The agenda that will shape pharma's future

Full Agenda

Section 1 - Keynote
09:00 – 09:30
Opening Patient Address: Life with chronic illness: if you haven’t got it, you don’t get it
  • Why patients should take an interest in disease - because their disease will certainly take an interest in them
  • Where is the value? How to solve the pharma-patient understanding gap
09:00 – 09:30
Collaborate or become irrelevant
  • The future of patient engagement is far from certain - how to avoid complacency creeping in
  • Payer priorities have created new imperatives for patient value: make sure you seize them
  • Understand why pharma and patient groups need each other more than they realise

Lode Dewulf Chief Patient Officer Servier

09:00 – 09:30
It’s our responsibility: activate communities to resist the spread of anti-vaccine misinformation
  • A fight worth winning: how pharma can proactively create and boost communities to counter vaccine hesitancy
  • Case Study: A dive into GSK’s ongoing virtual advisory board to refine vaccine education strategy, while maintaining compliant
  • Translate your strategy into Plain Language Summaries (PLS) for maximum take-up

Philibert Goulet Head of Patient Office GSK Vaccines

09:00 – 09:30
Case Study: How Merck is breaking silos with a lifecycle-wide strategy for patient insights
  • Don’t reinvent the wheel: learn from your colleagues for more effective understanding
  • How to socialise patient learning and ensure R&D learns from the mistakes made in commercial
  • As patient engagement ramps up across all functions, devise a coordination plan that works

Vanessa Pott Director, Patient Advocacy & Strategic Partnerships Merck

Patient co-presenter to be announced

09:00 – 09:30
Quantify patient experience to bridge the gap between scientists and patients
  • Case Study: IMI Hypo-Resolve’s work to quantify the experience of living with hypoglycemia
  • Bridge the gap: how to facilitate exchange between scientists and patients
  • Collaborate to stay relevant to patient needs and create project champions

Matthias Müllenborn Senior Director R&D, Global Chief Medical Office Novo Nordisk

09:00 – 09:30
PANEL: A future model of patient group-pharma collaboration that works for all
  • How we must act collectively to design a patient group-pharma model that is capable of scale
  • What do patient groups want? Establish how pharma can assist and reduce the administrative burden of partnering
  • As we transition towards patient-data driven research, what is the scope for collaboration in patient engagement?

Multi-stakeholder panellists to be revealed

09:00 – 09:30
Design your organization to deliver on patient value
  • The new minimum standard: work with the patient, for the patient, across your lifecycle
  • Empower functions to take their own initiative, whilst avoiding duplication of effort
  • Your success depends on long-term relationships with patients. Start today!

Daniel De Schryver Patient Engagement & Advocacy Lead, EMEA Janssen

09:00 – 09:30
Interactive Roundtable Discussion Groups

At this year’s event we’re hosting more interactive sessions than ever before. Engage with your peers and patients in these patient-led roundtables, moderated by industry facilitators.

Opening Patient Address from the eyeforpharma Patient Champion Award Winner, Teresa Ferreiro.

Topics to be covered include:

  • Building trust
  • Fair market value
  • Health literacy
  • Humanising healthcare
  • Disease awareness
Facilitators include:

Ruth
Wilson

Teresa
Ferreiro

Richard
Stephens

Carole
Scrafton

Craig
Mills

Cecile
Tardy

Elly
Aylwin-Foster

Alan
Thomas

Join the industry’s innovators, register now to save €300
Section 2 - Digital Innovation
09:00 – 09:30
Co-design everything you do
  • Why applying Human-Centered Design (HCD) and direct input from patients is essential for creating effective digital services and digital therapeutics (DTx)
  • How organizations can establish scalable capabilities to involve patients in solution design
  • Case Study: How Bayer G4A Digital Health approaches patient involvement - from HCD to patient members in startup juries

Oliver Gassner Head G4A Digital Health Intelligence EMEA Bayer

09:00 – 09:30
Engage caregivers and social support networks to empower patients
  • Empathy starts with understanding
  • Disease education must go beyond the patient to change public opinion
  • How Takeda is working with patient groups to reduce stigma through a digital tool

