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2018’s full agenda

Day 1 – 16 October. Start time: 9am. Finish time: 5:45pm, followed be networking drinks
Day 2 – 17 October. Start time: 8:55am. Finish time: 5:45pm.


For printable version

07:30 - 09:00
REGISTRATION WITH LIGHT BREAKFAST
09:00 - 09:05
Welcome from eyeforpharma
Opening Keynote Session
09:05 - 09:45
Panel: Why policy makers are now advancing patient centricity - and why you need to step up accordingly
  • Why NICE are innovating Market Access through patient involvement
  • How patient groups can build a bridge between regulators and payers to increase access
  • Understand EUnetHTA's strategy to elevate the patient voice in HTAs

Moderator: Takeda Meni Styliadou VP Government Affairs & Public Policy, Europe & Canada Takeda

Panellists: Lundbeck Anders Lassen Head of Regulatory Science & Advocacy Lundbeck

Astellas Stefan Holmstrom Global Head, HTA Strategy Astellas

EUnetHTA Niklas Hedberg Chair of Executive Board EUnetHTA

NICE Victoria Thomas Head of Public Involvement Programme NICE

09:45 - 10:05
Better patient experiences deliver better health: creating living services for patients
  • Profound forces are reshaping healthcare
  • What is a better patient experience?
  • Learnings from our research and our work with Life Sciences and Health organisations
  • The capabilities that underpin the creation of new patient experiences
  • Key takeaways for the Life Sciences and Health professionals

Accenture Dr. Anita Janda Director within Accenture’s Life Science’s Strategy Accenture

Accenture Alexandre Koloskov Digital Transformation Manager Accenture

10:05 - 10:30
Research for Patient as People?
  • Why working in partnership with patients generates the most effective insights for drug development
  • Understand how a multi-disciplinary approach to patient engagement shapes R&D processes using chronic pain as a case study
  • ‘Listening first, acting second’ – one of the many factors that will influence success for patients and industry

Grünenthal Innovation Unit Pain Lars Joensson Vice President and Head of Patient Engagement Grünenthal Innovation Unit Pain

10:30 - 11:00
EXHIBITION & NETWORKING COFFEE BREAK
11:00 - 11:25
A strategic approach to inspire real change
  • The patient perspective – Pilot project Living with NETs
  • A strategic approach to inspire real change
  • Shift our organizational model - execute training to deliver outcomes, whereby every new project starts with patients in mind, and its success is measured from their perspective

Ipsen Isabelle Bocher-Pianka Chief Patient Affairs Officer Ipsen

Ronny Allan Ronny Allan Patient Advocate

11:25 - 11:45
Beyond the rhetoric and traditional advocacy: Walking the patient-centric talk to deliver meaningful change
  • The importance of taking a wholistic approach to ensure all areas of business are aligned behind a clear goal

ViiV Healthcare Oleksandr Gorbenko Global Patient Affairs Medical Lead ViiV Healthcare

11:45 - 12:45
Interactive Roundtable Discussions
  1. Amplify the Patient Voice
    Tactics to involve the patient in payer decisions on access to essential innovations in care
  2. Platforms that Sticks
    How to design interactions that resonate and keep patients coming back for more
  3. Earn Trust: Address Privacy
    Lifting the curtain on patient data to transparently show how and why data is being used
  4. Get the Patient Data You need
    Strategies for industry to come together to ensure we gain the data we need to deliver relevant care
  5. Operational Blueprint for Patient Value
    How to structure, train, incentivize and invest in creating an organisation to deliver patient value?
  6. Win Patient Centricity Champions
    Techniques to assess the value of sustained support to patient groups and create internal support
  7. Patient Engagement & Value
    How patient engagement and market access work together to demonstrate value of patient engagement for all stakeholders
  8. A new model, from Drug to Care.
    How patient experience drives pharma model shift `from Drug to Care` and can influence health care decision makers (regulatory, payers, public health policy makers)?
  9. Build organisational capability
    Identify the skills, processes, people and setup required to focus on outcomes and streamlining value

Roundtable Moderators: Oxford PharmaGenesis Sarah Griffiths Communications Consultant, Patient Engagement Oxford PharmaGenesis

UCB Kenza Seddik Patient Experience and Value Lead UCB

UCB Boglarka Szegvari Global Head of Access Strategy for non-drug solutions and new populations UCB

AstraZeneca Nick Passey Regional Capability lead International AstraZeneca

Novartis Oncology Europe Veronica Foote Head of Patient Relations & Communications Europe Novartis Oncology Europe

