the cost and time for life-saving therapies to get to market.
  • The impact and power of patient centric health data generation. Making patients active participants on the design and delivery of care
  • Empower patients by providing personalized health insights
  • How AI is being used to look for patterns in the ways patients contract diseases and react to medication, to give doctors more information about people’s health

Medable Michelle Longmire Chief Executive Officer Medable

14:40
-
15:00
Patient engagement, a new paradigm for FDA Approval
  • See how patient engagement enhances your product approval
  • Determine the value of PRO endpoints in FDA approval
  • Build the case you can take directly to other teams on why engagement is critical in submissions

FDA Francis Kalush Health Programs Coordinator, Professional Affairs and Stakeholder Engagement (PASE), CDER FDA

Case Study: Co-creation of patient services in a diverse diabetes population to enhance engagement
  • Every patient is different – tailor your service to suit different population needs
  • Envisage the future of pharma-patient relationships with a ‘drugs plus’ service that goes beyond the pill
  • Ensure your service is co-designed with patients to create the most effective patient service

Sanofi Lisa Egbuonu-Davis Vice President, Global Patient Centered Outcomes and Solutions Sanofi

15:00
-
15:30
EXHIBITION & NETWORKING COFFEE BREAK
15:30
-
16:10
Panel: Change your company’s mindset: Move from sponsorship to partnership
  • Look beyond traditional partnerships of yesterday and today to collaborate with the disruptors of today
  • Know your partners through capacity building efforts to help deepen overall partnership collaboration on both sides
  • Leverage your patient advocacy role to serve as the internal champion for partners and patients

Ipsen Debra McGarity Director Patient Advocacy Ipsen

Soft Bones Deborah Fowler Founder and President Soft Bones

Cutaneous Lymphoma Foundation Susan Thornton CEO Cutaneous Lymphoma Foundation

Panel: Clear the endpoint bottleneck to realize the full potential of digital trial design
  • The limitations of current endpoints that have outlived their time
  • Systematic strategies for the development of novel, patient-centric endpoints
  • How pharma can update their outdated endpoints to enable more forward thinking clinical trials

Eli Lilly Joseph Kim Senior Advisor, Patient Experience and Design Innovation Eli Lilly

The Michael J. Fox Foundation for Parkinson's Research Lauren Bataille Senior Associate Director, Research Partnerships The Michael J. Fox Foundation for Parkinson's Research

Society for Women's Health Research Amy Miller President and Chief Executive Officer Society for Women's Health Research

16:10
-
16:30
Improve Patient Outcomes and Clinical Effectiveness through Collaboration
  • Overcome obstacles to patient access by communicating individual needs
  • Demonstrate cost quality with a balance of cost effectiveness and optimal patient outcomes
  • Reshape the healthcare landscape with collaborative programs between payers, patients and providers

National Hemophilia Foundation Michelle Rice Senior Vice President External Affairs National Hemophilia Foundation

Patient ownership over their own health records
  • Ensure patients can see their own data as easily as aggregated data
  • Explore the entrepreneurial tech solutions designed to help patients protect their data
  • Place the patient in control of how their data is shared and used

Sanofi Milind Kamkolkar Chief Data Officer Sanofi

16:30
-
16:50
Understanding the TOTAL PATIENT - a 360° view
  • The Total Patient: Combine data-driven adherence predictors and patient-level behavioural insights to optimise our understanding of each individual
  • The Total Patient: Leverage behavioural science and smart segmentation to target support to meet patient needs  
  • The Total Patient: Deliver individualised and targeted support through the right blend of in-person, digitally augmented interventions
  • The Total Patient: Flexing support to meet changing needs through continued evaluation

IQVIA Javier Castillo Executive Director, Program Design & Strategy, Health Management Solutions IQVIA

Establish patient engagement as your early ‘critical design point’ for successful patient-centricity strategy
  • How to ensure optimal empowerment of the patient
  • Maximize engagement with analytics, data, and interactions
  • Understand the perspective of patient advocacy groups and their role in drug development

Covance Leone Atkinson Executive Director Rare Disease and Pediatrics Team, Global Clinical Development Covance

16:50
-
17:10
Support patient advocates to align pricing with a greater balance of access and affordability
  • Empower patient advocates to fight for sustainable costs and access to life saving care
  • Move patients from last to first consideration in the value chain of drug pricing
  • Provide clarity around drug pricing and partner with patients to reshape this broken system

