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2017 Conference Agenda

Sorry you missed the 2017 event. Take a look at agenda to see the kind of topics you can expect to be covered at the 2018 summit

Day 1

7:00am
-
8:20am
Registration, Exhibition & Coffee
8:20am
-
8:30am
Chairman opening remarks
Opening Keynotes
The next step forward & Culture change
8:30am
-
9:00am
An Examination of patient engagement within pharma – the past, present and future
  • See the evolution of patient driven efforts and driving forces behind the shift
  • A demonstration of the use of different techniques for patient engagement through examples and a case study
  • Understand how to implement best practices and continue to find solutions to the challenges industry faces in working with patients

Sanofi Anjali Trasy Global Head, Patient Engagement Strategy Sanofi

9:00am
-
9:30am
Patient centricity: from buzzword to reality
  • Learn how the best companies are transitioning from talking about patient centricity into co-creating meaningful patient centric solutions
  • Determine the strategy and patient centric approaches that can bring increased value to patients across the product lifecycle
  • Understand where the pillars of patient centricity can be implemented to better support R&D and Commercial organizations

zs_associates Aaron Mitchell Managing Principal ZS

zs_associates Hensley Evans Principal ZS

9:30am
-
10:10am
PANEL: The real opportunity behind 'unmet needs'
  • Challenge what we really mean when discussing ‘unmet needs’ and how they should be captured and understood
  • Reverse your mentality – discover patient needs before creating a product or solution – and evaluate what targets to aim for
  • Assess the best methodology for understanding unmet needs both qualitatively AND quantitatively in order to prioritize your activities

Moderator: - Heidi Floyd Author, Patient, Advocate, Speaker

Medicines360 Jessica Grossman Chief Executive Officer Medicines360

Allergan Gavin Corcoran Chief Medical Officer Allergan

GSK Marilyn Metcalf Patient Engagement Lead GSK

10:10am
-
10:35am
Exhibition & Networking Coffee Break
10:35am
-
11:05am
Everything I need to know about patient centricity I learned in kindergarten
  • Learn key lessons to guide patient engagement that are intuitive and easy to apply with the right mindset
  • Explore methods and channels for effective patient dialogue, creative approaches and ways to keep privacy and security front and center for all initiatives
  • Discuss real-world examples of companies with successful patient engagement programs using these guidelines

health_perspectives_group Jean McCoy Senior Vice President, Partnerships Health Perspectives Group

11:05am
-
11:45am
PANEL: Where culture eats strategy: start by enabling a patient-first model to flourish organically
  • Make the shift by moving your firm to assess value from BOTH the eyes of the physician AND the patient
  • Avoid mandatory training by supporting your colleagues to invest and take pro-active steps to engage with patients in all cross-functional areas
  • Learn from successful transformations to determine whether culture change should be top-down or bottom-up
  • Drive real change by critically assessing patients’ experience and linking progress to your strategic goals

Moderator: North Highland Alison Broomall Life Sciences Lead North Highland

Astellas Doug Noland Patient Experience Executive Director Astellas

Sanofi Genzyme Gabriela Mondino Head of US Public Affairs and Advocacy Sanofi Genzyme

Janssen Christine MacCracken Director, Patient Support Janssen

Luck Fupus MarlaJan Wexler Patient, Lupus Advocate and Blogger Luck Fupus

North Highland Rich Denness Managing Director and Healthcare & Life Sciences Global Lead North Highland

11:45am
-
1:00pm
Exhibition & Networking Lunch Break

Purchase the Post-Conference Materials

Event Presentations • Event Audio • On Demand Subscription

Patient Pathways & Services
Improving patient experience & Accessibility
Patient-led Clinical
Rethink clinical trials & Approvals
1:00pm
-
1:05pm
Chairman opening remarks
Chairman opening remarks
1:05pm
-
1:30pm
The importance of patient advocacy and its role in cultivating a patient-centric environment
  • Discuss best practice in integrating patient perspective in all relevant areas of business and product lifecycle through collaboration with patient advocacy organizations
  • Learn how to provide meaningful benefit to patients by prioritizing patient health and outcomes over products
  • Incorporate patient-centric strategies to help patients find solutions, tools and information that help them focus on costs, quality and access