UCB Christina Donatti Global Head RWE Data & Policy UCB

NHS Jenny Royle Patient-centricity Program Lead digitalECMT, Cancer Research UK and The Christie NHS Foundation Trust

Janssen Daniel De Schryver Patient Engagement and Advocacy Lead, Europe, Middle East and Africa Janssen

ViiV Healthcare Oleksandr Gorbenko Global Patient Affairs Medical Lead ViiV Healthcare

12:45 - 13:45
EXHIBITION & NETWORKING LUNCH
Section 1: Partner For Patient Centricity
13:45 - 14:10
The Business Case for long-term partnership with Patient Groups
  • Sustainable change: invest to strengthen the collaboration and improve trust with the patient community
  • How to shift from transactional value to deeper partnerships with patient groups
  • EPALCO Case Study: The Story of Novartis Oncology Region Europe on how working together with the Patient groups can improve outcomes for patients and make the industry a trusted partner
  • How Patient groups shaped the Novartis Commitment to Patients ' Caregivers

Novartis Oncology Europe Veronica Foote Head of Patient Relations & Communications Europe Novartis Oncology Europe

International Brain Tumour Alliance Kathy Oliver Co-Director International Brain Tumour Alliance

14:10 - 14:30
Understanding the TOTAL PATIENT - a 360 view
  • Combining data-driven adherence predictors and patient-level behavioural insights to optimise our understanding of each individual
  • Leveraging behavioural science and smart segmentation to target support to meet patient needs
  • Delivering individualised and targeted support through the right blend of in-person, digitally augmented interventions

IQVIA Clare Moloney Programme Insights and Design Lead IQVIA

14:30 - 14:55
Want to improve patient outcomes? Collaborate with your competitors!
  • Why open-business models are the only way to reduce waste and achieve true change
  • Why pharma must work together to identify gaps in treatment pathways
  • Case Study: How AstraZeneca built a coalition for change

AstraZeneca Tim Scrivener Solution Architect and Data Scientist AstraZeneca

NHS Jenny Royle Patient-centricity Program Lead digitalECMT, Cancer Research UK and The Christie NHS Foundation Trust

14:55 - 15:20
MS in the 21st Century; explore a unique collaboration between patients and healthcare professionals to address areas of unmet need in Multiple Sclerosis
  • Understand the ‘communication gap’ that exists between patients and healthcare providers (HCPs) with respect to disease management
  • See the programmes and publications the group has undertaken to address discovered unmet needs
  • Hear the patient perspective; why is this initiative so important for both patients and HCPs?

Merck Group Vanessa Pott Director, Patient Advocacy & Strategic Partnerships, Global Healthcare Government & Public Affairs Merck Group

MS in the 21st Century Patient Steering Group David Yeandle, OBE Member MS in the 21st Century Patient Steering Group

15:20 - 15:45
EXHIBITION & NETWORKING COFFEE BREAK
15:45 - 16:05
Presentation topic to be announced

ACT Jess Mills Co-founder ACT (Adaptive Collaborative Treatments)

16:05 - 16:25
Ignore personal outcomes, ignore your patients!
  • Understand the difference between personal outcomes, clinical outcomes and patient experience.
  • What benefits can Pharma derive from personal outcomes?

iWantGreatCare Rupert Potter Director iWantGreatCare

Section 2: Evidence for Patient Centricity
16:25 - 16:45
Advance market access through patient data and collaborations
  • How do you work with patients to capture patient reported outcomes?
  • What is the impact of PROs on Access dossiers?
  • Build trust through transparency to win the support of the patient

Janssen Chenglong Han, MD, PhD. Director, Patient-Reported Outcomes, Global Market Access Janssen

16:45 - 16:55
How partnership with patient organizations advances data generation projects
  • How to collect data on patient preferences
  • Advance recruitment via partnership with patient organizations
  • Integrate patient insight into global RWE study concept

Takeda Leona Probst Patient Affairs Manager Oncology Takeda

16:55 - 17:20
Panel: Accelerate the implementation of outcomes-focused value-based healthcare in Europe
  • Explore how the Innovative Medicines Initiative’s (IMI) Big Data For Better Outcomes (BD4BO) programme is facilitating collaboration across the healthcare landscape
  • Highlight the role and benefits of patients to improve health outcomes and contribute to the sustainability of healthcare systems
  • Discuss the development and utility of standardised patient outcomes measures

Moderator: ABPI Shahid Hanif Head of Health Data & Outcomes ABPI

Panellists: European Multiple Sclerosis Platform (EMSP) Christoph Thalheim Director External Affairs European Multiple Sclerosis Platform (EMSP)

UCB Christina Donatti Global Head RWE Data & Policy UCB

Paula Williamson Professor of Medical Statistics University of Liverpool

COMET Management Group Paula Williamson Chair COMET Management Group

17:30 - 19:30
NETWORKING DRINK
08:00 - 08:55
Registration with light breakfast
Im-patient Summit – where patients are in charge! #impatientconf
08:55 - 09:00
Chairman’s Opening:

Matt will kick off the first ever im-patient conference with a message of inclusivity and why this is such an important step forward.

