The agenda that will shape pharma's future

Day 1 (15th Oct) - 8:45am-5:30pm
Day 2 (16th Oct) – 9:00am – 4:00pm

Full Agenda

Section 1 - Keynote
09:00 – 09:30
Opening Patient Address: Life with chronic illness: if you haven’t got it, you don’t get it
  • Why patients should take an interest in disease - because their disease will certainly take an interest in them
  • Where is the value? How to solve the pharma-patient understanding gap
09:00 – 09:30
Collaborate or become irrelevant
  • The future of patient engagement is far from certain - how to avoid complacency creeping in
  • Payer priorities have created new imperatives for patient value: make sure you seize them
  • Understand why pharma and patient groups need each other more than they realise

Lode Dewulf Chief Patient Officer Servier

09:00 – 09:30
It’s our responsibility: activate communities to resist the spread of anti-vaccine misinformation
  • A fight worth winning: how pharma can proactively create and boost communities to counter vaccine hesitancy
  • Case Study: A dive into GSK’s ongoing virtual advisory board to refine vaccine education strategy, while maintaining compliant
  • Translate your strategy into Plain Language Summaries (PLS) for maximum take-up

Philibert Goulet Head of Patient Office GSK Vaccines

09:00 – 09:30
CSL’s journey to maximizing impact of patient engagement across the lifecycle
  • Learn how CSL is breaking silos across R&D and commercial through establishment of an integrated lifecycle strategy 
  • Understand how CSL is encouraging and empowering employees to seek out patient insights across all stages of product development  
  • Case study: Discuss CSL’s online platform that provides all employees with the information, tools and resources to collaborate with patients and how patients have played a role in the validation of materials featured in the platform

Metani Rooms CMO Strategic Initiatives, Global Lead CSL Behring

09:00 – 09:30
Quantify patient experience to bridge the gap between scientists and patients
  • Case Study: IMI Hypo-Resolve’s work to quantify the experience of living with hypoglycemia
  • Bridge the gap: how to facilitate exchange between scientists and patients
  • Collaborate to stay relevant to patient needs and create project champions
09:00 – 09:30
PANEL: A future model of patient group-pharma collaboration that works for all
  • How we must act collectively to design a patient group-pharma model that is capable of scale
  • What do patient groups want? Establish how pharma can assist and reduce the administrative burden of partnering
  • As we transition towards patient-data driven research, what is the scope for collaboration in patient engagement?

Ian Banks Chair ECCO Patient Advisory Committee (ECCO PAC)

Simon Gillespie CEO British Heart Foundation

Helen Matthews Deputy CEO The Cure Parkinson's Trust

Lode Dewulf Chief Patient Officer Servier

09:00 – 09:30
Design your organization to deliver on patient value
  • The new minimum standard: work with the patient, for the patient, across your lifecycle
  • Empower functions to take their own initiative, whilst avoiding duplication of effort
  • Your success depends on long-term relationships with patients. Start today!

Daniel De Schryver Patient Engagement & Advocacy Lead, EMEA Janssen

09:00 – 09:30
Direct to Patient Research |More than just technology
  • The virtual and hybrid study landscapes
  • The impact on data quality and integration
  • areas of particular relevance for direct to patient research approaches
  • Working with best in class partners
  • The realities of a “Real-world” virtual study – a case study

Alastair MacDonald Senior Vice President and Head of Client Engagement Real World Research and Consumer Healthcare Syneos Health

09:00 – 09:30
Better Together: How pharma companies and patient organisations could collaborate differently to deliver better patient experiences
  • Learn findings of our latest survey of 4,000 patients from Europe and the US on the role of patient organisations in service design
  • Explore, through storytelling with The Health Collaboratory, how patient organisations can more effectively complement or augment patient service design
  • Discover practical opportunities for pharma companies to create more valuable services through better collaboration with patient organisations and healthcare systems

Speaker from Accenture will be announced shortly.

09:00 – 09:30
Interactive Roundtable Discussion Groups

At this year’s event we’re hosting more interactive sessions than ever before. Engage with your peers and patients in these patient-led roundtables, moderated by industry facilitators.

Opening Patient Address from the eyeforpharma Patient Champion Award Winner, Teresa Ferreiro.

