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Highlights of 2019’s industry shaping agenda

Full Agenda

7:35AM – 8:50AM
REGISTRATION
8:50AM – 9:00AM
Opening remarks

Paul Simms Chairman eyeforpharma

9:00AM – 9:20AM
Evolve the conversation around patient access – through the patient’s eyes
  • Bring patient access in line with the fast pace of innovation of new therapies.
  • Get the right stakeholders at the table to discuss the evolving meaning of value and what that means to the patient.

Liz Lewis Head of Global Oncology Patient Value, Policy and Access Takeda

9:20AM – 9:40AM
Case Study: CSL’s framework that embeds patient focus at every level of the company
  • Learn how CSL’s patient centric mindset is being translated into actionable strategies across the product lifecycle
  • Understand the importance of executive buy in to the vision and its execution
  • Discuss the challenges and learnings of implementation, including the importance of shifting culture to meet strategy

Metani Rooms CMO Strategic Initiatives, Global Lead CSL Behring

9:40AM – 10:00AM
Why We Resist: The Surprising Truths about Motivating Behavior Change
  • We all set healthcare intentions for ourselves. We want to do better. We want to feel better. What holds us back from succeeding?
  • Hear from a behavioral scientist and healthcare marketer about the nine principles of influence that reveal why people reject healthcare change
  • Discover new ways to design communications, interventions and programs to help people make better, more confident decisions about their health

Kathleen Starr Managing Director of Behavioral Science Syneos Health

Marie Emms Vice President, Site and Patient Access Syneos Health

10:00AM – 10:40AM
Why your company’s patient commitment starts in the boardroom
  • Culture eats strategy: how to support leadership in making the case for patient centricity through proven success and identifiable change
  • How to find and support champions across your company

Jan Nissen Vice President, Patient Innovation & Engagement Merck

Eric Racine Vice President & Head, U.S. Public Affairs and Patient Advocacy Sanofi

Andrea Maddox-Smith CEO Bladder Cancer Advocacy Network

Lode Dewulf Chief Patient Officer Servier

10:40AM – 11:10AM
BREAK
11:10AM – 11:30AM
Case Study: “If you do it without us, it’s not about us.” Genentech’s journey towards patient centricity.
  • Explore Genentech’s ongoing evolution from a patient-friendly to a patient-centered organization
  • Learn why co-creating and providing seamless, meaningful, and consistent experiences and solutions for patients is the nucleus of patient centricity

Laurie Meyers Head of Patient Engagement Genentech

11:30AM – 11:50AM
Consider the source: Creating meaningful patient relationships with social media
  • Understand how patients perceive Pharma brands on social media in comparison to other consumer brands
  • Discover how friends, family, caregivers, and influencers fit into patients' circle of trust
  • Identify how brands can engage authentically with patients in the "Post-Trust Era"

Jean McCoy Senior Vice President, Partnerships Health Perspectives Group

11:50AM – 12:50PM
Patient-led Roundtables Discussion
12:50PM – 1:50PM
Lunch break
12:50PM – 1:50PM
Lunchtime workshop run by IQVIA
Track 1
Track 2
1:40PM – 2:45PM
Chairman

Jitesh Rohatgi Global Director, Healthcare & Life Science Principa Pegasystems

Chairman
1:45PM – 2:05PM
Nobody wants your sh***y pharma app!
  • Obstacles pharmas face when trying to reach patients via mobile
  • Partnerships with digital health start-ups that achieve real engagement with patients

Daniel Weinstein Chief Executive Officer Oshi Health

Case Study: How the American Gastroenterological Association, supported by UCB, is redefining care for women with inflammatory bowel disease
  • Learn how a pharma and association collaboration created a new standard of care for women before, during and after pregnancy
  • Understand the fundamentals behind a successful partnership that helped define a new industry standard
  • Hear the power of a complimentary physician/patient education effort 

Jessica Duncan Vice President, Communications American Gastroenterological Association

2:05PM – 2:25PM
Patients Are Speaking, So How Do We Respond?

Hear what the perceptions of pharma are vs the reality in terms of what patients expect/want, which areas need the most change, and how we can all do things differently.