Audrey Liechti Senior Communications Manager Takeda

09:00 – 09:30
Iterative design: how to rethink digital services with patients for continuous improvement
  • Adherence from the other side: patient insights on the biggest barriers to complying with treatment
  • Case Study: The design journey from patient need to a chatbot’s services
  • Learn from implementation: Novo Nordisk's iterative strategy to re-design enrollment strategy through patient insights

Herlof Nis Thomsen Global Product Lead, Patient Experience Programme Novo Nordisk

Join the industry’s innovators, register now to save €300
Section 3 - Scaling Patient Engagement
09:00 – 09:30
PsoHappy: Tactics to Massively Scale Patient Engagement
  • Why we need to rethink how we measure quality of life when we engage patients
  • How LEO Innovation Lab engaged over 200,000 psoriasis patients across 184 countries
  • Impact update: supporting IFPA and national patient associations to ensure insights can be utilized in supporting advocacy efforts

Catalina Cernica Head of Innovation UK LEO Innovation Lab

09:00 – 09:30
Put the power into patient empowerment - and make real inroads
  • Avoid tokenism and virtue signaling: why patient engagement only works if it’s genuine
  • Best practice guidelines for creating a patient expert panel: selection, training and engagement
  • How the BMJ managed to incentivise patient-centric research within the scientific community

Paul Wicks VP Innovation PatientsLikeMe

09:00 – 09:30
Design patient support with patient relevant insights
  • Engage to avoid assumptions and start with what patients’ want
  • How the Global Patient’s Coalition initiated the first global patient survey: analysis of 2000 insights
  • Get your priorities straight: how to focus on the biggest unmet needs and help fill the gaps

Isabelle Bocher-Pianka Chief Patient Officer Ipsen

09:00 – 09:30
Make patient engagement habitual and systematic
  • 7 Key Principles for critiquing your patient engagement strategies
  • The essential tools for contracting with patients - and returning fair market value
  • Scale best-practice with templates tailored to needs across the spectrum of R&D and Commercial

Nicholas Brooke Executive Director Patient Focused Medicines Development (PFMD)

09:00 – 09:30
Patients and patient groups as willing partners in advancing gene therapy
  • Understand patient doubts and hopes for data collection to support genetic research
  • Case Study: How the Cure Parkinson's Trust created a community of patient participants willing to contribute to science
  • 3 key opportunities for industry can partner to accelerate gene and cell therapies

Helen Matthews Deputy CEO The Cure Parkinson's Trust

Co-presenters to be announced

Join the industry’s innovators, register now to save €300
Section 4 - Where Commercial = Co-created with Patients
09:00 – 09:30
Health Literacy: Pharma’s biggest opportunity to help the patient
  • How patient journey research revealed a gap between HCP and patient perspectives on education
  • Why patients arent getting the right educational tools
  • Transform insights into impact by partnering with patients to redesign disease education

Noemie Dell Global Patient Services Biogen

09:00 – 09:30
Compliance can be a partner in patient engagement
  • Missed opportunity: is your compliance policy is holding back patient impact?
  • Scale your patient group partnerships by reducing the burden for grassroots organizations
  • Case Study: How Novartis cut admin burden for patient groups while maintaining compliance priorities

Manuela Bruegger Compliance Officer Novartis

09:00 – 09:30
Why patients have a direct role in the future of your patient function
  • Don't assume you know best: why LEO Pharma are deliberately stepping back to let patients lead
  • How to discover change agents in your patient community and empower them to succeed
  • Case Study: working patients to address unmet needs in Psoriasis and Cancer Associated Thrombosis

Senior executive from LEO Pharma to be announced

09:00 – 09:30
Don’t assume the answer is digital: ask patient groups what they need
  • Problems should drive your support strategy, not solutions
  • Case Study: How Sanofi engaged across therapeutic areas to understand unmet patient needs
  • 4 critical areas where pharma can support patient groups beyond digital

Harry Thurston-Smith UK Public Affairs & Advocacy Lead Sanofi

09:00 – 09:30
Patients biggest unmet need is caregiver support at home
  • Case Study: Partnering with the European Parkinson’s Disease Association enabled more thorough understanding of patient needs
  • Critical insights from an anthropological study engaging [Confirm #] patients and their caregivers
  • How insights are rethinking healthcare services to support patients through helping caregivers at home