Amgen Tom Croce Vice President, Global Advocacy Relations Amgen

A systematic approach for incorporating the patient voice into trial design
  • Establish where embedding patient insights into development and protocol setup makes practical sense
  • Create policies, tools, best practice case studies and enabling support to facilitate patient input in trial design across the company
  • Drive culture change and metrics evaluation of patient input into trial design
  • Re-think the way R&D is evaluated – is the ‘first patient in’ timeline model incongruous with getting early patient insight?

Novartis Cathryn Clary Global Head, Patient Affairs and Policy, Chief Medical Office Novartis

1:30pm
-
2:00pm
Immersing your commercial team in the patient experience: a case study in applying patient insights
  • Appreciate why it is both an ethical imperative as well as a smart business decision to develop clinical trial designs that meet the needs and address the concerns of diverse populations
  • Learn methodologies for including diverse populations early in the clinical development process to obtain their valuable input and increase the probability of successful clinical trials

Mapi Kelly Franchetti Vice President, Global Patients Insights and Engagement, Patient-Centered Sciences Mapi

Mapi Valerie Powell Senior Director Global Patient Insights and Engagement Mapi

Patient recruitment isn't about numbers: make meaningful and lasting connections with patients to set your studies up for success
  • Learn what location, stakeholders and personas have in common; and how they each can impact your study
  • Yield quality patients, enhance site performance and achieve greater study success by engaging with the right stakeholders at the right time in your study

Bioclinica Martin Collyer Chief Operating Officer Patient Recruitment Bioclinica

2:00pm
-
2:25pm
Teva's global engagement campaign – the pitfalls and positives
  • Learn how Teva took an honest and frank look at the pharmaceutical industry and the way it does business, whilst listening to the concerns of those accessing healthcare
  • Insights into how to build trust and understand the real issues facing patients
  • Understand the opportunities that will follow from working collaboratively and developing sustainable solutions which address the needs of patients

Teva Deborah Neville Director, Global Patient Solutions, Patient & Market Insights Teva

Turn patient insights into science
  • Get patient insights early to become strategic rather than reactive
  • Hear how unexpected patient insights have helped moderate protocols and trial design endpoints before the trial begins
  • Examples which demonstrate how patient insights have led to improvements in trial enrolment speed, retention and access

ViiV Healthcare Frank Spinelli Medical Director, Patient Affairs, US ViiV Healthcare

Workshop hosted by QuintilesIMS
2:25pm
-
3:30pm
Elevate your patient support program above the rest!
  • Is your patient support program differentiated or simply checking the same boxes of transactional services that your competitors offer?
  • Does your program only provide information or does it build relationships that change behavior?
  • How are you measuring enrollment and ongoing engagement to drive the success of your program?
  • Come join our workshop to discover with your peers how to build a differentiated, engaging and integrated patient-centric support program to elevate your offering from good to great

QuintilesIMS QuintilesIMS

3:30pm
-
3:55pm
Exhibition & Networking Coffee Break
3:55pm
-
4:25pm
PANEL: Make patient involvement routine – and more relevant
  • Facilitate patient and caregiver involvement with your organization
  • Approaches that allow for internal stakeholders to access relevant insights from patients and caregivers’ organizations
  • Make your system easier for patients to interact with – and for employees to initiate
  • Incorporate innovative engagement approaches that allow for virtual input and engagement

Boehringer Ingelheim Jaye Bea Smalley Associate Director, Patient Advocacy and Professional Relations-Patient Engagement Boehringer Ingelheim

Eli Lilly and Company Joseph Kim Senior Advisor, Clinical Innovation Eli Lilly and Company