Whitney Baldwin Senior Principal Accenture

Sarah Krug CEO Cancer 101

The value of trained patient advocates in clinical trial development
  • Gain insights into the training programs that can help patient advocates help you develop clinical trials
  • Understand how to take a powerful patient story and incorporate the learnings into your own processes
  • Build lasting relationships with patient advocates to develop a real-time feedback loop on your processes

Mary McGowan Executive Director The Myositis Association

2:25PM – 3:25PM
Workshops by Accenture and Syneos Health (Pharma Only)
3:25PM – 3:55PM
BREAK
3:55PM – 4:35PM
Panel: Is Digital the approach or the answer?
  • Start with the patient: how a patient-first approach has ensured pharma solutions are driven with purpose, not technology
  • Mix the key ingredients to a successful digital platform that your patients can use and understand
  • Best-practice guidelines on avoiding low take-up of digital solutions by patients

Surbhi Pandit-Patel Associate Director, Digital Solutions Patient Support Otsuka

Sarah Mills Principal, Digital Customer Experience Genentech

Wendy Erler Vice President, Head of Patient Insights and Advocacy Alexion

Amy Bucher Behavior Change Design Director Madpow

Moving the needle: Pragmatic approaches for achieving diversity in clinical trials
  • Discuss the goals of diversity in clinical trials and the interplay of access and scientific considerations
  • Consider how proactive intent, data insights and upfront strategies can improve chances for recruitment and retention success
  • Learn how pharma companies are changing operational norms to meet corporate goals for diversity

Rachael Fones Director, Government & Public Affairs IQVIA

Becky Johnson Associate Director, Global Patient & Site Solutions IQVIA

Anya Harry Global Lead, Clinical Trial Diversity GSK

Maria Apostolaros Senior Director, Science and Regulatory Advocacy PhRMA

4:35PM – 4:55PM
Design an effective and compliant nurse educator program to support unmet needs
  • Discover key strategies that impact effective and compliant program design
  • Define the role of the nurse educator and how to appropriately engage with field teams
  • Identify compliant ways to measure nurse educator effectiveness

Andrea Heslin Smiley President and CEO VMS Biomarketing

Case Study: Start with 95% medication adherence, see the potential for impact in simulated hypertension studies.
  • Understand the role adherence and engagement play in the success of clinical trials.
  • Learn how smart in-home technology is reshaping actual patient behavior today.
  • Using the results of hundreds of simulated hypertension studies, Spencer Health Solutions found that low adherence increased the likelihood of stroke by 42 percent. 

Gayle McCracken Vice President, Market Innovation Spencer Health Solutions

4:55PM – 5:15PM
Spotlyte: Allergan’s innovative approach that speaks to patients as consumers
  • Learn from Allergan’s game changing approach that treats patients as healthcare consumers
  • See how Spotlyte solved the problems of credibility, personalization and informed decision making that healthcare consumers face everyday
  • Understand how you can use the Spotlyte framework and principles to change the way you communicate with your patient population

Erin Russell General Manager, Spotlyte Allergan

Case Study: How Janssen is ensuring its trials are representative of its patient populations
  • Why Janssen has prioritized efforts which improve the diversity of the company’s clinical trials
  • Treat the cause, not the symptoms: understand the true reasons why your patient populations are underrepresented as a key step in improving your trial diversity

Kellie Terry Associate Director, R&D Project Planning, Oncology Janssen

5:15PM – 6:45PM
DRINKS

Join the industry’s innovators, register now to secure your place

Track 1
Track 2
9:00AM – 9:05AM
Chairman

Paul Simms Chairman eyeforpharma

9:05AM – 9:25AM
Embracing patient-centricity: What happens when pharma partners with patients
  • How listening and understanding to the patient enhanced AstraZeneca’s ability to help it’s patients
  • Why active listening allows for a mutually beneficial partnership between the patient and the pharma company

Michele Teufel Feasibility & Recruitment Partner / Clinical Operations, Global Product Delivery AstraZeneca

Case Study: Pfizer’s new commitment to being bilingual in patient-speak and industry-speak in everything it says
  • Dive into Pfizer’s new processes for translating the data it disseminates into patient-friendly language to avoid being lost in translation
  • Build trust in your organization by extending transparency: inform patients of what you’re doing at every turn#