Siobhan Cavanaugh Patient Advocate, Former Head of Patient Advocacy Mylan

Case Study Fox Insight: People with Parkinson’s disease and researchers working together toward treatment breakthroughs
  • Fox Insight snapshot: an online, longitudinal study designed to capture information directly from thousands of patients
  • Facilitate rapid data collection and long-term participation through effective patient engagement strategies
  • What’s in it for the patient? How Fox Insight is affecting change for participants

The Michael J. Fox Foundation for Parkinson's Research Lauren Bataille Senior Associate Director, Research Partnerships, The Michael J. Fox Foundation for Parkinson's Research

17:10
-
18:40
NETWORKING DRINKS

WEDNESDAY 24TH OF OCTOBER 2018: DAY 2 CONFERENCE PROGRAM


08:25
-
08:55
REGISTRATION, EXHIBITION & WELCOME BREAKFAST
Informed Patients Are Powerful Partners
Co-Create Trials With Patients
08:55
-
09:00
Chair Address:
Chair Address:
09:00
-
09:20
The Love Hate Relationship We Have With Technology
  • Explore both the benefits and challenges with the widespread use of technology
  • Describe a health epidemic on the horizon
  • Illustrate real world scenarios with the utilization of "all things digital" among patients and their care partners and lessons learned
  • Apply methods in which to overcome challenges enabled by technology and solutions to foster more meaningful connections

Company_Name Sarah Krüg Patient Advocate Founder, Health Collaboratory CEO, CANCER101

Case Study: How patient input revamped Janssen’s informed consent
  • Why e-Consent adds value to the Informed Consent process
  • How Janssen engaged patients to co-create the Informed Consent Form and eConsent.

Janssen Cassandra Smith Associate Director, Investigator & Patient Engagement Janssen

09:20
-
09:40
Designing the brand experience while keeping the patient at the heart: A manufacturer’s perspective
  • Deliver an experience that considers every need of the patient
  • Understand why patient support programs need to be more human-centric than ever before

Novartis Dane Hartung Executive Director of Patient and Specialty Services Novartis

accenture Keena Patel Managing Director: Intelligent Patient Solutions Accenture

If everyone is different, why do we treat all patients the same: Design for patients as people and the real world challenges they face
  • Understanding individuals’ needs to uncover the behavioral bottlenecks and everyday challenges
  • Designing from the patient perspective, mapping services to provide holistic support across the patient journey
  • Delivering personalized support across patient populations and multiple territories

S3 Connected Health Matt Norton Director of Strategy & Client Solutions S3 Connected Health

09:40
-
10:00
Health Literacy as a tool for patient empowerment
  • Understand the role of health literacy to maximize the clarity of patient communications
  • Test with patients across a range of health literacy levels to drive understanding and impact
  • Case study: Use patient feedback and health literacy to improve patient labeling

Merck Laurie Myers Director Global Health Literacy Merck

Understand patient journeys when designing clinical trials and patient recruitment strategies
  • Harness patient wants and needs to be co-creators in trial design and outreach strategies
  • Embed clinical research into patient treatment paradigms rather than fitting patients into your protocol
  • The days of check box activities are over: strategy must take into account the needs of specific patient populations

Vertex Kelly McKee Head of Patient Recruitment, Rare Diseases Vertex

10:00
-
10:20
EXHIBITION & NETWORKING COFFEE BREAK
10:20
-
10:40
The Internal Advocate – how EMD Serono internalized the patient voice
  • Build the best advocacy team led by former advocacy professionals
  • Create confidence in your mission as early as possible, both internally and externally
  • Design initiatives that patient advocacy groups want by listening to their needs

EMD Serono Jasmine Greenamyer Senior Director, Patient Advocacy & Strategic Partnerships EMD Serono

Case Study: When and how to engage with patients
  • Start early – be proactive with your patient engagement strategy to iron out issues early
  • See what good could look like when patient engagement is actioned effectively
  • Collaborate internally to get the best results for patients

Dermira Trisha Devlin Director, Patient Advocacy Dermira

10:40
-
11:00
Design-Thinking to Improve the Patient Experience
  • Learn how design-thinking principles and practices will help identify the pain points patients actually want solved
  • Explore methods to connect and work with patients, and how to treat them equitably in the process
  • Understand how working with patients helps to build better patient-centered solutions faster