Topics to be covered include:

  • Building trust
  • Fair market value
  • Health literacy
  • Humanising healthcare
  • Disease awareness
Facilitators include:

Ruth
Wilson

Teresa
Ferreiro

Richard
Stephens

Carole
Scrafton

Craig
Mills

Cecile
Tardy

Elly
Aylwin-Foster

Alan
Thomas

Ramona
Kanters

Ava
Easton

Siobhan
Southam

Join the industry’s innovators, register now to save €0
Section 2 - Digital Innovation
09:00 – 09:30
Co-design everything you do
  • Why applying Human-Centered Design (HCD) and direct input from patients is essential for creating effective digital services and digital therapeutics (DTx)
  • How organizations can establish scalable capabilities to involve patients in solution design
  • Case Study: How Bayer G4A Digital Health approaches patient involvement - from HCD to patient members in startup juries

Oliver Gassner Head G4A Digital Health Intelligence EMEA Bayer

09:00 – 09:30
Engage caregivers and social support networks to empower patients
  • Empathy starts with understanding
  • Disease education must go beyond the patient to change public opinion
  • How Takeda is working with patient groups to reduce stigma through a digital tool

Mandy Beynon Marketing Manager Takeda UK

09:00 – 09:30
Iterative design: how to rethink digital services with patients for continuous improvement
  • Adherence from the other side: patient insights on the biggest barriers to complying with treatment
  • Case Study: The design journey from patient need to a chatbot’s services
  • Learn from implementation: Novo Nordisk's iterative strategy to re-design enrollment strategy through patient insights

Herlof Nis Thomsen Global Product Lead, Patient Experience Programme Novo Nordisk

09:00 – 09:30
Evidence applied innovation. What's working in digital patient engagement?

Topics to be discussed

  • A perspective on innovation
  • what does the current landscape look like for digital patient engagement
  • Prescribing digital support - a success story
  • How can we apply an evidence based approach to solution design

John Procter VP Patient Engagement & Medical Affairs IQVIA Global CSMS

Andrew Graves Product & Strategy Director, Patient Support & Adherence IQVIA Global CSMS

Join the industry’s innovators, register now to save €0
Section 3 - Scaling Patient Engagement
09:00 – 09:30
PsoHappy: Tactics to Massively Scale Patient Engagement
  • Why we need to rethink how we measure quality of life when we engage patients
  • How LEO Innovation Lab engaged over 200,000 psoriasis patients across 184 countries
  • Impact update: supporting IFPA and national patient associations to ensure insights can be utilized in supporting advocacy efforts

Catalina Cernica Head of Innovation UK LEO Innovation Lab

09:00 – 09:30
Put the power into patient empowerment - and make real inroads
  • Avoid tokenism and virtue signaling: why patient engagement only works if it’s genuine
  • Best practice guidelines for creating a patient expert panel: selection, training and engagement
  • How the BMJ managed to incentivise patient-centric research within the scientific community

Paul Wicks VP Innovation PatientsLikeMe

09:00 – 09:30
Design patient support with patient relevant insights
  • Engage to avoid assumptions and start with what patients’ want
  • How the Global Patient’s Coalition initiated the first global patient survey: analysis of 2000 insights
  • Get your priorities straight: how to focus on the biggest unmet needs and help fill the gaps

Isabelle Bocher-Pianka Chief Patient Officer Ipsen

Rachel Giles Chair International Kidney Cancer Coalition (IKCC)

09:00 – 09:30
Make patient engagement habitual and systematic
  • 7 Key Principles for critiquing your patient engagement strategies
  • The essential tools for contracting with patients - and returning fair market value
  • Scale best-practice with templates tailored to needs across the spectrum of R&D and Commercial

Nicholas Brooke Executive Director Patient Focused Medicines Development (PFMD)

Anton (Tony) Hoos Executive Team Patient Focused Medicines Development (PFMD)

09:00 – 09:30
Patients and patient groups are willing partners in advancing genetic research
  • Understand patient doubts and hopes for data collection to support genetic research 
  • Case Study: How Cure Parkinson's created a community of patient participants willing to contribute to science 
  • 3 key areas where industry can partner to accelerate genetic research