Matt Eagles Matt Eagles Patient Advocate

09:00 - 09:15
Innovation that works – when patients devise their own solutions

Patients suffering from chronic conditions often develop useful and innovative solutions to help them cope with their health disorders. If shared, these patient innovations could significantly impact the lives of others living under similar conditions.

  • Understand the huge scale of patient innovations that require support
  • The patient knows best – understand how empowerment can lead to pre-backed solutions
  • Witness some of the most exciting selections from the 1600 patient-led innovations submitted to an open online platform

Católica Lisbon School of Business & Economics, and Leader of Patient Innovation Pedro Oliveira Professor of Technology and Innovation Management Copenhagen Business School, and Leader of Patient Innovation

09:15 - 09:30
Lise Pape, Carer and Founder of Walk With Path

Lise founded Walk With Path in 2014 when she identified a need through her personal experience with Parkinson’s suffered by her father. She used her Innovation Design Engineering background and the company launched its first product in 2017; Path Finder, a visual cueing shoe attachment to help those with Parkinson's. The second product, a haptic feedback insole to improve balance; Path Feel, is in development. Lise will share:

  • How she created a solution to this unmet need of many patients with Parkinson’s and other disease areas
  • Her approach to user centred design, critique of everyday wearables and her approach to co-creation.
  • Feedback and redesign: how patient experiences informed continued improvements

Walk With Path Lise Pape Carer and Founder Walk With Path

08:30 - 09:00
Develop solution for day to day disease management

Let Andrew fly you on board his ‘blood sugar plane’, rising high and dipping low, in order that you can experience a real patient journey and the challenges that had to be overcome.

  • How recognition of a real patient experience led to the creation of a life-changing technical solution and better
  • How a patient’s decision-making process depends on good data feedback and impact on QOL

Andrew Warrington Andrew Warrington Patient Advocate

09:45 - 10:25
Interactive Roundtable Discussions
  1. Patient preference
    Hear directly from patients on their preference for working with pharma clinical teams, and how do patients prefer to work with them
  2. Connecting with patients
    How can we work with external organisations better to locate trial patients better?
  3. Innovation with Patients
    What innovations can pharma introduce to make the traditional RCT more effective for end users?
  4. Pharma’s perception of patients
    How do pharma perceive patient and where do patients bring most value amongst HCP and doctors?
  5. Patients want to help!
    How can patients help pharma for marketing within the European regulations?
  6. Next generation disease awareness campaign and patient services
    How can the budget be spent more wisely for disease awareness and patient services?
  7. The best approach
    What is a patient friendly approach? What does that mean to patients?
  8. Link patients to pharma
    How can we achieve bilateral benefit by patients talking with decision makers to make change
  9. Improve relation through technologies
    Can new technologies like AI, AR and VR improve the way Pharma communicates?

Roundtable Moderators: Speaker Cecile Tardy-Srinivasan Patient Advocate

Speaker Matt Eagles Patient & Patient Advocate

Speaker Simon Stones Patient Advocate

Speaker Richard Stephens Patient Carer

Speaker Margot Vanfleteren Patient Advocate

Parkinsons UK Emma Lawton Devices Apps & Gadgets Strategist Parkinsons UK

Speaker Andrew Warrington Type 1 Diabetes Patient

Xploro Dom Raban Founder Xploro

Walk With Path Lise Pape Carer and Founder Walk With Path

10:25 - 10:50
EXHIBITION & NETWORKING COFFEE BREAK
10:50 - 11:25
Adherence is always one of pharma’s goals. But is it the patient’s goal, too?
  • Start with the patient: Align with the patient community’s aspirations and life goals in order to improve treatment compliance and outcomes
  • What tools do patients crave? How to focus investments on demand rather than your technology or convenience
  • Educate adherence: enable more informed decision-making by enabling HCPs to aid transparency and communication with patients

Moderator: Matt Eagles Matt Eagles Patient & Patient Advocate

Panellists: Axel Vanderperre Founder UTOPIA_BXL

Emma D’Arcy-Sutcliffe & Delilah D’Arcy Emma D’Arcy-Sutcliffe & Delilah D’Arcy Patient & Patient Advocate