Savvy Cooperative Jen Horonjeff Founder and Patient Advocate Savvy Cooperative

Case Study: How an “industry first” critical assessment of organizational patient focus catalyzed value for patients and caregivers
  • Hear external perspectives on pharma’s traditional patient paradigm
  • Understand how Astellas accelerated organizational empathy and patient focus
  • Learn how the company continues to evolve to enhance patients and caregiver support

Astellas Emily Mason Director of Patient Experience Astellas

11:00
-
12:05
Workshop (pharma only)
The Accenture X-Lab – Experience how insights into the patient experience become innovative ideas for your patients.
  • Turn Data into insights: Participate in a ‘hands-on’ exercise where MS patient data is rapidly gets translated into insights
  • Voice of the Patient: Attendees hear from a real MS patient who brings personal experiences to test & validate those insights, real-time
  • Voice of Our Client: Learn from one of our clients, the Lash Group, about how we helped inspire their team to develop new ideas for their patient services

Accenture Derek Pollock Patient Services Accenture

Accenture Whitney Baldwin Management Consulting Senior Principle Accenture

Lash Group Shanna Barnes Vice President, Business Development Lash Group

12:05
-
13:05
EXHIBITION & NETWORKING LUNCH BREAK
Im-patient Conference – where patients are in charge!#impatientconf
13:05
-
13:25
By The Patient, For The Patient: How a Hallway Conversation turned into a Great Partnership
  • By the patients: Empower patients by letting them be heard
  • For the patients: Invest in patients by empowering employees to connect with them in everyday, commonplace situations and educating them on how to do it right.
  • Im-patient: Invite patients to co-create solutions with you for a much better outcome.

-- Kristina Figueroa Patient Advocate Im-patient steering board

-- Dawn DiCandilo Senior Director, Patient Centricity Excellence AstraZeneca

13:25
-
13:45
Beyond the diagnosis and drugs. A day in the life of a patient

Put yourself in a patient’s shoes for a day to experience their pain points and the relief your products can provide

  • See the biggest pain points in a patient’s day and realign your product design accordingly
  • Hear solutions to problems that hinder adherence and reduce the effectiveness of your treatments

Savvy Cooperative Jen Horonjeff Founder and Patient Advocate Savvy Cooperative

13:45
-
14:25
Panel: Navigate the current political landscape of healthcare with your patient partners
  • Create an alliance that continues across merely one Presidency or Congress
  • Lobby for better access and outcomes with your patient partners
  • Is ‘Right to Try’ the right move?

Moderator -- Candace Lerman Patient Advocate, Im-patient steering board

-- Courtney Waller Co-Founder Timothy Syndrome Alliance

-- Siobhan Cavanaugh Patient Advocate, Former Head of Patient Advocacy Mylan

14:25
-
15:45
Interactive session: Co-author a blueprint for patient engagement across your drug’s lifecycle

Take part in our roundtable session to discuss where patient engagement currently stands, where it needs to improve and how we plan to implement change. Choose to sit in the Clinical, Access or Uptake/Adherence sections where together you’ll work to discuss the key areas and solve the issues around patient engagement with other stakeholders. Take advantage of the opportunity to network and learn from others outside your company, with different experiences and points of view. Bring an open mind and a willingness to participate in this must-attend session.  

Together, we can create the blueprint for future patient engagement across the drug lifecycle.

Speakers to be announced.

15:45
END OF CONFERENCE

TUESDAY 23RD OCTOBER 2018: DAY 1 CONFERENCE PROGRAM


07:00
-
08:30
REGISTRATION, EXHIBITION & WELCOME BREAKFAST
08:30
-
08:40
Opening Remarks

eyeforpharma Paul Simms Chairman eyeforpharma

08:40
-
09:00
Crossing the patient engagement adoption chasm
  • Understand where patient engagement sits on the adoption curve in your company
  • Identify tactics to make patient engagement in drug development the rule, not the exception
  • Recognize how the implementation of FDA actions is pushing patient engagement into the early majority

National Health Council Marc Boutin Chief Executive Officer National Health Council

09:00
-
09:20
Help patients help you: embedding patient centricity in a lasting way
  • Patients as the centerpoint of an evolving healthcare ecosystem
  • Three keys to making patient centricity stick
  • Examples from today and tomorrow