Helen Matthews Deputy CEO The Cure Parkinson's Trust

Co-presenters to be announced

Join the industry’s innovators, register now to save €0
Section 4 - Where Commercial = Co-created with Patients
09:00 – 09:30
Effective Patient Groups Partnership as key for patient relevant solutions.
  • The European Patient Innovation Summit: How Novartis developed ongoing collaborations with 250+ patient orgs, across 13 countries
  • Why understanding and adoption are critical to achieve transformative impact to patient outcomes through digital technology
  • Key insights: Where Patient Group Leaders see the capacity gaps and opportunities for patient-led design in digital solutions

David Palacios Head Global Patient Advocacy Pharma Novartis Pharmaceuticals

Giuseppe de Carlo Director of Operations and Projects EFA European Federation of Allergy and Airways Diseases Patients' Associations

09:00 – 09:30
Compliance can be a partner in patient engagement
  • Missed opportunity: is your compliance policy is holding back patient impact?
  • Scale your patient group partnerships by reducing the burden for grassroots organizations
  • Case Study: How Novartis cut admin burden for patient groups while maintaining compliance priorities

Manuela Bruegger Compliance Officer Novartis

09:00 – 09:30
Why patients have a direct role in the future of your patient function
  • Don't assume you know best: why LEO Pharma are deliberately stepping back to let patients lead
  • How to discover change agents in your patient community and empower them to succeed
  • Case Study: working patients to address unmet needs in Psoriasis and Cancer Associated Thrombosis

Geraldine Murphy Vice President, Cluster Europe North, Australia & New Zealand LEO Pharma

09:00 – 09:30
Don’t assume the answer is digital: ask patient groups what they need
  • Problems should drive your support strategy, not solutions
  • Case Study: How Sanofi engaged across therapeutic areas to understand unmet patient needs
  • 4 critical areas where pharma can support patient groups beyond digital

Harry Thurston-Smith UK Public Affairs & Advocacy Lead Sanofi

09:00 – 09:30
Patients biggest unmet need is caregiver support at home
  • Case Study: Partnering with the European Parkinson’s Disease Association enabled more thorough understanding of patient needs
  • Critical insights from an anthropological study engaging patients and their caregivers
  • How insights are rethinking healthcare services to support patients through helping caregivers at home

Catherine Billoet Medical Affairs Director Air Liquide

Russell Patten Secretary General European Parkinson's Disease Association

09:00 – 09:30
Expand Patient Access Through Validated Advanced Decision Tools
  • Advanced Decision Tools significantly support patients with mental illness
  • Key insights: ReThink Mental Illness share patient priorities for decision tool design 
  • Scale your impact by aligning with policy priorities 

Alistair Monro Patient Engagement Engagement and Advocacy Manager, Immunology and Neuroscience Janssen

With co-presenter from ReThink Mental Illness

Join the industry’s innovators, register now to save €0
Section 5 - Clinical as the birthplace of real patient solutions
09:00 – 09:30
NICE Are Elevating The Patient Voice To Change Care Delivery
  • How NICE engages, and trains, patients to improve HTAs and health service design
  • Create a process to balance patient and clinical perspectives
  • Voice of the patient: collaborate with patients to change care

Mark Rasburn Senior Public Involvement Adviser, Public Involvement Programme National Institute for Health and Care Excellence

David Chandler NICE Lay Member NICE

09:00 – 09:30
IMI Paradigm - Patient Engagement Metrics That Deliver Value to All Stakeholders
  • Determine the impact of Patient Engagement across Medicines R&D
  • Convince Stakeholders with Patient Engagement metrics that capture relevant value
  • Case Study: How Grunenthal are deploying PARADIGM metrics to evaluate ROI

Lars Joensson Vice President, Head of Patient Engagement Grünenthal

Teresa Finlay Postdoctoral Researcher IRIHS Research Group

09:00 – 09:30
Pharma must collectively step up to enable patient data return
  • Case Study: How Janssen embraced patient data return
  • Address clinical investigator, patient and caregiver concerns to create a convincing strategy for data return
  • Scaling Up To Impact Industry: The Patient Data Access Initiative

Caroline Feys Clinical Innovation Project Leader Janssen

09:00 – 09:30
Community-driven innovation in healthcare. Collaborate or ignore?
  • Healthcare stakeholders must shift from a 'we know best' mindset to 'boldly exploring the best opportunities with patients for best outcomes'
  • #WeAreNotWaiting: How Inertia pushed patients to take initiative and develop the Artificial Pancreas
  • Health Hack Labs mission to improve solve Patients’ day to day lives and solve everyday challenges through patient-powered open source innovation.