Bayer Pooja Merchant Head of External Medical Affairs Bayer

11:25 - 11:35
How a patient-inspired app is using AR, AI and game mechanics to deliver health information to children

In 2011, Dom Raban’s 13-year-old daughter, Issy, was diagnosed with a rare form of bone cancer. See how Issy’s year-long journey – involving 18 rounds of chemotherapy, surgery and Proton Therapy in the US – inspired a new mobile application:

  • The challenges of the complex patient journey, especially in children, and finding solutions to the information needs
  • How Issy’s experience led to an app using a variety of new technologies to deliver health information directly to children
  • How patients can lead the development process to improve quality, relevance and advocacy

Xploro Dom Raban Founder Xploro

11:35 - 11:45
The power of digitally-enhanced communication in the hands of the patient

See how Emma’s Parkinson’s diagnosis, at the age of 29, has led to a new support platform for thousands of patients. Making it her mission to raise awareness about the condition and continue her life as planned, Emma campaigned on social media, published her own book, featured in a BBC documentary and video-blogged her life for a whole year.

  • Witness how Emma’s experience has led to the creation of Threesixfives, a website where people with long term health conditions can learn and find support
  • Understand patient literacy and the potential reach of good storytelling
  • How Parkinson’s UK is using technology to enhance lives – and the opportunity for pharma

Parkinsons UK Emma Lawton Devices Apps & Gadgets Strategist Parkinsons UK

11:45 - 12:05
Followed by a Fire side chat

Speaker Simon Stones Patient Advocate

Parkinsons UK Emma Lawton Devices Apps & Gadgets Strategist Parkinsons UK

Xploro Dom Raban Founder Xploro

12:05 - 12:15
Roundtable Take-aways

Speaker Cecile Tardy-Srinivasan Patient Advocate

Speaker Matt Eagles Patient & Patient Advocate

12:15 - 13:15
WORKSHOP hosted by Accenture
‘Designing better patient experiences to deliver better health: ideation and prioritisation’
12:15 - 13:45
EXHIBITION & NETWORKING LUNCH
Section 3: Structure for Patient Centricity
13:45 - 14:20
Panel: Involve the patient voice while staying within industry rules
  • Learn to engage and speak with patients
  • Earn the trust of patients and retain the trust of colleagues and regulators
  • Balance internal investment and external partnerships to harness patient insights
  • How to negotiate tensions between industry rules and patient advocates and groups

Moderator: Novartis Mark Grossien Head of Communications & Patient Advocacy Germany & Pharma Region Europe Novartis

NCRI Richard Stephens Consumer Lead and Chair of Consumer Forum NCRI

Speaker Carol Munt Patient Advocate

Bayer Pooja Merchant Head of External Medical Affairs Bayer

14:20 - 14:45
Discover the organisational blueprint for scaling patient centricity
  • Smart ways to ensure a grassroots movement into a new way of working
  • Build organisational confidence to embed patient engagement into everything you do
  • Case Study: The story of Janssen’s hub for scaling patient engagement

Janssen Daniel De Schryver Patient Engagement and Advocacy Lead, Europe, Middle East and Africa Janssen

National Voices Jeremy Taylor Chief Executive National Voices

14:45 - 15:05
Create services that resonate through co-creation and ethnography
  • Dig beneath the surface to truly understand the patient
  • Shift from patternistic design to co-creation led by patients
  • Move from a business model framework to a patient experience framework of service design

Pfizer Geoff Rollason Patient Experience and Service Director - Oncology UK Pfizer

15:05 - 15:25
EXHIBITION & NETWORKING COFFEE BREAK
Section 4: Patient Experience for Patient Centricity
15:25 - 16:05
Panel: Candid patient perspectives on the good, the bad and the ugly of service design
  • How do patients really experience pharma’s services?
  • Can pharma better build trust with patient communities to develop productive collaborations?
  • Innovation is supposedly the ‘silver bullet’, but where do patients really see the opportunity for change?

Moderator: eyeforpharma Paul Simms Chairman eyeforpharma

Panellists: Teresa Ferrairo Teresa Ferreiro Patient Advocate

Trishna Bharadia Trishna Bharadia Patient Advocate eyeforpharma Award Winner

Carole Sian Scrafton MBS, BA (hons) Carole Sian Scrafton MBS, BA (hons) Patient Advocate

AISC Paola Antonini, MD, PhD AISC Scientific Committee Member, Head of Clinical Research & Training Initiatives AISC

16:05 - 16:25
Will we succeed with Patient Centricity? Look in the mirror!
  • How to see the mountain: another Golden Rule
  • Why an internal focus can generate external results
  • Culture eats strategy for breakfast