UCB James Musick Vice President, Head of Neurology Patient Technology UCB

09:20
-
10:00
PANEL: Perform your research with patients, not just for patients
  • Base your research priorities on patient priorities
  • Create metrics that measure the impact that’s of the greatest concern to the patient
  • Constantly engage with patients throughout the trial process for the best co-created solutions

Merck Jan Nissen Vice President Patient Innovation and Engagement Merck

Janssen Katie Mazuk Senior Director, Global Head Investigator and Patient Engagement Janssen

Company_Name TJ Sharpe Patient Advocate

FDA Samir Shaikh Deputy Director, Patient Affairs FDA

Moderator: FontierBPM Scott Rose Chief Commercial Officer FontierBPM

10:00
-
10:20
Caregiving and the Empathy Gap: Why Caregivers May Be the Secret to Achieving Patient Centricity
  • Get a first look at new research that reveals hidden dimensions of the caregiving experience
  • Understand why caregivers are critical in better understanding and talking about the patient experience
  • Dig into ways to cultivate empathy to achieve a more authentic model of engagement

Syneos Health Communications Carolyn Stephenson Insights Syneos Health Communications

Syneos Health Communications Marie Emms Site & Patient Access Syneos Health Communications

10:20
-
10:40
EXHIBITION & NETWORKING COFFEE BREAK
10:40
-
11:00
Case Study: Novartis’ patient app that is breaking physical constraints through virtual interaction
  • Comprehend how this approach minimizes the impact on the patient’s life
  • Understand how data can still be collected and analysed without site visits
  • Identify how patient involvement in design led to the best possible product

Novartis Mohanad Fors Global Head Digital Innovation Lab - Global Drug Development Novartis

11:00
-
11:20
Breaking Down the Siloes: Integrate Commercial & Clinical Efforts to Enhance Patient Engagement
  • Improve clinical trial experiences and brand strategies with insights from health research online communities
  • Engage market influencers to understand how to become a better partner for patients
  • Cultivate ongoing engagement with Alumni Programs built through clinical trial patient relationships

health_perspectives_group Jean McCoy Senior Vice President, Partnerships Health Perspectives Group

11:20
-
11:40
The evolution of the patient: from ‘data contributors’ to ‘driving forces’
  • See how the evolution of the patient is transforming ‘business as usual’ in pharma
  • Build your new model with the principle ‘nothing about them without them’
  • Case study: the world’s first patient-led research in dermatology

LEO Pharma Camilla Krogh Lauritzen Chief Patient Officer, Rare Diseases LEO Pharma

International Alliance of Dermatology Patient Organizations Christine Janus Chief Executive Officer International Alliance of Dermatology Patient Organizations

11:40
-
12:35
Patient-led roundtables
11:40
-
12:35

Join our disease experience experts for an interactive discussion around the problems we still face with engagement in healthcare, and the solutions we can develop together.

Leaders include:

Patient Power Esther Schorr Co-Founder Patient Power

Heidi Floyd Heidi Floyd Breast Cancer Advocate


Teen Cancer America Simon Davies Executive Director Teen Cancer America

Melissa Mehaffey Melissa Mehaffey Patient Advocate


National Hemophilia Foundation Michelle Rice Senior Vice President External Affairs National Hemophilia Foundation

TJ Sharpe TJ Sharpe Patient Advocate


Cancer 101 Sarah Krug Patient Advocate Cancer 101

Pete Dyson Pete Dyson Patient Advocate


Sickle Cell Disease Community Forum Dominique Goodson Patient Advocate Sickle Cell Disease Community Forum

The Pink Fund Molly MacDonald Founder, CEO The Pink Fund


Erin Moriarty Erin Moriarty Rare Disease Carer

International Alliance of Dermatology Patient Organizations Christine Janus Chief Executive Officer International Alliance of Dermatology Patient Organizations


Lou Lanza Lou Lanza Lou Lanza

Society for Women's Health Research Amy Miller President and Chief Executive Officer Society for Women's Health Research


12:35
-
13:55
EXHIBITION & NETWORKING LUNCH BREAK
Work With Patients, Not for Patients
Digital Disruption of Trial Design
13:55
-
14:00
Chair Address:

Frontier BPM Christina Morris Practice Director Life Sciences Frontier BPM

Chair Address:

eyeforpharma Paul Simms Chairman eyeforpharma

14:00
-
14:20
Industry and Patient Advocacy Groups: Doing what is best for Patients, Together
  • Compliance and ethics are key to positive relationships
  • The benefit to Patients must be at the heart of all interactions
  • It is critical for industry to get insights to succeed in addressing the needs of patients and caregivers