J. R. Meloro Global Head of Disclosure, Publications, and Transparency Pfizer

9:25AM – 9:45AM
The future of patient support
  • Meeting patients where they are
  • Acknowledging the importance of the Care Partner
  • Supporting the ‘whole’ patient
  • Case Study on the impact of Ashfield PSP Innovation Center

Nareda Mills President, Patient Solutions Ashfield USA

Direct-to-Patient Research | More Than Just Technology
  • Enhancing patient engagement through decentralized/hybrid study design models
  • Patient Engagement:  What are Early Adopters and Innovators doing to move the needle?
  • The realities of a “Real-world” virtual study:  A patient-centric case study

Samisha Thomas-Hans Executive Director, Client Engagement, Real World & Late Phase Syneos Health

9:45AM – 10:25AM
Panel: Should the ‘Why’ be the ROI? Focus on patient value, knowing that will bring your company ROI in the long-term
  • Understand why seeking direct ROI for patient engagement can hinder your performance in gaining insights
  • Examine whether your company should transition to a model that doesn’t focus on ROI as proof of success in patient relations
  • How to wisen patients to their own healthcare options to show clinical trials as a viable treatment option

Nan Doyle Patient Engagement Lead, Rare Diseases Takeda

Ann Hartry Vice President, HEOR Lundbeck

Lode Dewulf Chief Patient Officer Servier

Emily Freeman Senior Director, CHC Global Regulatory Strategy Lead, Behavioral Science Sanofi

Health Literacy: A prescription to end confusion
  • Case Study: How Merck have improved Health Literacy rates and other benefits by addressing the issue pro-actively
  • Medicine is not enough: why health literacy is a vital way to improving outcomes for treatments already on the market

Lori Hall Director - Global Health Literacy Eli Lilly

Laurie Myers Global Health Literacy Director Merck

10:25AM – 10:45AM
BREAK
10:45AM – 11:05AM
Case Study: Insights, experience and advocacy: three ways to ensure our focus on patients
  • Explore pilot programs to glean new patient insights and optimize trial design, recruitment and retention
  • Explore Merck for Mothers program that enhances patient experience
  • Collaborate with patient advocacy organizations to understand the issues facing their constituents through the advocacy group’s work in research, policy and education

Michelle Vichnin Global Lead, Patient Advocacy and Strategic Alliance Merck

Case Study: Hear how Janssen intends to empower patients through technology
  • Hear about Janssen’s drive to build an interactive application for patients, that informs and engages them before, during and after the trial.
  • Learn from your patient too: why this new apparatus has improved Janssen’s knowledge about their protocol design

John Ziobrowski Director, Clinical Insights and Experience Janssen

11:05AM – 11:25AM
The future of patient services
  • Learn about the transition from labor-intensive low-skilled support to technology-assisted high-value support
  • Discover how to reach patients where they are and in their language
  • Understand how to coordinate call center, field and digital touches

Matt Hall Chief Executive Officer Human Care Systems

Capturing patients experiences in clinical trials – preparing for FDA, 2021
  • By 2021 the FDA will ask for documented patient experiences as part of its formal review process.
  • See a step-by-step process and systems needed for capturing patient experience data in clinical trials. Different cases of experience data collections will be presented.
11:25AM – 12:05PM
Panel: Why a holistic patient experience cannot exist without a holistic approach to working within your walls
  • Remove the “that’s not my department” mentality from your company’s engagement to spur more meaningful initiatives
  • If you don’t know how each function works with patients, how can the patient? Work across different functions for a seamless patient experience

Desiree Priestley Director, Patient Support Strategy & Insights Otsuka

Eriola Kruja Director of Digital Strategy Medullan

Melissa Paige Principal Access Principal Coordinator UVA Health System

Michelle Vichnin Global Lead, Patient Advocacy and Strategic Alliance Merck

Panel: Better trial design through pro-active patient collaboration
  • How to ensure enrolment and retention rates are boosted by specific efforts when involving patients in the design and development of trials
  • Build a trial that will keep patients engaged, committed and motivated to the trial through patient-designed PROs
  • See how proactive engagement helped avoid many problems that occur as trial development advances