Arthritis Foundation Suz Schrandt Director of Patient Engagement Arthritis Foundation

Merck Rubi Burlage Executive Director, Sterile Formulation Sciences Merck

FDA Perspective: Clinical Trial Inclusion - Challenges and Opportunities
  • Outline the issue of lack of diversity in clinical trials and why it is crucial that it be addressed
  • Present FDA clinical trial inclusion data to illustrate the depth of the problem
  • Discuss how FDA is addressing clinical trial diversity through policy and outreach and communication

FDA Martin Mendoza Director of Extramural Research, Office of Minority Health FDA

4:25pm
-
4:55pm
PANEL: Bridging the lines of communication between biopharma and the patient advocacy community 
  • Recognize differences and identify agendas involved when engaging with a rare disease community
  • Establish mutual understanding and uncover methods of respectful communication
  • Grow the trust needed in order to meet outcomes

Living in the Light LLC Levi Gershkowitz Founder and Executive Director Living in the Light LLC

EDSers United Foundation Nadia Bodkin Board Member EDSers United Foundation

Audentes Therapeutics Barbara Wuebbels Vice President of Global Patient Relations Audentes Therapeutics

Sangamo Therapeutics Heather Erickson Chief of Staff Sangamo Therapeutics

Overcoming barriers to increased clinical trial diversity and inclusion
  • Understand the compelling data reality
  • Discuss overcoming barriers through a multi-stakeholder approach
  • Discuss opportunities for enrollment of diverse patient populations in clinical research

Merck Luther Clark Global Director, Scientific, Medical and Patient Perspective Merck

Merck Mary Elmer Associate Director, Global Patient Engagement Strategy Office Merck

4:55pm
-
5:25pm
Patient centric marketing strategy and patient support
  • Understand how to deepen patient insights to uncover holistic patient needs and design an end-to-end patient experience
  • Determine how to engage with patients to co-create meaningful programs and services for patients and caregivers
  • Evaluate various approaches to impact measurement leveraging the four pillars

ZS Associates Hensley Evans Principal ZS

Patient centric drug development
  • Understand how to advocate and implement patient centric programs in R&D
  • Gain insight into how the pillars of patient centricity can be implemented into clinical development, to include case studies from industry
  • Identify approaches to gain a deep understanding of patient needs and co-create meaningful solutions for patients and their caregivers in clinical development

ZS Associates Aaron Mitchell Managing Principal ZS

5:25pm
-
5:50pm
Solutions that stick: designing innovative patient support in a complex ecosystem
  • Mapping the baseline – understand the parameters that shape effective program design
  • Design tools and services that improve outcomes for patients
  • Strategies for de-risking programs in a regulated industry
  • Decision-making in a dynamic environment

Otsuka America Shabnam Kazmi Former Vice President, Patient Access & Adherence Otsuka America

Exploring patient preferences in a phase 3 multiple sclerosis trial
  • Hear how regulatory authority requirements are changing regarding the inclusion of patient preferences in the regulatory decision making process
  • Understand why the method for collecting this data should be grounded in the principles of decision theory to be easily integrated into a clinical trial or post-authorization setting
  • Learn about Actelion’s Measuring Attractiveness by a Categorical Based Evaluation TecHnique (MACBETH) approach and how it is being used to elicit preferences from MS patients in an ongoing phase 3 trial

Actelion Daniele D’Ambrosio Senior Director, Clinical Science Program Head Actelion

5:50pm
-
7:20pm
Exhibition & Networking drinks

Purchase the Post-Conference Materials

Event Presentations • Event Audio • On Demand Subscription

Day 2

Patient Pathways & Services
Legal and compliance & Patient-centric management
Patient-led Clinical
Digital & Data
8:55am
-
9:00am
Chairman opening remarks
Chairman opening remarks
9:00am
-
9:25am
Sneak peek… Aurora Project: 2017 patient-centric benchmarks survey
  • Exclusive insights into The Aurora Project’s global benchmarking survey of pharma’s patient-centric efforts (first and largest survey of its kind!)
  • Be the first to see preliminary results and explore questions such as:
    • Are we closing the importance/confidence gap in becoming patient centric?
    • How are we doing – as defined by patients?
    • Are we truly proud of our patient-centric missions?
    • Do we feel we deserve patients’ and HCPs’ trust?
  • Assess what these findings mean to YOU in your efforts to improve outcomes for patients, HCPs, yourself and your company?