speakers announced soon

09:00 – 09:30
Beat internal roadblocks to implement patient insights in R&D
  • Process Case Study: How Servier has adapted clinical trials to a pediatric population, incorporating both children and carers’ views.
  • Overcome internal challenges to rethink patient experience
  • Set aside your assumptions and engage with what patients really need

Marta Garcia International Centre for Therapeutic Research Servier

09:00 – 09:30
Clinical agility is the key to accelerating innovation for the patient
  • How the external environment & technical advances have increased the importance of patient centricity
  • What pharma can learn from start-up and innovation culture to drive efficiency and provide value to patients
  • Case study: How clinical trial patient recruitment can cut timelines and contribute to better patient insights

Anna Cederberg Co-Founder Melio

09:00 – 09:30
Continuously collaborate with patients to redesign R&D
  • Short-term thinking undermines pharma’s ability to impact R&D through patient engagement
  • Create long-term partnerships to discover unmet needs
  • Case Study: How Novo Nordisk’s Disease Expert Engagement Panel (DEEP) is co-designing R&D

Charline Coquerel Couniot Head of Patient Engagement and Advocacy Novo Nordisk

09:00 – 09:30
Getting it right first time: Engaging patients earlier in the clinical development process
  • Hear the patient's perspective on how patients helped a global pharma company to improve the recruitment potential of a clinical trial.
  • Understand why earlier involvement can help companies to balance the ask of research with the burden of disease.
  • Learn the value of a independent intermediary in patient engagement activities

Gareth Powell Patient Engagement Project Lead The National Institute for Health Research (NIHR) Clinical Research Network

Sammy Ainsworth Youth and Family Participation Officer Clinical Research Facility, Alder Hey Children’s Hospital in Liverpool at the Clinical Research Facility

09:00 – 09:30
Scalable PRI Frameworks Will Turn Health Policy Decision Making Upside Down
  • Patient Reported Impact (PRI) indicators set a new standard for measuring value to the patient 
  • Why PRIs credibly capture the patient voice for value discussions with decision makers
  • How the GRIDD PRI framework is scaling to 150+ patient groups and could be adopted across therapeutic areas 

Keynotes

Section 1 - Keynote
09:00 – 09:30
Opening Patient Address: Life with chronic illness: if you haven’t got it, you don’t get it
  • Why patients should take an interest in disease - because their disease will certainly take an interest in them
  • Where is the value? How to solve the pharma-patient understanding gap
09:00 – 09:30
Collaborate or become irrelevant
  • The future of patient engagement is far from certain - how to avoid complacency creeping in
  • Payer priorities have created new imperatives for patient value: make sure you seize them
  • Understand why pharma and patient groups need each other more than they realise

Lode Dewulf Chief Patient Officer Servier

09:00 – 09:30
It’s our responsibility: activate communities to resist the spread of anti-vaccine misinformation
  • A fight worth winning: how pharma can proactively create and boost communities to counter vaccine hesitancy
  • Case Study: A dive into GSK’s ongoing virtual advisory board to refine vaccine education strategy, while maintaining compliant
  • Translate your strategy into Plain Language Summaries (PLS) for maximum take-up

Philibert Goulet Head of Patient Office GSK Vaccines

09:00 – 09:30
CSL’s journey to maximizing impact of patient engagement across the lifecycle
  • Learn how CSL is breaking silos across R&D and commercial through establishment of an integrated lifecycle strategy 
  • Understand how CSL is encouraging and empowering employees to seek out patient insights across all stages of product development  
  • Case study: Discuss CSL’s online platform that provides all employees with the information, tools and resources to collaborate with patients and how patients have played a role in the validation of materials featured in the platform

Metani Rooms CMO Strategic Initiatives, Global Lead CSL Behring

09:00 – 09:30
Quantify patient experience to bridge the gap between scientists and patients
  • Case Study: IMI Hypo-Resolve’s work to quantify the experience of living with hypoglycemia
  • Bridge the gap: how to facilitate exchange between scientists and patients
  • Collaborate to stay relevant to patient needs and create project champions
09:00 – 09:30
PANEL: A future model of patient group-pharma collaboration that works for all
  • How we must act collectively to design a patient group-pharma model that is capable of scale
  • What do patient groups want? Establish how pharma can assist and reduce the administrative burden of partnering
  • As we transition towards patient-data driven research, what is the scope for collaboration in patient engagement?