Maura Snyder Director, Patient Engagement Strategy Janssen

Melissa Dupont Patient Network Manager Sanofi

Andrew Schorr Co-founder Patient Power

Kimberly Tableman Head, Digital Clinical Trials GSK

12:05PM – 1:05PM
Lunch Break
1:05PM – 1:25PM
Case Study: Beyond the brochure - evolve the role of patients in an increasingly changing information landscape
  • Learn how to create programs with patients for patients in an increasingly changing information landscape
  • Take patient experiences into account in all business decisions from R&D to access and advocacy to provide ultimate patient value
  • Understand the impact and importance of online communities for patients and companies, and how you can work with them 

Ivo Sulovsky Head of Marketing, Rare Disease Ipsen

1:25PM – 1:45PM
Not just a patient: How to boost your engagement with the young adult sub-population with rare and chronic diseases in your clinical trials
  • Develop your trials for the participants, not only the disease states, for more rewarding young adult trial recruitment
  • Follow a ‘how-to’ guide for engaging specifically with this sub-population of patients
  • Address the mental health co-morbidities and complexities impacting young adults with rare and chronic diseases through the clinical development continuum

Kristina Wolfe Co-founder and Patient Advocate Our Odyssey

Seth Rotberg Co-founder and Patient Advocate Our Odyssey

1:45PM – 2:25PM
Case study: Learn about the Patient-Focused Drug Development Council model as a way to leverage patient insights throughout the drug development process
  • Forming a standing council that enables on-going dialogue and sharing of insights delivers benefits far beyond the typical advisory board
  • Learn about how a PFDD Council was planned and implemented to support clinical trial design and PRO development for a multiple sclerosis program
  • EMD Serono, Accelerated Cure Project, and patient representatives will share their perspectives and key accomplishments of the Council

Schiffon Wong Executive Director, Global Evidence & Value Development EMD Serono

Robert McBurney Chief Executive Officer Accelerated Cure Project

1:45PM – 2:15PM
My Winged Victory
  • How one woman’s cancer diagnosis led her to understand that life’s losses can become life’s gain and take her from victim to victor
  • Turn adversity into action: From patient to passionate patient champion
  • How to create a purpose driven life

Molly MacDonald Founder, CEO The Pink Fund

2:25PM
End of conference

Day One

7:35AM – 8:50AM
REGISTRATION
8:50AM – 9:00AM
Opening remarks

Paul Simms Chairman eyeforpharma

9:00AM – 9:20AM
Evolve the conversation around patient access – through the patient’s eyes
  • Bring patient access in line with the fast pace of innovation of new therapies.
  • Get the right stakeholders at the table to discuss the evolving meaning of value and what that means to the patient.

Liz Lewis Head of Global Oncology Patient Value, Policy and Access Takeda

9:20AM – 9:40AM
Case Study: CSL’s framework that embeds patient focus at every level of the company
  • Learn how CSL’s patient centric mindset is being translated into actionable strategies across the product lifecycle
  • Understand the importance of executive buy in to the vision and its execution
  • Discuss the challenges and learnings of implementation, including the importance of shifting culture to meet strategy

Metani Rooms CMO Strategic Initiatives, Global Lead CSL Behring

9:40AM – 10:00AM
Why We Resist: The Surprising Truths about Motivating Behavior Change
  • We all set healthcare intentions for ourselves. We want to do better. We want to feel better. What holds us back from succeeding?
  • Hear from a behavioral scientist and healthcare marketer about the nine principles of influence that reveal why people reject healthcare change
  • Discover new ways to design communications, interventions and programs to help people make better, more confident decisions about their health

Kathleen Starr Managing Director of Behavioral Science Syneos Health

Marie Emms Vice President, Site and Patient Access Syneos Health

10:00AM – 10:40AM
Why your company’s patient commitment starts in the boardroom
  • Culture eats strategy: how to support leadership in making the case for patient centricity through proven success and identifiable change
  • How to find and support champions across your company

Jan Nissen Vice President, Patient Innovation & Engagement Merck

Eric Racine Vice President & Head, U.S. Public Affairs and Patient Advocacy Sanofi