The Aurora Project Jill Donahue Co-founder The Aurora Project

Mobile in clinical trials: new data on potential research participant perspectives from CTTI
  • Understand potential research participants’ perceived benefits and concerns of using mobile technology to collect and share personal data in clinical trials
  • Discuss potential participants’ preferred and undesirable attributes of devices and technologies, and willingness to participate
  • Focus on the use of mobile technology for collection of objective trial data
  • Discuss potential impacts of mobile on participant experiences in clinical trials, and implications for the research enterprise

Patient and Partners LLC Cindy Geoghegan Principal Patient and Partners LLC

9:25am
-
9:55am
Unmet patient needs: when and why to use a clinical educator for your brand
  • Addressing unmet patient needs: breaking down barriers to improve outcomes
  • Why engage a Clinical Educator: how CE’s address unmet patient needs
  • Differentiated patient support: when and how to engage an effective Clinical Educator solution

VMS BioMarketing Andrea Heslin Smiley President and Chief Executive Officer VMS BioMarketing

The potential for Artificial Intelligence in influencing patient centricity and health outcomes
  • Learn how Artificial intelligence in making “Real” progress across industries
  • Understand the importance of a T-Switch when using AI, especially in healthcare
  • Learn how social determinants of health influence patient health
  • Discuss how AI could influence human behavior towards better health outcomes

Pega Jitesh Rohatgi Director, Global Industry Principal - Life Sciences Pegasystems

09:55am
-
10:20am
The journey to the beginning: How AstraZeneca defined patient centricity and the impact on the organisation
  • Learn how AZ has established some basic principles for a patient centric transformation program as it begins to refocus on how to engage patients
  • Listen to how AZ is creating that momentum for change to build sustainable practices for the future
  • How is AZ demonstrating impact for patients?

AstraZeneca Dawn DiCandilo Patient Centricity Excellence Director AstraZeneca

Leverage EHRs to support population health management and drive patient engagement
  • Learn how to utilize EHRs to support managing chronic populations
  • Understand how to position EHRs to be a driving force in patient engagement
  • Focus on the patient journey to create synergies across the care continuum

Boehringer Ingelheim Patricia Cunningham Associate Director Health Information Technology Boehringer Ingelheim

10:20am
-
10:45am
Exhibition & Networking Coffee Break
10:45am
-
11:15am
PANEL: Benefit from an enterprise-wide engagement process when developing strong patient-focused capabilities
  • Avoid duplication and improve communication with centralized co-ordination of patient-centric efforts
  • Ensure organizational transparency and rapid access for all functional areas via a portal with tools and resources
  • Instil a process to help teams know how and when to engage with patients
  • Create a personalized patient experience regardless of their touchpoint with your organization

Moderator INC Research / inVentiv Health Marie Emms Head, Global Clinical Trial Engagement INC Research / inVentiv Health

Amgen Jessica Nora Executive Director Patient Engagement Strategies Amgen

Novartis Emmanuel Fombu Medical Director Novartis

PANEL: Create actionable insights by mapping the patient journey through data
  • Understand the patient experience in real life, beyond trials, by collecting meaningful data
  • Learn how data on patient experience can improve your programs long-term
  • Drive tangible benefits including increased adherence, reduced cost and patient and payer engagement