Servier Lode Dewulf Chief Patient Officer Servier

16:25
CONFERENCE ENDS
07:30 - 09:00
REGISTRATION WITH LIGHT BREAKFAST
09:00 - 09:05
Welcome from eyeforpharma
Opening Keynote Session
09:05 - 09:45
Panel: Why policy makers are now advancing patient centricity - and why you need to step up accordingly
  • Why NICE are innovating Market Access through patient involvement
  • How patient groups can build a bridge between regulators and payers to increase access
  • Understand EUnetHTA's strategy to elevate the patient voice in HTAs

Moderator: Takeda Meni Styliadou VP Government Affairs & Public Policy, Europe & Canada Takeda

Panellists: Lundbeck Anders Lassen Head of Regulatory Science & Advocacy Lundbeck

Astellas Stefan Holmstrom Global Head, HTA Strategy Astellas

EUnetHTA Niklas Hedberg Chair of Executive Board EUnetHTA

NICE Victoria Thomas Head of Public Involvement Programme NICE

09:45 - 10:05
Better patient experiences deliver better health: creating living services for patients
  • Profound forces are reshaping healthcare
  • What is a better patient experience?
  • Learnings from our research and our work with Life Sciences and Health organisations
  • The capabilities that underpin the creation of new patient experiences
  • Key takeaways for the Life Sciences and Health professionals

Accenture Dr. Anita Janda Director within Accenture’s Life Science’s Strategy Accenture

Accenture Alexandre Koloskov Digital Transformation Manager Accenture

10:05 - 10:30
Research for Patient as People?
  • Why working in partnership with patients generates the most effective insights for drug development
  • Understand how a multi-disciplinary approach to patient engagement shapes R&D processes using chronic pain as a case study
  • ‘Listening first, acting second’ – one of the many factors that will influence success for patients and industry

Grünenthal Innovation Unit Pain Lars Joensson Vice President and Head of Patient Engagement Grünenthal Innovation Unit Pain

10:30 - 11:00
EXHIBITION & NETWORKING COFFEE BREAK
11:00 - 11:25
A strategic approach to inspire real change
  • The patient perspective – Pilot project Living with NETs
  • A strategic approach to inspire real change
  • Shift our organizational model - execute training to deliver outcomes, whereby every new project starts with patients in mind, and its success is measured from their perspective

Ipsen Isabelle Bocher-Pianka Chief Patient Affairs Officer Ipsen

Ronny Allan Ronny Allan Patient Advocate

11:25 - 11:45
Beyond the rhetoric and traditional advocacy: Walking the patient-centric talk to deliver meaningful change
  • The importance of taking a wholistic approach to ensure all areas of business are aligned behind a clear goal

ViiV Healthcare Oleksandr Gorbenko Global Patient Affairs Medical Lead ViiV Healthcare

11:45 - 12:45
Interactive Roundtable Discussions
  1. Amplify the Patient Voice
    Tactics to involve the patient in payer decisions on access to essential innovations in care
  2. Platforms that Sticks
    How to design interactions that resonate and keep patients coming back for more
  3. Earn Trust: Address Privacy
    Lifting the curtain on patient data to transparently show how and why data is being used
  4. Get the Patient Data You need
    Strategies for industry to come together to ensure we gain the data we need to deliver relevant care
  5. Operational Blueprint for Patient Value
    How to structure, train, incentivize and invest in creating an organisation to deliver patient value?
  6. Win Patient Centricity Champions
    Techniques to assess the value of sustained support to patient groups and create internal support
  7. Patient Engagement & Value
    How patient engagement and market access work together to demonstrate value of patient engagement for all stakeholders
  8. A new model, from Drug to Care.
    How patient experience drives pharma model shift `from Drug to Care` and can influence health care decision makers (regulatory, payers, public health policy makers)?
  9. Build organisational capability
    Identify the skills, processes, people and setup required to focus on outcomes and streamlining value

Roundtable Moderators: Oxford PharmaGenesis Sarah Griffiths Communications Consultant, Patient Engagement Oxford PharmaGenesis

UCB Kenza Seddik Patient Experience and Value Lead UCB

UCB Boglarka Szegvari Global Head of Access Strategy for non-drug solutions and new populations UCB

AstraZeneca Nick Passey Regional Capability lead International AstraZeneca

Novartis Oncology Europe Veronica Foote Head of Patient Relations & Communications Europe Novartis Oncology Europe

UCB Christina Donatti Global Head RWE Data & Policy UCB

NHS Jenny Royle Patient-centricity Program Lead digitalECMT, Cancer Research UK and The Christie NHS Foundation Trust