Andrea Maddox-Smith CEO Bladder Cancer Advocacy Network

Lode Dewulf Chief Patient Officer Servier

10:40AM – 11:10AM
BREAK
11:10AM – 11:30AM
Case Study: “If you do it without us, it’s not about us.” Genentech’s journey towards patient centricity.
  • Explore Genentech’s ongoing evolution from a patient-friendly to a patient-centered organization
  • Learn why co-creating and providing seamless, meaningful, and consistent experiences and solutions for patients is the nucleus of patient centricity

Laurie Meyers Head of Patient Engagement Genentech

11:30AM – 11:50AM
Consider the source: Creating meaningful patient relationships with social media
  • Understand how patients perceive Pharma brands on social media in comparison to other consumer brands
  • Discover how friends, family, caregivers, and influencers fit into patients' circle of trust
  • Identify how brands can engage authentically with patients in the "Post-Trust Era"

Jean McCoy Senior Vice President, Partnerships Health Perspectives Group

11:50AM – 12:50PM
Patient-led Roundtables Discussion
12:50PM – 1:50PM
Lunch break
12:50PM – 1:50PM
Lunchtime workshop run by IQVIA
Track 1
Track 2
1:40PM – 2:45PM
Chairman

Jitesh Rohatgi Global Director, Healthcare & Life Science Principa Pegasystems

Chairman
1:45PM – 2:05PM
Nobody wants your sh***y pharma app!
  • Obstacles pharmas face when trying to reach patients via mobile
  • Partnerships with digital health start-ups that achieve real engagement with patients

Daniel Weinstein Chief Executive Officer Oshi Health

Case Study: How the American Gastroenterological Association, supported by UCB, is redefining care for women with inflammatory bowel disease
  • Learn how a pharma and association collaboration created a new standard of care for women before, during and after pregnancy
  • Understand the fundamentals behind a successful partnership that helped define a new industry standard
  • Hear the power of a complimentary physician/patient education effort 

Jessica Duncan Vice President, Communications American Gastroenterological Association

2:05PM – 2:25PM
Patients Are Speaking, So How Do We Respond?

Hear what the perceptions of pharma are vs the reality in terms of what patients expect/want, which areas need the most change, and how we can all do things differently.

Whitney Baldwin Senior Principal Accenture

Sarah Krug CEO Cancer 101

The value of trained patient advocates in clinical trial development
  • Gain insights into the training programs that can help patient advocates help you develop clinical trials
  • Understand how to take a powerful patient story and incorporate the learnings into your own processes
  • Build lasting relationships with patient advocates to develop a real-time feedback loop on your processes

Mary McGowan Executive Director The Myositis Association

2:25PM – 3:25PM
Workshops by Accenture and Syneos Health (Pharma Only)
3:25PM – 3:55PM
BREAK
3:55PM – 4:35PM
Panel: Is Digital the approach or the answer?
  • Start with the patient: how a patient-first approach has ensured pharma solutions are driven with purpose, not technology
  • Mix the key ingredients to a successful digital platform that your patients can use and understand
  • Best-practice guidelines on avoiding low take-up of digital solutions by patients

Surbhi Pandit-Patel Associate Director, Digital Solutions Patient Support Otsuka

Sarah Mills Principal, Digital Customer Experience Genentech

Wendy Erler Vice President, Head of Patient Insights and Advocacy Alexion

Amy Bucher Behavior Change Design Director Madpow

Moving the needle: Pragmatic approaches for achieving diversity in clinical trials
  • Discuss the goals of diversity in clinical trials and the interplay of access and scientific considerations
  • Consider how proactive intent, data insights and upfront strategies can improve chances for recruitment and retention success
  • Learn how pharma companies are changing operational norms to meet corporate goals for diversity

Rachael Fones Director, Government & Public Affairs IQVIA

Becky Johnson Associate Director, Global Patient & Site Solutions IQVIA

Anya Harry Global Lead, Clinical Trial Diversity GSK

Maria Apostolaros Senior Director, Science and Regulatory Advocacy PhRMA

4:35PM – 4:55PM
Design an effective and compliant nurse educator program to support unmet needs
  • Discover key strategies that impact effective and compliant program design
  • Define the role of the nurse educator and how to appropriately engage with field teams
  • Identify compliant ways to measure nurse educator effectiveness

Andrea Heslin Smiley President and CEO VMS Biomarketing

Case Study: Start with 95% medication adherence, see the potential for impact in simulated hypertension studies.
  • Understand the role adherence and engagement play in the success of clinical trials.
  • Learn how smart in-home technology is reshaping actual patient behavior today.
  • Using the results of hundreds of simulated hypertension studies, Spencer Health Solutions found that low adherence increased the likelihood of stroke by 42 percent. 