Moderator: ZS Hensley Evans Principal ZS

Janssen Ramana Sonty Director of Strategy, Global Medical Organization Janssen

ViiV Healthcare Frank Spinelli Medical Director, Patient Affairs, US ViiV Healthcare

American Living Organ Donor Fund Michael Mittelman VP Patient Advocacy & Strategic Partnerships American Living Organ Donor Fund

11:15am
-
11:45am
A patient centric approach - using mobile capabilities to connect people to cures
  • Mobile technology is changing how patients interact with their health, and failing to fully embrace this change can significantly impact your position in the market and your ability to provide therapies to the people that need them most
  • Healthcare companies are using mobile technologies to engage patients, and provide better outcomes
  • See a demonstration of a patient enrolling in your organization’s Patient Access Program, collaborating with care teams, browsing specific content, and locating patient events in their area
  • See the advantages that mobile experiences provide to organizations and patients, including real-time and historical insight into your customer and increased user satisfaction and loyalty

Mavens Brian Aggen Patient Services Lead Mavens

The inclusive clinical trial: involving diverse populations in clinical trial design
  • Appreciate why it is both an ethical imperative as well as a smart business decision to develop clinical trial designs that meet the needs and address the concerns of diverse populations
  • Learn methodologies for including diverse populations early in the clinical development process to obtain their valuable input and increase the probability of successful clinical trials

Mapi Kelly Franchetti Vice President, Global Patients Insights and Engagement, Patient-Centered Sciences Mapi

11:45am
-
12:15pm
A roadmap to working with patients in an ethical and transparent manner
  • Establish firm principles and a generic engagement framework
  • Incorporate patient insights faster and overcome barriers
  • Understand regional differences in regulations and mindsets

Pfizer Louisa Daniels Vice President & Assistant General Counsel Pfizer

The next step for BMS’ Universal Patient Language – a guide to implementation
  • A look at how BMS’ patient experience has been transformed since the inception of the UPL for patient communications
  • Learn how the UPL is now being used to redesign informed consent forms for clinical trials and other areas of patient engagement
  • Better engage patients and improve their experience with an easier to navigate engagement process

Bristol-Myers Squibb Debra Reinhard Lead, Translational Medicine Enabling Solutions Bristol-Myers Squibb

Bridgeable Susan Bartlett Principal Bridgeable

12:15pm
-
12:40pm
How to overcome the barriers to patient involvement
  • Understand the current environment and its impact on barriers and perceived barriers to patient engagement
  • Learn best practices in sponsor-patient interactions, developed by a multi-stakeholder collaboration

National Health Council Eric Gascho Vice President of Policy and Government Affairs National Health Council

How greater data-sharing and collaboration advances drug development and benefits all stakeholders
  • Benefits of multi-sector collaboration
  • How data collaboration accelerates development across industries and sectors
  • How a data-sharing in a cross-sector consortium works to deliver meaningful results

Critical Path Institute Rick Liwski Chief Technology Officer; Director, Data Collaboration Center Critical Path Institute

12:40pm
-
1:55pm
Exhibition & Networking Lunch Break

Purchase the Post-Conference Materials

Event Presentations • Event Audio • On Demand Subscription

Closing Keynotes
Patient experience & Measurement
1:55pm
-
2:25pm
Healthcare Trends 2018: the new patient experience (and expectation)
  • See an exclusive preview of the eighth annual healthcare trends report from inVentiv Health Communications
  • Dig into important systemic shifts, understand important new mindsets in key segments of patients, and learn about new patient experiences and behaviors
  • Get first access to new data on patient perspectives on virtual nurse assistants and the next generation of AI-powered patient support

inventiv_health_communications_tag Leigh Householder Managing Director of Innovation inVentiv Health Communications

2:25pm
-
3:05pm
PANEL: Enhancing the patient access and experience in a clinical trial through collaboration: TransCelerate's innovative approaches
  • Hear about plans to create greater understanding of clinical research and clinical trial opportunities for patients and their health care professionals
  • What efforts and innovative technologies can enhance the patient experience and reduce patient burden in clinical trials
  • How capabilities like eConsent and eLabels can be used to empower patients, families, and providers