Catherine Billoet Medical Affairs Director Air Liquide

Russell Patten Secretary General European Parkinson's Disease Association

Join the industry’s innovators, register now to save €300
Section 5 - R&D as the birthplace of real patient solutions
09:00 – 09:30
Unlock patient-centric creation using Open Innovation
  • How Open Innovation can transform R&D by giving patients ‘skin in the game’
  • Why change starts with an honest assessment of capacity gaps between patients & pharma
  • Case Study: How LEO Pharma is collaborating with EUPATI to empower newly expert patients

Niclas Nilsson Head of Open Innovation LEO Pharma

09:00 – 09:30
PANEL: The latest insights from The IMI-PARADIGM’s evaluation of Patient Engagement
  • Define a patient engagement framework that measures value for all stakeholders
  • Lessons learned from implementing the PARADIGM tool kit with Eli Lilly
  • Critical differences in applying the toolkit across therapeutic areas

Moderator: Lars Joensson Vice President, Head of Patient Engagement Grünenthal

Panellists:

C.J Gunn Faculty of Science, Science Communication Vrije Universiteit Amsterdam

Robert Kroes Project Manager Medical Affairs Dermatology & Pain Lilly

Patient panellist to be announced

09:00 – 09:30
Pharma must collectively step up to enable patient data return
  • Case Study: How Janssen embraced patient data return
  • Address clinical investigator, patient and caregiver concerns to create a convincing strategy for data return
  • Scaling Up To Impact Industry: The Patient Data Access Initiative

Senior executive speaker from Janssen to be announced next month

09:00 – 09:30
Beat internal roadblocks to implement patient insights in R&D
  • Process Case Study: How Servier has adapted clinical trials to a pediatric population, incorporating both children and carers’ views.
  • Overcome internal challenges to rethink patient experience
  • Set aside your assumptions and engage with what patients really need

Marta Garcia International Centre for Therapeutic Research Servier

09:00 – 09:30
Continuously collaborate with patients to redesign R&D
  • Short-term thinking undermines pharma’s ability to impact R&D through patient engagement
  • Create long-term partnerships to discover unmet needs
  • Case Study: How Novo Nordisk’s Disease Expert Engagement Panel (DEEP) is co-designing R&D

Charline Coquerel Couniot Head of Patient Engagement and Advocacy Novo Nordisk

DEEP participant co-presenter to be announced

Keynotes

Section 1 - Keynote
09:00 – 09:30
Opening Patient Address: Life with chronic illness: if you haven’t got it, you don’t get it
  • Why patients should take an interest in disease - because their disease will certainly take an interest in them
  • Where is the value? How to solve the pharma-patient understanding gap
09:00 – 09:30
Collaborate or become irrelevant
  • The future of patient engagement is far from certain - how to avoid complacency creeping in
  • Payer priorities have created new imperatives for patient value: make sure you seize them
  • Understand why pharma and patient groups need each other more than they realise

Lode Dewulf Chief Patient Officer Servier

09:00 – 09:30
It’s our responsibility: activate communities to resist the spread of anti-vaccine misinformation
  • A fight worth winning: how pharma can proactively create and boost communities to counter vaccine hesitancy
  • Case Study: A dive into GSK’s ongoing virtual advisory board to refine vaccine education strategy, while maintaining compliant
  • Translate your strategy into Plain Language Summaries (PLS) for maximum take-up

Philibert Goulet Head of Patient Office GSK Vaccines

09:00 – 09:30
Case Study: How Merck is breaking silos with a lifecycle-wide strategy for patient insights
  • Don’t reinvent the wheel: learn from your colleagues for more effective understanding
  • How to socialise patient learning and ensure R&D learns from the mistakes made in commercial
  • As patient engagement ramps up across all functions, devise a coordination plan that works

Vanessa Pott Director, Patient Advocacy & Strategic Partnerships Merck

Patient co-presenter to be announced

09:00 – 09:30
Quantify patient experience to bridge the gap between scientists and patients
  • Case Study: IMI Hypo-Resolve’s work to quantify the experience of living with hypoglycemia
  • Bridge the gap: how to facilitate exchange between scientists and patients
  • Collaborate to stay relevant to patient needs and create project champions

Matthias Müllenborn Senior Director R&D, Global Chief Medical Office Novo Nordisk

09:00 – 09:30
PANEL: A future model of patient group-pharma collaboration that works for all
  • How we must act collectively to design a patient group-pharma model that is capable of scale
  • What do patient groups want? Establish how pharma can assist and reduce the administrative burden of partnering
  • As we transition towards patient-data driven research, what is the scope for collaboration in patient engagement?