Janssen Daniel De Schryver Patient Engagement and Advocacy Lead, Europe, Middle East and Africa Janssen

ViiV Healthcare Oleksandr Gorbenko Global Patient Affairs Medical Lead ViiV Healthcare

12:45 - 13:45
EXHIBITION & NETWORKING LUNCH
Section 1: Partner For Patient Centricity
13:45 - 14:10
The Business Case for long-term partnership with Patient Groups
  • Sustainable change: invest to strengthen the collaboration and improve trust with the patient community
  • How to shift from transactional value to deeper partnerships with patient groups
  • EPALCO Case Study: The Story of Novartis Oncology Region Europe on how working together with the Patient groups can improve outcomes for patients and make the industry a trusted partner
  • How Patient groups shaped the Novartis Commitment to Patients ' Caregivers

Novartis Oncology Europe Veronica Foote Head of Patient Relations & Communications Europe Novartis Oncology Europe

International Brain Tumour Alliance Kathy Oliver Co-Director International Brain Tumour Alliance

14:10 - 14:30
Understanding the TOTAL PATIENT - a 360 view
  • Combining data-driven adherence predictors and patient-level behavioural insights to optimise our understanding of each individual
  • Leveraging behavioural science and smart segmentation to target support to meet patient needs
  • Delivering individualised and targeted support through the right blend of in-person, digitally augmented interventions

IQVIA Clare Moloney Programme Insights and Design Lead IQVIA

14:30 - 14:55
Want to improve patient outcomes? Collaborate with your competitors!
  • Why open-business models are the only way to reduce waste and achieve true change
  • Why pharma must work together to identify gaps in treatment pathways
  • Case Study: How AstraZeneca built a coalition for change

AstraZeneca Tim Scrivener Solution Architect and Data Scientist AstraZeneca

NHS Jenny Royle Patient-centricity Program Lead digitalECMT, Cancer Research UK and The Christie NHS Foundation Trust

14:55 - 15:20
MS in the 21st Century; explore a unique collaboration between patients and healthcare professionals to address areas of unmet need in Multiple Sclerosis
  • Understand the ‘communication gap’ that exists between patients and healthcare providers (HCPs) with respect to disease management
  • See the programmes and publications the group has undertaken to address discovered unmet needs
  • Hear the patient perspective; why is this initiative so important for both patients and HCPs?

Merck Group Vanessa Pott Director, Patient Advocacy & Strategic Partnerships, Global Healthcare Government & Public Affairs Merck Group

MS in the 21st Century Patient Steering Group David Yeandle, OBE Member MS in the 21st Century Patient Steering Group

15:20 - 15:45
EXHIBITION & NETWORKING COFFEE BREAK
15:45 - 16:05
Presentation topic to be announced

ACT Jess Mills Co-founder ACT (Adaptive Collaborative Treatments)

16:05 - 16:25
Ignore personal outcomes, ignore your patients!
  • Understand the difference between personal outcomes, clinical outcomes and patient experience.
  • What benefits can Pharma derive from personal outcomes?

iWantGreatCare Rupert Potter Director iWantGreatCare

Section 2: Evidence for Patient Centricity
16:25 - 16:45
Advance market access through patient data and collaborations
  • How do you work with patients to capture patient reported outcomes?
  • What is the impact of PROs on Access dossiers?
  • Build trust through transparency to win the support of the patient

Janssen Chenglong Han, MD, PhD. Director, Patient-Reported Outcomes, Global Market Access Janssen

16:45 - 16:55
How partnership with patient organizations advances data generation projects
  • How to collect data on patient preferences
  • Advance recruitment via partnership with patient organizations
  • Integrate patient insight into global RWE study concept

Takeda Leona Probst Patient Affairs Manager Oncology Takeda

16:55 - 17:20
Panel: Accelerate the implementation of outcomes-focused value-based healthcare in Europe
  • Explore how the Innovative Medicines Initiative’s (IMI) Big Data For Better Outcomes (BD4BO) programme is facilitating collaboration across the healthcare landscape
  • Highlight the role and benefits of patients to improve health outcomes and contribute to the sustainability of healthcare systems
  • Discuss the development and utility of standardised patient outcomes measures

Moderator: ABPI Shahid Hanif Head of Health Data & Outcomes ABPI

Panellists: European Multiple Sclerosis Platform (EMSP) Christoph Thalheim Director External Affairs European Multiple Sclerosis Platform (EMSP)

UCB Christina Donatti Global Head RWE Data & Policy UCB

Paula Williamson Professor of Medical Statistics University of Liverpool

COMET Management Group Paula Williamson Chair COMET Management Group

17:30 - 19:30
NETWORKING DRINK

Purchase the Post-Conference Materials

Event Presentations • Event Audio • On Demand Subscription

08:00 - 08:55
Registration with light breakfast
Im-patient Summit – where patients are in charge! #impatientconf
08:55 - 09:00
Chairman’s Opening:

Matt will kick off the first ever im-patient conference with a message of inclusivity and why this is such an important step forward.