MODERATOR: UCB Stephen Yates Clinical Program Director and Head, Patient Engagement Strategy UCB

Merck Madeline Geday Associate Director, Patient and Stakeholder Engagement Lead Merck

Bristol-Myers Squibb Debra Reinhard Lead, Translational Medicine Enabling Solutions Bristol-Myers Squibb

Eli Lilly and Company Joseph Kim Senior Advisor, Clinical Innovation Eli Lilly and Company

- James Metcalf Patient

3:05pm
-
3:35pm
Understand your goals to instil the right measurement and evaluation criteria
  • Appreciate which practises need to change before you can begin to measure progress
  • Make sure there is endorsement of what will be measured, and keep things simple in order to drive behaviour
  • See how the results will follow as you incorporate increasingly more patient insights across your organization

Janssen Katherine Capperella Global Patient Engagement Leader Janssen

3:35pm
End of Summit

Purchase the Post-Conference Materials

Event Presentations • Event Audio • On Demand Subscription

Day 1

7:00am
-
8:20am
Registration, Exhibition & Coffee
8:20am
-
8:30am
Chairman opening remarks
Opening Keynotes
The next step forward & Culture change
8:30am
-
9:00am
An Examination of patient engagement within pharma – the past, present and future
  • See the evolution of patient driven efforts and driving forces behind the shift
  • A demonstration of the use of different techniques for patient engagement through examples and a case study
  • Understand how to implement best practices and continue to find solutions to the challenges industry faces in working with patients

Sanofi Anjali Trasy Global Head, Patient Engagement Strategy Sanofi

9:00am
-
9:30am
Patient centricity: from buzzword to reality
  • Learn how the best companies are transitioning from talking about patient centricity into co-creating meaningful patient centric solutions
  • Determine the strategy and patient centric approaches that can bring increased value to patients across the product lifecycle
  • Understand where the pillars of patient centricity can be implemented to better support R&D and Commercial organizations

zs_associates Aaron Mitchell Managing Principal ZS

zs_associates Hensley Evans Principal ZS

9:30am
-
10:10am
PANEL: The real opportunity behind 'unmet needs'
  • Challenge what we really mean when discussing ‘unmet needs’ and how they should be captured and understood
  • Reverse your mentality – discover patient needs before creating a product or solution – and evaluate what targets to aim for
  • Assess the best methodology for understanding unmet needs both qualitatively AND quantitatively in order to prioritize your activities

Moderator: - Heidi Floyd Author, Patient, Advocate, Speaker

Medicines360 Jessica Grossman Chief Executive Officer Medicines360

Allergan Gavin Corcoran Chief Medical Officer Allergan

GSK Marilyn Metcalf Patient Engagement Lead GSK

10:10am
-
10:35am
Exhibition & Networking Coffee Break
10:35am
-
11:05am
Everything I need to know about patient centricity I learned in kindergarten
  • Learn key lessons to guide patient engagement that are intuitive and easy to apply with the right mindset
  • Explore methods and channels for effective patient dialogue, creative approaches and ways to keep privacy and security front and center for all initiatives
  • Discuss real-world examples of companies with successful patient engagement programs using these guidelines

health_perspectives_group Jean McCoy Senior Vice President, Partnerships Health Perspectives Group

11:05am
-
11:45am
PANEL: Where culture eats strategy: start by enabling a patient-first model to flourish organically
  • Make the shift by moving your firm to assess value from BOTH the eyes of the physician AND the patient
  • Avoid mandatory training by supporting your colleagues to invest and take pro-active steps to engage with patients in all cross-functional areas
  • Learn from successful transformations to determine whether culture change should be top-down or bottom-up
  • Drive real change by critically assessing patients’ experience and linking progress to your strategic goals