Multi-stakeholder panellists to be revealed

09:00 – 09:30
Design your organization to deliver on patient value
  • The new minimum standard: work with the patient, for the patient, across your lifecycle
  • Empower functions to take their own initiative, whilst avoiding duplication of effort
  • Your success depends on long-term relationships with patients. Start today!

Daniel De Schryver Patient Engagement & Advocacy Lead, EMEA Janssen

09:00 – 09:30
Interactive Roundtable Discussion Groups

At this year’s event we’re hosting more interactive sessions than ever before. Engage with your peers and patients in these patient-led roundtables, moderated by industry facilitators.

Opening Patient Address from the eyeforpharma Patient Champion Award Winner, Teresa Ferreiro.

Topics to be covered include:

  • Building trust
  • Fair market value
  • Health literacy
  • Humanising healthcare
  • Disease awareness
Facilitators include:

Ruth
Wilson

Teresa
Ferreiro

Richard
Stephens

Carole
Scrafton

Craig
Mills

Cecile
Tardy

Elly
Aylwin-Foster

Alan
Thomas

Digital

Section 2 - Digital Innovation
09:00 – 09:30
Co-design everything you do
  • Why applying Human-Centered Design (HCD) and direct input from patients is essential for creating effective digital services and digital therapeutics (DTx)
  • How organizations can establish scalable capabilities to involve patients in solution design
  • Case Study: How Bayer G4A Digital Health approaches patient involvement - from HCD to patient members in startup juries

Oliver Gassner Head G4A Digital Health Intelligence EMEA Bayer

09:00 – 09:30
Engage caregivers and social support networks to empower patients
  • Empathy starts with understanding
  • Disease education must go beyond the patient to change public opinion
  • How Takeda is working with patient groups to reduce stigma through a digital tool

Audrey Liechti Senior Communications Manager Takeda

09:00 – 09:30
Iterative design: how to rethink digital services with patients for continuous improvement
  • Adherence from the other side: patient insights on the biggest barriers to complying with treatment
  • Case Study: The design journey from patient need to a chatbot’s services
  • Learn from implementation: Novo Nordisk's iterative strategy to re-design enrollment strategy through patient insights

Herlof Nis Thomsen Global Product Lead, Patient Experience Programme Novo Nordisk

Scaling Engagement

Section 3 - Scaling Patient Engagement
09:00 – 09:30
PsoHappy: Tactics to Massively Scale Patient Engagement
  • Why we need to rethink how we measure quality of life when we engage patients
  • How LEO Innovation Lab engaged over 200,000 psoriasis patients across 184 countries
  • Impact update: supporting IFPA and national patient associations to ensure insights can be utilized in supporting advocacy efforts

Catalina Cernica Head of Innovation UK LEO Innovation Lab

09:00 – 09:30
Put the power into patient empowerment - and make real inroads
  • Avoid tokenism and virtue signaling: why patient engagement only works if it’s genuine
  • Best practice guidelines for creating a patient expert panel: selection, training and engagement
  • How the BMJ managed to incentivise patient-centric research within the scientific community

Paul Wicks VP Innovation PatientsLikeMe

09:00 – 09:30
Design patient support with patient relevant insights
  • Engage to avoid assumptions and start with what patients’ want
  • How the Global Patient’s Coalition initiated the first global patient survey: analysis of 2000 insights
  • Get your priorities straight: how to focus on the biggest unmet needs and help fill the gaps

Isabelle Bocher-Pianka Chief Patient Officer Ipsen

09:00 – 09:30
Make patient engagement habitual and systematic
  • 7 Key Principles for critiquing your patient engagement strategies
  • The essential tools for contracting with patients - and returning fair market value
  • Scale best-practice with templates tailored to needs across the spectrum of R&D and Commercial

Nicholas Brooke Executive Director Patient Focused Medicines Development (PFMD)

09:00 – 09:30
Patients and patient groups as willing partners in advancing gene therapy
  • Understand patient doubts and hopes for data collection to support genetic research
  • Case Study: How the Cure Parkinson's Trust created a community of patient participants willing to contribute to science
  • 3 key opportunities for industry can partner to accelerate gene and cell therapies