Gayle McCracken Vice President, Market Innovation Spencer Health Solutions

4:55PM – 5:15PM
Spotlyte: Allergan’s innovative approach that speaks to patients as consumers
  • Learn from Allergan’s game changing approach that treats patients as healthcare consumers
  • See how Spotlyte solved the problems of credibility, personalization and informed decision making that healthcare consumers face everyday
  • Understand how you can use the Spotlyte framework and principles to change the way you communicate with your patient population

Erin Russell General Manager, Spotlyte Allergan

Case Study: How Janssen is ensuring its trials are representative of its patient populations
  • Why Janssen has prioritized efforts which improve the diversity of the company’s clinical trials
  • Treat the cause, not the symptoms: understand the true reasons why your patient populations are underrepresented as a key step in improving your trial diversity

Kellie Terry Associate Director, R&D Project Planning, Oncology Janssen

5:15PM – 6:45PM
DRINKS

Day Two

Track 1
Track 2
9:00AM – 9:05AM
Chairman

Paul Simms Chairman eyeforpharma

9:05AM – 9:25AM
Embracing patient-centricity: What happens when pharma partners with patients
  • How listening and understanding to the patient enhanced AstraZeneca’s ability to help it’s patients
  • Why active listening allows for a mutually beneficial partnership between the patient and the pharma company

Michele Teufel Feasibility & Recruitment Partner / Clinical Operations, Global Product Delivery AstraZeneca

Case Study: Pfizer’s new commitment to being bilingual in patient-speak and industry-speak in everything it says
  • Dive into Pfizer’s new processes for translating the data it disseminates into patient-friendly language to avoid being lost in translation
  • Build trust in your organization by extending transparency: inform patients of what you’re doing at every turn#

J. R. Meloro Global Head of Disclosure, Publications, and Transparency Pfizer

9:25AM – 9:45AM
The future of patient support
  • Meeting patients where they are
  • Acknowledging the importance of the Care Partner
  • Supporting the ‘whole’ patient
  • Case Study on the impact of Ashfield PSP Innovation Center

Nareda Mills President, Patient Solutions Ashfield USA

Direct-to-Patient Research | More Than Just Technology
  • Enhancing patient engagement through decentralized/hybrid study design models
  • Patient Engagement:  What are Early Adopters and Innovators doing to move the needle?
  • The realities of a “Real-world” virtual study:  A patient-centric case study

Samisha Thomas-Hans Executive Director, Client Engagement, Real World & Late Phase Syneos Health

9:45AM – 10:25AM
Panel: Should the ‘Why’ be the ROI? Focus on patient value, knowing that will bring your company ROI in the long-term
  • Understand why seeking direct ROI for patient engagement can hinder your performance in gaining insights
  • Examine whether your company should transition to a model that doesn’t focus on ROI as proof of success in patient relations
  • How to wisen patients to their own healthcare options to show clinical trials as a viable treatment option

Nan Doyle Patient Engagement Lead, Rare Diseases Takeda

Ann Hartry Vice President, HEOR Lundbeck

Lode Dewulf Chief Patient Officer Servier

Emily Freeman Senior Director, CHC Global Regulatory Strategy Lead, Behavioral Science Sanofi

Health Literacy: A prescription to end confusion
  • Case Study: How Merck have improved Health Literacy rates and other benefits by addressing the issue pro-actively
  • Medicine is not enough: why health literacy is a vital way to improving outcomes for treatments already on the market

Lori Hall Director - Global Health Literacy Eli Lilly

Laurie Myers Global Health Literacy Director Merck

10:25AM – 10:45AM
BREAK
10:45AM – 11:05AM
Case Study: Insights, experience and advocacy: three ways to ensure our focus on patients
  • Explore pilot programs to glean new patient insights and optimize trial design, recruitment and retention
  • Explore Merck for Mothers program that enhances patient experience
  • Collaborate with patient advocacy organizations to understand the issues facing their constituents through the advocacy group’s work in research, policy and education