Merck Hilary Hansen Executive Director, Advocacy and Strategic Alliances Merck

Case Study: Janssen’s patient voice initiative
  • See how patient insights have affected real trial design changes
  • Why even the voice of one patient has the influence to change a trial for the better of all
  • How the Patient Voice initiative has led to new retention strategies

Janssen Maura Snyder Director, Patient Engagement Strategy Janssen

14:20
-
14:40
Addressing unmet needs of the patients and providers in rare and complex disease
  • Identify the unmet needs of patients and providers
  • Provide strategies for overcoming barriers facing patients and providers in rare and complex disease
  • Uncover how utilizing a Clinical Nurse Educator can differentiate the patient and provider experience to improve outcomes.

VMS BioMarketing Andrea Heslin Smiley President and Chief Executive Officer VMS BioMarketing

The Digitome: The first digital representation of health and disease to empower patients
  • How the Digitome will revolutionized medicine by making clinical trials a care option and a consumer experience while dramatically reducing the cost and time for life-saving therapies to get to market.
  • The impact and power of patient centric health data generation. Making patients active participants on the design and delivery of care
  • Empower patients by providing personalized health insights
  • How AI is being used to look for patterns in the ways patients contract diseases and react to medication, to give doctors more information about people’s health

Medable Michelle Longmire Chief Executive Officer Medable

14:40
-
15:00
Patient engagement, a new paradigm for FDA Approval
  • See how patient engagement enhances your product approval
  • Determine the value of PRO endpoints in FDA approval
  • Build the case you can take directly to other teams on why engagement is critical in submissions

FDA Francis Kalush Health Programs Coordinator, Professional Affairs and Stakeholder Engagement (PASE), CDER FDA

Case Study: Co-creation of patient services in a diverse diabetes population to enhance engagement
  • Every patient is different – tailor your service to suit different population needs
  • Envisage the future of pharma-patient relationships with a ‘drugs plus’ service that goes beyond the pill
  • Ensure your service is co-designed with patients to create the most effective patient service

Sanofi Lisa Egbuonu-Davis Vice President, Global Patient Centered Outcomes and Solutions Sanofi

15:00
-
15:30
EXHIBITION & NETWORKING COFFEE BREAK
15:30
-
16:10
Panel: Change your company’s mindset: Move from sponsorship to partnership
  • Look beyond traditional partnerships of yesterday and today to collaborate with the disruptors of today
  • Know your partners through capacity building efforts to help deepen overall partnership collaboration on both sides
  • Leverage your patient advocacy role to serve as the internal champion for partners and patients

Ipsen Debra McGarity Director Patient Advocacy Ipsen

Soft Bones Deborah Fowler Founder and President Soft Bones

Cutaneous Lymphoma Foundation Susan Thornton CEO Cutaneous Lymphoma Foundation

Panel: Clear the endpoint bottleneck to realize the full potential of digital trial design
  • The limitations of current endpoints that have outlived their time
  • Systematic strategies for the development of novel, patient-centric endpoints
  • How pharma can update their outdated endpoints to enable more forward thinking clinical trials

Eli Lilly Joseph Kim Senior Advisor, Patient Experience and Design Innovation Eli Lilly

The Michael J. Fox Foundation for Parkinson's Research Lauren Bataille Senior Associate Director, Research Partnerships The Michael J. Fox Foundation for Parkinson's Research

Society for Women's Health Research Amy Miller President and Chief Executive Officer Society for Women's Health Research

16:10
-
16:30
Improve Patient Outcomes and Clinical Effectiveness through Collaboration
  • Overcome obstacles to patient access by communicating individual needs
  • Demonstrate cost quality with a balance of cost effectiveness and optimal patient outcomes
  • Reshape the healthcare landscape with collaborative programs between payers, patients and providers

National Hemophilia Foundation Michelle Rice Senior Vice President External Affairs National Hemophilia Foundation

Patient ownership over their own health records
  • Ensure patients can see their own data as easily as aggregated data
  • Explore the entrepreneurial tech solutions designed to help patients protect their data
  • Place the patient in control of how their data is shared and used