Helen Matthews Deputy CEO The Cure Parkinson's Trust

Co-presenters to be announced

Commercial

Section 4 - Where Commercial = Co-created with Patients
09:00 – 09:30
Health Literacy: Pharma’s biggest opportunity to help the patient
  • How patient journey research revealed a gap between HCP and patient perspectives on education
  • Why patients arent getting the right educational tools
  • Transform insights into impact by partnering with patients to redesign disease education

Noemie Dell Global Patient Services Biogen

09:00 – 09:30
Compliance can be a partner in patient engagement
  • Missed opportunity: is your compliance policy is holding back patient impact?
  • Scale your patient group partnerships by reducing the burden for grassroots organizations
  • Case Study: How Novartis cut admin burden for patient groups while maintaining compliance priorities

Manuela Bruegger Compliance Officer Novartis

09:00 – 09:30
Why patients have a direct role in the future of your patient function
  • Don't assume you know best: why LEO Pharma are deliberately stepping back to let patients lead
  • How to discover change agents in your patient community and empower them to succeed
  • Case Study: working patients to address unmet needs in Psoriasis and Cancer Associated Thrombosis

Senior executive from LEO Pharma to be announced

09:00 – 09:30
Don’t assume the answer is digital: ask patient groups what they need
  • Problems should drive your support strategy, not solutions
  • Case Study: How Sanofi engaged across therapeutic areas to understand unmet patient needs
  • 4 critical areas where pharma can support patient groups beyond digital

Harry Thurston-Smith UK Public Affairs & Advocacy Lead Sanofi

09:00 – 09:30
Patients biggest unmet need is caregiver support at home
  • Case Study: Partnering with the European Parkinson’s Disease Association enabled more thorough understanding of patient needs
  • Critical insights from an anthropological study engaging [Confirm #] patients and their caregivers
  • How insights are rethinking healthcare services to support patients through helping caregivers at home

Catherine Billoet Medical Affairs Director Air Liquide

Russell Patten Secretary General European Parkinson's Disease Association

R&D

Section 5 - R&D as the birthplace of real patient solutions
09:00 – 09:30
Unlock patient-centric creation using Open Innovation
  • How Open Innovation can transform R&D by giving patients ‘skin in the game’
  • Why change starts with an honest assessment of capacity gaps between patients & pharma
  • Case Study: How LEO Pharma is collaborating with EUPATI to empower newly expert patients

Niclas Nilsson Head of Open Innovation LEO Pharma

09:00 – 09:30
PANEL: The latest insights from The IMI-PARADIGM’s evaluation of Patient Engagement
  • Define a patient engagement framework that measures value for all stakeholders
  • Lessons learned from implementing the PARADIGM tool kit with Eli Lilly
  • Critical differences in applying the toolkit across therapeutic areas

Moderator: Lars Joensson Vice President, Head of Patient Engagement Grünenthal

Panellists:

C.J Gunn Faculty of Science, Science Communication Vrije Universiteit Amsterdam

Robert Kroes Project Manager Medical Affairs Dermatology & Pain Lilly

Patient panellist to be announced

09:00 – 09:30
Pharma must collectively step up to enable patient data return
  • Case Study: How Janssen embraced patient data return
  • Address clinical investigator, patient and caregiver concerns to create a convincing strategy for data return
  • Scaling Up To Impact Industry: The Patient Data Access Initiative

Senior executive speaker from Janssen to be announced next month

09:00 – 09:30
Beat internal roadblocks to implement patient insights in R&D
  • Process Case Study: How Servier has adapted clinical trials to a pediatric population, incorporating both children and carers’ views.
  • Overcome internal challenges to rethink patient experience
  • Set aside your assumptions and engage with what patients really need

Marta Garcia International Centre for Therapeutic Research Servier

09:00 – 09:30
Continuously collaborate with patients to redesign R&D
  • Short-term thinking undermines pharma’s ability to impact R&D through patient engagement
  • Create long-term partnerships to discover unmet needs
  • Case Study: How Novo Nordisk’s Disease Expert Engagement Panel (DEEP) is co-designing R&D

Charline Coquerel Couniot Head of Patient Engagement and Advocacy Novo Nordisk

DEEP participant co-presenter to be announced

Don’t pay lip-service to patient centricity.
Make it happen.