Ian Banks Chair ECCO Patient Advisory Committee (ECCO PAC)

Simon Gillespie CEO British Heart Foundation

Helen Matthews Deputy CEO The Cure Parkinson's Trust

Lode Dewulf Chief Patient Officer Servier

09:00 – 09:30
Design your organization to deliver on patient value
  • The new minimum standard: work with the patient, for the patient, across your lifecycle
  • Empower functions to take their own initiative, whilst avoiding duplication of effort
  • Your success depends on long-term relationships with patients. Start today!

Daniel De Schryver Patient Engagement & Advocacy Lead, EMEA Janssen

09:00 – 09:30
Direct to Patient Research |More than just technology
  • The virtual and hybrid study landscapes
  • The impact on data quality and integration
  • areas of particular relevance for direct to patient research approaches
  • Working with best in class partners
  • The realities of a “Real-world” virtual study – a case study

Alastair MacDonald Senior Vice President and Head of Client Engagement Real World Research and Consumer Healthcare Syneos Health

09:00 – 09:30
Better Together: How pharma companies and patient organisations could collaborate differently to deliver better patient experiences
  • Learn findings of our latest survey of 4,000 patients from Europe and the US on the role of patient organisations in service design
  • Explore, through storytelling with The Health Collaboratory, how patient organisations can more effectively complement or augment patient service design
  • Discover practical opportunities for pharma companies to create more valuable services through better collaboration with patient organisations and healthcare systems

Speaker from Accenture will be announced shortly.

09:00 – 09:30
Interactive Roundtable Discussion Groups

At this year’s event we’re hosting more interactive sessions than ever before. Engage with your peers and patients in these patient-led roundtables, moderated by industry facilitators.

Opening Patient Address from the eyeforpharma Patient Champion Award Winner, Teresa Ferreiro.

Topics to be covered include:

  • Building trust
  • Fair market value
  • Health literacy
  • Humanising healthcare
  • Disease awareness
Facilitators include:

Ruth
Wilson

Teresa
Ferreiro

Richard
Stephens

Carole
Scrafton

Craig
Mills

Cecile
Tardy

Elly
Aylwin-Foster

Alan
Thomas

Ramona
Kanters

Ava
Easton

Siobhan
Southam

Digital

Section 2 - Digital Innovation
09:00 – 09:30
Co-design everything you do
  • Why applying Human-Centered Design (HCD) and direct input from patients is essential for creating effective digital services and digital therapeutics (DTx)
  • How organizations can establish scalable capabilities to involve patients in solution design
  • Case Study: How Bayer G4A Digital Health approaches patient involvement - from HCD to patient members in startup juries

Oliver Gassner Head G4A Digital Health Intelligence EMEA Bayer

09:00 – 09:30
Engage caregivers and social support networks to empower patients
  • Empathy starts with understanding
  • Disease education must go beyond the patient to change public opinion
  • How Takeda is working with patient groups to reduce stigma through a digital tool

Mandy Beynon Marketing Manager Takeda UK

09:00 – 09:30
Iterative design: how to rethink digital services with patients for continuous improvement
  • Adherence from the other side: patient insights on the biggest barriers to complying with treatment
  • Case Study: The design journey from patient need to a chatbot’s services
  • Learn from implementation: Novo Nordisk's iterative strategy to re-design enrollment strategy through patient insights

Herlof Nis Thomsen Global Product Lead, Patient Experience Programme Novo Nordisk

09:00 – 09:30
Evidence applied innovation. What's working in digital patient engagement?