Sanofi Milind Kamkolkar Chief Data Officer Sanofi

16:30
-
16:50
Understanding the TOTAL PATIENT - a 360° view
  • The Total Patient: Combine data-driven adherence predictors and patient-level behavioural insights to optimise our understanding of each individual
  • The Total Patient: Leverage behavioural science and smart segmentation to target support to meet patient needs  
  • The Total Patient: Deliver individualised and targeted support through the right blend of in-person, digitally augmented interventions
  • The Total Patient: Flexing support to meet changing needs through continued evaluation

IQVIA Javier Castillo Executive Director, Program Design & Strategy, Health Management Solutions IQVIA

Establish patient engagement as your early ‘critical design point’ for successful patient-centricity strategy
  • How to ensure optimal empowerment of the patient
  • Maximize engagement with analytics, data, and interactions
  • Understand the perspective of patient advocacy groups and their role in drug development

Covance Leone Atkinson Executive Director Rare Disease and Pediatrics Team, Global Clinical Development Covance

16:50
-
17:10
Support patient advocates to align pricing with a greater balance of access and affordability
  • Empower patient advocates to fight for sustainable costs and access to life saving care
  • Move patients from last to first consideration in the value chain of drug pricing
  • Provide clarity around drug pricing and partner with patients to reshape this broken system

Siobhan Cavanaugh Patient Advocate, Former Head of Patient Advocacy Mylan

Case Study Fox Insight: People with Parkinson’s disease and researchers working together toward treatment breakthroughs
  • Fox Insight snapshot: an online, longitudinal study designed to capture information directly from thousands of patients
  • Facilitate rapid data collection and long-term participation through effective patient engagement strategies
  • What’s in it for the patient? How Fox Insight is affecting change for participants

The Michael J. Fox Foundation for Parkinson's Research Lauren Bataille Senior Associate Director, Research Partnerships, The Michael J. Fox Foundation for Parkinson's Research

17:10
-
18:40
NETWORKING DRINKS

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WEDNESDAY 24TH OF OCTOBER 2018: DAY 2 CONFERENCE PROGRAM


08:25
-
08:55
REGISTRATION, EXHIBITION & WELCOME BREAKFAST
Informed Patients Are Powerful Partners
Co-Create Trials With Patients
08:55
-
09:00
Chair Address:
Chair Address:
09:00
-
09:20
The Love Hate Relationship We Have With Technology
  • Explore both the benefits and challenges with the widespread use of technology
  • Describe a health epidemic on the horizon
  • Illustrate real world scenarios with the utilization of "all things digital" among patients and their care partners and lessons learned
  • Apply methods in which to overcome challenges enabled by technology and solutions to foster more meaningful connections

Company_Name Sarah Krüg Patient Advocate Founder, Health Collaboratory CEO, CANCER101

Case Study: How patient input revamped Janssen’s informed consent
  • Why e-Consent adds value to the Informed Consent process
  • How Janssen engaged patients to co-create the Informed Consent Form and eConsent.

Janssen Cassandra Smith Associate Director, Investigator & Patient Engagement Janssen

09:20
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09:40
Designing the brand experience while keeping the patient at the heart: A manufacturer’s perspective
  • Deliver an experience that considers every need of the patient
  • Understand why patient support programs need to be more human-centric than ever before

Novartis Dane Hartung Executive Director of Patient and Specialty Services Novartis

accenture Keena Patel Managing Director: Intelligent Patient Solutions Accenture

If everyone is different, why do we treat all patients the same: Design for patients as people and the real world challenges they face
  • Understanding individuals’ needs to uncover the behavioral bottlenecks and everyday challenges
  • Designing from the patient perspective, mapping services to provide holistic support across the patient journey
  • Delivering personalized support across patient populations and multiple territories

S3 Connected Health Matt Norton Director of Strategy & Client Solutions S3 Connected Health

09:40
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10:00
Health Literacy as a tool for patient empowerment
  • Understand the role of health literacy to maximize the clarity of patient communications
  • Test with patients across a range of health literacy levels to drive understanding and impact
  • Case study: Use patient feedback and health literacy to improve patient labeling

Merck Laurie Myers Director Global Health Literacy Merck

Understand patient journeys when designing clinical trials and patient recruitment strategies
  • Harness patient wants and needs to be co-creators in trial design and outreach strategies
  • Embed clinical research into patient treatment paradigms rather than fitting patients into your protocol
  • The days of check box activities are over: strategy must take into account the needs of specific patient populations