Matt Eagles Matt Eagles Patient Advocate

09:00 - 09:15
Innovation that works – when patients devise their own solutions

Patients suffering from chronic conditions often develop useful and innovative solutions to help them cope with their health disorders. If shared, these patient innovations could significantly impact the lives of others living under similar conditions.

  • Understand the huge scale of patient innovations that require support
  • The patient knows best – understand how empowerment can lead to pre-backed solutions
  • Witness some of the most exciting selections from the 1600 patient-led innovations submitted to an open online platform

Católica Lisbon School of Business & Economics, and Leader of Patient Innovation Pedro Oliveira Professor of Technology and Innovation Management Copenhagen Business School, and Leader of Patient Innovation

09:15 - 09:30
Lise Pape, Carer and Founder of Walk With Path

Lise founded Walk With Path in 2014 when she identified a need through her personal experience with Parkinson’s suffered by her father. She used her Innovation Design Engineering background and the company launched its first product in 2017; Path Finder, a visual cueing shoe attachment to help those with Parkinson's. The second product, a haptic feedback insole to improve balance; Path Feel, is in development. Lise will share:

  • How she created a solution to this unmet need of many patients with Parkinson’s and other disease areas
  • Her approach to user centred design, critique of everyday wearables and her approach to co-creation.
  • Feedback and redesign: how patient experiences informed continued improvements

Walk With Path Lise Pape Carer and Founder Walk With Path

08:30 - 09:00
Develop solution for day to day disease management

Let Andrew fly you on board his ‘blood sugar plane’, rising high and dipping low, in order that you can experience a real patient journey and the challenges that had to be overcome.

  • How recognition of a real patient experience led to the creation of a life-changing technical solution and better
  • How a patient’s decision-making process depends on good data feedback and impact on QOL

Andrew Warrington Andrew Warrington Patient Advocate

09:45 - 10:25
Interactive Roundtable Discussions
  1. Patient preference
    Hear directly from patients on their preference for working with pharma clinical teams, and how do patients prefer to work with them
  2. Connecting with patients
    How can we work with external organisations better to locate trial patients better?
  3. Innovation with Patients
    What innovations can pharma introduce to make the traditional RCT more effective for end users?
  4. Pharma’s perception of patients
    How do pharma perceive patient and where do patients bring most value amongst HCP and doctors?
  5. Patients want to help!
    How can patients help pharma for marketing within the European regulations?
  6. Next generation disease awareness campaign and patient services
    How can the budget be spent more wisely for disease awareness and patient services?
  7. The best approach
    What is a patient friendly approach? What does that mean to patients?
  8. Link patients to pharma
    How can we achieve bilateral benefit by patients talking with decision makers to make change
  9. Improve relation through technologies
    Can new technologies like AI, AR and VR improve the way Pharma communicates?

Roundtable Moderators: Speaker Cecile Tardy-Srinivasan Patient Advocate

Speaker Matt Eagles Patient & Patient Advocate

Speaker Simon Stones Patient Advocate

Speaker Richard Stephens Patient Carer

Speaker Margot Vanfleteren Patient Advocate

Parkinsons UK Emma Lawton Devices Apps & Gadgets Strategist Parkinsons UK

Speaker Andrew Warrington Type 1 Diabetes Patient

Xploro Dom Raban Founder Xploro

Walk With Path Lise Pape Carer and Founder Walk With Path

10:25 - 10:50
EXHIBITION & NETWORKING COFFEE BREAK
10:50 - 11:25
Adherence is always one of pharma’s goals. But is it the patient’s goal, too?
  • Start with the patient: Align with the patient community’s aspirations and life goals in order to improve treatment compliance and outcomes
  • What tools do patients crave? How to focus investments on demand rather than your technology or convenience
  • Educate adherence: enable more informed decision-making by enabling HCPs to aid transparency and communication with patients

Moderator: Matt Eagles Matt Eagles Patient & Patient Advocate

Panellists: Axel Vanderperre Founder UTOPIA_BXL

Emma D’Arcy-Sutcliffe & Delilah D’Arcy Emma D’Arcy-Sutcliffe & Delilah D’Arcy Patient & Patient Advocate

Bayer Pooja Merchant Head of External Medical Affairs Bayer

11:25 - 11:35
How a patient-inspired app is using AR, AI and game mechanics to deliver health information to children