Michelle Vichnin Global Lead, Patient Advocacy and Strategic Alliance Merck

Case Study: Hear how Janssen intends to empower patients through technology
  • Hear about Janssen’s drive to build an interactive application for patients, that informs and engages them before, during and after the trial.
  • Learn from your patient too: why this new apparatus has improved Janssen’s knowledge about their protocol design

John Ziobrowski Director, Clinical Insights and Experience Janssen

11:05AM – 11:25AM
The future of patient services
  • Learn about the transition from labor-intensive low-skilled support to technology-assisted high-value support
  • Discover how to reach patients where they are and in their language
  • Understand how to coordinate call center, field and digital touches

Matt Hall Chief Executive Officer Human Care Systems

Capturing patients experiences in clinical trials – preparing for FDA, 2021
  • By 2021 the FDA will ask for documented patient experiences as part of its formal review process.
  • See a step-by-step process and systems needed for capturing patient experience data in clinical trials. Different cases of experience data collections will be presented.
11:25AM – 12:05PM
Panel: Why a holistic patient experience cannot exist without a holistic approach to working within your walls
  • Remove the “that’s not my department” mentality from your company’s engagement to spur more meaningful initiatives
  • If you don’t know how each function works with patients, how can the patient? Work across different functions for a seamless patient experience

Desiree Priestley Director, Patient Support Strategy & Insights Otsuka

Eriola Kruja Director of Digital Strategy Medullan

Melissa Paige Principal Access Principal Coordinator UVA Health System

Michelle Vichnin Global Lead, Patient Advocacy and Strategic Alliance Merck

Panel: Better trial design through pro-active patient collaboration
  • How to ensure enrolment and retention rates are boosted by specific efforts when involving patients in the design and development of trials
  • Build a trial that will keep patients engaged, committed and motivated to the trial through patient-designed PROs
  • See how proactive engagement helped avoid many problems that occur as trial development advances

Maura Snyder Director, Patient Engagement Strategy Janssen

Melissa Dupont Patient Network Manager Sanofi

Andrew Schorr Co-founder Patient Power

Kimberly Tableman Head, Digital Clinical Trials GSK

12:05PM – 1:05PM
Lunch Break
1:05PM – 1:25PM
Case Study: Beyond the brochure - evolve the role of patients in an increasingly changing information landscape
  • Learn how to create programs with patients for patients in an increasingly changing information landscape
  • Take patient experiences into account in all business decisions from R&D to access and advocacy to provide ultimate patient value
  • Understand the impact and importance of online communities for patients and companies, and how you can work with them 

Ivo Sulovsky Head of Marketing, Rare Disease Ipsen

1:25PM – 1:45PM
Not just a patient: How to boost your engagement with the young adult sub-population with rare and chronic diseases in your clinical trials
  • Develop your trials for the participants, not only the disease states, for more rewarding young adult trial recruitment
  • Follow a ‘how-to’ guide for engaging specifically with this sub-population of patients
  • Address the mental health co-morbidities and complexities impacting young adults with rare and chronic diseases through the clinical development continuum

Kristina Wolfe Co-founder and Patient Advocate Our Odyssey

Seth Rotberg Co-founder and Patient Advocate Our Odyssey

1:45PM – 2:25PM
Case study: Learn about the Patient-Focused Drug Development Council model as a way to leverage patient insights throughout the drug development process
  • Forming a standing council that enables on-going dialogue and sharing of insights delivers benefits far beyond the typical advisory board
  • Learn about how a PFDD Council was planned and implemented to support clinical trial design and PRO development for a multiple sclerosis program
  • EMD Serono, Accelerated Cure Project, and patient representatives will share their perspectives and key accomplishments of the Council

Schiffon Wong Executive Director, Global Evidence & Value Development EMD Serono

Robert McBurney Chief Executive Officer Accelerated Cure Project

1:45PM – 2:15PM
My Winged Victory
  • How one woman’s cancer diagnosis led her to understand that life’s losses can become life’s gain and take her from victim to victor
  • Turn adversity into action: From patient to passionate patient champion
  • How to create a purpose driven life

Molly MacDonald Founder, CEO The Pink Fund

2:25PM
End of conference