Topics to be discussed

  • A perspective on innovation
  • what does the current landscape look like for digital patient engagement
  • Prescribing digital support - a success story
  • How can we apply an evidence based approach to solution design

John Procter VP Patient Engagement & Medical Affairs IQVIA Global CSMS

Andrew Graves Product & Strategy Director, Patient Support & Adherence IQVIA Global CSMS

Scaling Engagement

Section 3 - Scaling Patient Engagement
09:00 – 09:30
PsoHappy: Tactics to Massively Scale Patient Engagement
  • Why we need to rethink how we measure quality of life when we engage patients
  • How LEO Innovation Lab engaged over 200,000 psoriasis patients across 184 countries
  • Impact update: supporting IFPA and national patient associations to ensure insights can be utilized in supporting advocacy efforts

Catalina Cernica Head of Innovation UK LEO Innovation Lab

09:00 – 09:30
Put the power into patient empowerment - and make real inroads
  • Avoid tokenism and virtue signaling: why patient engagement only works if it’s genuine
  • Best practice guidelines for creating a patient expert panel: selection, training and engagement
  • How the BMJ managed to incentivise patient-centric research within the scientific community

Paul Wicks VP Innovation PatientsLikeMe

09:00 – 09:30
Design patient support with patient relevant insights
  • Engage to avoid assumptions and start with what patients’ want
  • How the Global Patient’s Coalition initiated the first global patient survey: analysis of 2000 insights
  • Get your priorities straight: how to focus on the biggest unmet needs and help fill the gaps

Isabelle Bocher-Pianka Chief Patient Officer Ipsen

Rachel Giles Chair International Kidney Cancer Coalition (IKCC)

09:00 – 09:30
Make patient engagement habitual and systematic
  • 7 Key Principles for critiquing your patient engagement strategies
  • The essential tools for contracting with patients - and returning fair market value
  • Scale best-practice with templates tailored to needs across the spectrum of R&D and Commercial

Nicholas Brooke Executive Director Patient Focused Medicines Development (PFMD)

Anton (Tony) Hoos Executive Team Patient Focused Medicines Development (PFMD)

09:00 – 09:30
Patients and patient groups are willing partners in advancing genetic research
  • Understand patient doubts and hopes for data collection to support genetic research 
  • Case Study: How Cure Parkinson's created a community of patient participants willing to contribute to science 
  • 3 key areas where industry can partner to accelerate genetic research

Helen Matthews Deputy CEO The Cure Parkinson's Trust

Co-presenters to be announced

Commercial

Section 4 - Where Commercial = Co-created with Patients
09:00 – 09:30
Effective Patient Groups Partnership as key for patient relevant solutions.
  • The European Patient Innovation Summit: How Novartis developed ongoing collaborations with 250+ patient orgs, across 13 countries
  • Why understanding and adoption are critical to achieve transformative impact to patient outcomes through digital technology
  • Key insights: Where Patient Group Leaders see the capacity gaps and opportunities for patient-led design in digital solutions

David Palacios Head Global Patient Advocacy Pharma Novartis Pharmaceuticals

Giuseppe de Carlo Director of Operations and Projects EFA European Federation of Allergy and Airways Diseases Patients' Associations

09:00 – 09:30
Compliance can be a partner in patient engagement
  • Missed opportunity: is your compliance policy is holding back patient impact?
  • Scale your patient group partnerships by reducing the burden for grassroots organizations
  • Case Study: How Novartis cut admin burden for patient groups while maintaining compliance priorities

Manuela Bruegger Compliance Officer Novartis

09:00 – 09:30
Why patients have a direct role in the future of your patient function
  • Don't assume you know best: why LEO Pharma are deliberately stepping back to let patients lead
  • How to discover change agents in your patient community and empower them to succeed
  • Case Study: working patients to address unmet needs in Psoriasis and Cancer Associated Thrombosis

Geraldine Murphy Vice President, Cluster Europe North, Australia & New Zealand LEO Pharma

09:00 – 09:30
Don’t assume the answer is digital: ask patient groups what they need
  • Problems should drive your support strategy, not solutions
  • Case Study: How Sanofi engaged across therapeutic areas to understand unmet patient needs
  • 4 critical areas where pharma can support patient groups beyond digital

Harry Thurston-Smith UK Public Affairs & Advocacy Lead Sanofi

09:00 – 09:30
Patients biggest unmet need is caregiver support at home
  • Case Study: Partnering with the European Parkinson’s Disease Association enabled more thorough understanding of patient needs
  • Critical insights from an anthropological study engaging patients and their caregivers
  • How insights are rethinking healthcare services to support patients through helping caregivers at home