Vertex Kelly McKee Head of Patient Recruitment, Rare Diseases Vertex

10:00
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10:20
EXHIBITION & NETWORKING COFFEE BREAK
10:20
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10:40
The Internal Advocate – how EMD Serono internalized the patient voice
  • Build the best advocacy team led by former advocacy professionals
  • Create confidence in your mission as early as possible, both internally and externally
  • Design initiatives that patient advocacy groups want by listening to their needs

EMD Serono Jasmine Greenamyer Senior Director, Patient Advocacy & Strategic Partnerships EMD Serono

Case Study: When and how to engage with patients
  • Start early – be proactive with your patient engagement strategy to iron out issues early
  • See what good could look like when patient engagement is actioned effectively
  • Collaborate internally to get the best results for patients

Dermira Trisha Devlin Director, Patient Advocacy Dermira

10:40
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11:00
Design-Thinking to Improve the Patient Experience
  • Learn how design-thinking principles and practices will help identify the pain points patients actually want solved
  • Explore methods to connect and work with patients, and how to treat them equitably in the process
  • Understand how working with patients helps to build better patient-centered solutions faster

Savvy Cooperative Jen Horonjeff Founder and Patient Advocate Savvy Cooperative

Case Study: How an “industry first” critical assessment of organizational patient focus catalyzed value for patients and caregivers
  • Hear external perspectives on pharma’s traditional patient paradigm
  • Understand how Astellas accelerated organizational empathy and patient focus
  • Learn how the company continues to evolve to enhance patients and caregiver support

Astellas Emily Mason Director of Patient Experience Astellas

11:00
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12:05
Workshop (pharma only)
The Accenture X-Lab – Experience how insights into the patient experience become innovative ideas for your patients.
  • Turn Data into insights: Participate in a ‘hands-on’ exercise where MS patient data is rapidly gets translated into insights
  • Voice of the Patient: Attendees hear from a real MS patient who brings personal experiences to test & validate those insights, real-time
  • Voice of Our Client: Learn from one of our clients, the Lash Group, about how we helped inspire their team to develop new ideas for their patient services

Accenture Derek Pollock Patient Services Accenture

Accenture Whitney Baldwin Management Consulting Senior Principle Accenture

Lash Group Shanna Barnes Vice President, Business Development Lash Group

12:05
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13:05
EXHIBITION & NETWORKING LUNCH BREAK
Im-patient Conference – where patients are in charge!#impatientconf
13:05
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13:25
By The Patient, For The Patient: How a Hallway Conversation turned into a Great Partnership
  • By the patients: Empower patients by letting them be heard
  • For the patients: Invest in patients by empowering employees to connect with them in everyday, commonplace situations and educating them on how to do it right.
  • Im-patient: Invite patients to co-create solutions with you for a much better outcome.

-- Kristina Figueroa Patient Advocate Im-patient steering board

-- Dawn DiCandilo Senior Director, Patient Centricity Excellence AstraZeneca

13:25
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13:45
Beyond the diagnosis and drugs. A day in the life of a patient

Put yourself in a patient’s shoes for a day to experience their pain points and the relief your products can provide

  • See the biggest pain points in a patient’s day and realign your product design accordingly
  • Hear solutions to problems that hinder adherence and reduce the effectiveness of your treatments

Savvy Cooperative Jen Horonjeff Founder and Patient Advocate Savvy Cooperative

13:45
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14:25
Panel: Navigate the current political landscape of healthcare with your patient partners
  • Create an alliance that continues across merely one Presidency or Congress
  • Lobby for better access and outcomes with your patient partners
  • Is ‘Right to Try’ the right move?

Moderator -- Candace Lerman Patient Advocate, Im-patient steering board

-- Courtney Waller Co-Founder Timothy Syndrome Alliance

-- Siobhan Cavanaugh Patient Advocate, Former Head of Patient Advocacy Mylan

14:25
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15:45
Interactive session: Co-author a blueprint for patient engagement across your drug’s lifecycle

Take part in our roundtable session to discuss where patient engagement currently stands, where it needs to improve and how we plan to implement change. Choose to sit in the Clinical, Access or Uptake/Adherence sections where together you’ll work to discuss the key areas and solve the issues around patient engagement with other stakeholders. Take advantage of the opportunity to network and learn from others outside your company, with different experiences and points of view. Bring an open mind and a willingness to participate in this must-attend session.  

Together, we can create the blueprint for future patient engagement across the drug lifecycle.

Speakers to be announced.

15:45
END OF CONFERENCE

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