In 2011, Dom Raban’s 13-year-old daughter, Issy, was diagnosed with a rare form of bone cancer. See how Issy’s year-long journey – involving 18 rounds of chemotherapy, surgery and Proton Therapy in the US – inspired a new mobile application:

  • The challenges of the complex patient journey, especially in children, and finding solutions to the information needs
  • How Issy’s experience led to an app using a variety of new technologies to deliver health information directly to children
  • How patients can lead the development process to improve quality, relevance and advocacy

Xploro Dom Raban Founder Xploro

11:35 - 11:45
The power of digitally-enhanced communication in the hands of the patient

See how Emma’s Parkinson’s diagnosis, at the age of 29, has led to a new support platform for thousands of patients. Making it her mission to raise awareness about the condition and continue her life as planned, Emma campaigned on social media, published her own book, featured in a BBC documentary and video-blogged her life for a whole year.

  • Witness how Emma’s experience has led to the creation of Threesixfives, a website where people with long term health conditions can learn and find support
  • Understand patient literacy and the potential reach of good storytelling
  • How Parkinson’s UK is using technology to enhance lives – and the opportunity for pharma

Parkinsons UK Emma Lawton Devices Apps & Gadgets Strategist Parkinsons UK

11:45 - 12:05
Followed by a Fire side chat

Speaker Simon Stones Patient Advocate

Parkinsons UK Emma Lawton Devices Apps & Gadgets Strategist Parkinsons UK

Xploro Dom Raban Founder Xploro

12:05 - 12:15
Roundtable Take-aways

Speaker Cecile Tardy-Srinivasan Patient Advocate

Speaker Matt Eagles Patient & Patient Advocate

12:15 - 13:15
WORKSHOP hosted by Accenture
‘Designing better patient experiences to deliver better health: ideation and prioritisation’
12:15 - 13:45
EXHIBITION & NETWORKING LUNCH
Section 3: Structure for Patient Centricity
13:45 - 14:20
Panel: Involve the patient voice while staying within industry rules
  • Learn to engage and speak with patients
  • Earn the trust of patients and retain the trust of colleagues and regulators
  • Balance internal investment and external partnerships to harness patient insights
  • How to negotiate tensions between industry rules and patient advocates and groups

Moderator: Novartis Mark Grossien Head of Communications & Patient Advocacy Germany & Pharma Region Europe Novartis

NCRI Richard Stephens Consumer Lead and Chair of Consumer Forum NCRI

Speaker Carol Munt Patient Advocate

Bayer Pooja Merchant Head of External Medical Affairs Bayer

14:20 - 14:45
Discover the organisational blueprint for scaling patient centricity
  • Smart ways to ensure a grassroots movement into a new way of working
  • Build organisational confidence to embed patient engagement into everything you do
  • Case Study: The story of Janssen’s hub for scaling patient engagement

Janssen Daniel De Schryver Patient Engagement and Advocacy Lead, Europe, Middle East and Africa Janssen

National Voices Jeremy Taylor Chief Executive National Voices

14:45 - 15:05
Create services that resonate through co-creation and ethnography
  • Dig beneath the surface to truly understand the patient
  • Shift from patternistic design to co-creation led by patients
  • Move from a business model framework to a patient experience framework of service design

Pfizer Geoff Rollason Patient Experience and Service Director - Oncology UK Pfizer

15:05 - 15:25
EXHIBITION & NETWORKING COFFEE BREAK
Section 4: Patient Experience for Patient Centricity
15:25 - 16:05
Panel: Candid patient perspectives on the good, the bad and the ugly of service design
  • How do patients really experience pharma’s services?
  • Can pharma better build trust with patient communities to develop productive collaborations?
  • Innovation is supposedly the ‘silver bullet’, but where do patients really see the opportunity for change?

Moderator: eyeforpharma Paul Simms Chairman eyeforpharma

Panellists: Teresa Ferrairo Teresa Ferreiro Patient Advocate

Trishna Bharadia Trishna Bharadia Patient Advocate eyeforpharma Award Winner

Carole Sian Scrafton MBS, BA (hons) Carole Sian Scrafton MBS, BA (hons) Patient Advocate

AISC Paola Antonini, MD, PhD AISC Scientific Committee Member, Head of Clinical Research & Training Initiatives AISC

16:05 - 16:25
Will we succeed with Patient Centricity? Look in the mirror!
  • How to see the mountain: another Golden Rule
  • Why an internal focus can generate external results
  • Culture eats strategy for breakfast

Servier Lode Dewulf Chief Patient Officer Servier

16:25
CONFERENCE ENDS

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