Catherine Billoet Medical Affairs Director Air Liquide

Russell Patten Secretary General European Parkinson's Disease Association

09:00 – 09:30
Expand Patient Access Through Validated Advanced Decision Tools
  • Advanced Decision Tools significantly support patients with mental illness
  • Key insights: ReThink Mental Illness share patient priorities for decision tool design 
  • Scale your impact by aligning with policy priorities 

Alistair Monro Patient Engagement Engagement and Advocacy Manager, Immunology and Neuroscience Janssen

With co-presenter from ReThink Mental Illness

Clinical

Section 5 - Clinical as the birthplace of real patient solutions
09:00 – 09:30
NICE Are Elevating The Patient Voice To Change Care Delivery
  • How NICE engages, and trains, patients to improve HTAs and health service design
  • Create a process to balance patient and clinical perspectives
  • Voice of the patient: collaborate with patients to change care

Mark Rasburn Senior Public Involvement Adviser, Public Involvement Programme National Institute for Health and Care Excellence

David Chandler NICE Lay Member NICE

09:00 – 09:30
IMI Paradigm - Patient Engagement Metrics That Deliver Value to All Stakeholders
  • Determine the impact of Patient Engagement across Medicines R&D
  • Convince Stakeholders with Patient Engagement metrics that capture relevant value
  • Case Study: How Grunenthal are deploying PARADIGM metrics to evaluate ROI

Lars Joensson Vice President, Head of Patient Engagement Grünenthal

Teresa Finlay Postdoctoral Researcher IRIHS Research Group

09:00 – 09:30
Pharma must collectively step up to enable patient data return
  • Case Study: How Janssen embraced patient data return
  • Address clinical investigator, patient and caregiver concerns to create a convincing strategy for data return
  • Scaling Up To Impact Industry: The Patient Data Access Initiative

Caroline Feys Clinical Innovation Project Leader Janssen

09:00 – 09:30
Community-driven innovation in healthcare. Collaborate or ignore?
  • Healthcare stakeholders must shift from a 'we know best' mindset to 'boldly exploring the best opportunities with patients for best outcomes'
  • #WeAreNotWaiting: How Inertia pushed patients to take initiative and develop the Artificial Pancreas
  • Health Hack Labs mission to improve solve Patients’ day to day lives and solve everyday challenges through patient-powered open source innovation.

speakers announced soon

09:00 – 09:30
Beat internal roadblocks to implement patient insights in R&D
  • Process Case Study: How Servier has adapted clinical trials to a pediatric population, incorporating both children and carers’ views.
  • Overcome internal challenges to rethink patient experience
  • Set aside your assumptions and engage with what patients really need

Marta Garcia International Centre for Therapeutic Research Servier

09:00 – 09:30
Clinical agility is the key to accelerating innovation for the patient
  • How the external environment & technical advances have increased the importance of patient centricity
  • What pharma can learn from start-up and innovation culture to drive efficiency and provide value to patients
  • Case study: How clinical trial patient recruitment can cut timelines and contribute to better patient insights

Anna Cederberg Co-Founder Melio

09:00 – 09:30
Continuously collaborate with patients to redesign R&D
  • Short-term thinking undermines pharma’s ability to impact R&D through patient engagement
  • Create long-term partnerships to discover unmet needs
  • Case Study: How Novo Nordisk’s Disease Expert Engagement Panel (DEEP) is co-designing R&D

Charline Coquerel Couniot Head of Patient Engagement and Advocacy Novo Nordisk

09:00 – 09:30
Getting it right first time: Engaging patients earlier in the clinical development process
  • Hear the patient's perspective on how patients helped a global pharma company to improve the recruitment potential of a clinical trial.
  • Understand why earlier involvement can help companies to balance the ask of research with the burden of disease.
  • Learn the value of a independent intermediary in patient engagement activities

Gareth Powell Patient Engagement Project Lead The National Institute for Health Research (NIHR) Clinical Research Network

Sammy Ainsworth Youth and Family Participation Officer Clinical Research Facility, Alder Hey Children’s Hospital in Liverpool at the Clinical Research Facility

09:00 – 09:30
Scalable PRI Frameworks Will Turn Health Policy Decision Making Upside Down
  • Patient Reported Impact (PRI) indicators set a new standard for measuring value to the patient 
  • Why PRIs credibly capture the patient voice for value discussions with decision makers
  • How the GRIDD PRI framework is scaling to 150+ patient groups and could be adopted across therapeutic areas