Moderator: North Highland Alison Broomall Life Sciences Lead North Highland

Astellas Doug Noland Patient Experience Executive Director Astellas

Sanofi Genzyme Gabriela Mondino Head of US Public Affairs and Advocacy Sanofi Genzyme

Janssen Christine MacCracken Director, Patient Support Janssen

Luck Fupus MarlaJan Wexler Patient, Lupus Advocate and Blogger Luck Fupus

North Highland Rich Denness Managing Director and Healthcare & Life Sciences Global Lead North Highland

11:45am
-
1:00pm
Exhibition & Networking Lunch Break

Purchase the Post-Conference Materials

Event Presentations • Event Audio • On Demand Subscription

Patient Pathways & Services
Improving patient experience & Accessibility
Patient-led Clinical
Rethink clinical trials & Approvals
1:00pm
-
1:05pm
Chairman opening remarks
Chairman opening remarks
1:05pm
-
1:30pm
The importance of patient advocacy and its role in cultivating a patient-centric environment
  • Discuss best practice in integrating patient perspective in all relevant areas of business and product lifecycle through collaboration with patient advocacy organizations
  • Learn how to provide meaningful benefit to patients by prioritizing patient health and outcomes over products
  • Incorporate patient-centric strategies to help patients find solutions, tools and information that help them focus on costs, quality and access

Amgen Tom Croce Vice President, Global Advocacy Relations Amgen

A systematic approach for incorporating the patient voice into trial design
  • Establish where embedding patient insights into development and protocol setup makes practical sense
  • Create policies, tools, best practice case studies and enabling support to facilitate patient input in trial design across the company
  • Drive culture change and metrics evaluation of patient input into trial design
  • Re-think the way R&D is evaluated – is the ‘first patient in’ timeline model incongruous with getting early patient insight?

Novartis Cathryn Clary Global Head, Patient Affairs and Policy, Chief Medical Office Novartis

1:30pm
-
2:00pm
Immersing your commercial team in the patient experience: a case study in applying patient insights
  • Appreciate why it is both an ethical imperative as well as a smart business decision to develop clinical trial designs that meet the needs and address the concerns of diverse populations
  • Learn methodologies for including diverse populations early in the clinical development process to obtain their valuable input and increase the probability of successful clinical trials

Mapi Kelly Franchetti Vice President, Global Patients Insights and Engagement, Patient-Centered Sciences Mapi

Mapi Valerie Powell Senior Director Global Patient Insights and Engagement Mapi

Patient recruitment isn't about numbers: make meaningful and lasting connections with patients to set your studies up for success
  • Learn what location, stakeholders and personas have in common; and how they each can impact your study
  • Yield quality patients, enhance site performance and achieve greater study success by engaging with the right stakeholders at the right time in your study

Bioclinica Martin Collyer Chief Operating Officer Patient Recruitment Bioclinica

2:00pm
-
2:25pm
Teva's global engagement campaign – the pitfalls and positives
  • Learn how Teva took an honest and frank look at the pharmaceutical industry and the way it does business, whilst listening to the concerns of those accessing healthcare
  • Insights into how to build trust and understand the real issues facing patients
  • Understand the opportunities that will follow from working collaboratively and developing sustainable solutions which address the needs of patients

Teva Deborah Neville Director, Global Patient Solutions, Patient & Market Insights Teva

Turn patient insights into science
  • Get patient insights early to become strategic rather than reactive
  • Hear how unexpected patient insights have helped moderate protocols and trial design endpoints before the trial begins
  • Examples which demonstrate how patient insights have led to improvements in trial enrolment speed, retention and access

ViiV Healthcare Frank Spinelli Medical Director, Patient Affairs, US ViiV Healthcare

Workshop hosted by QuintilesIMS
2:25pm
-
3:30pm
Elevate your patient support program above the rest!
  • Is your patient support program differentiated or simply checking the same boxes of transactional services that your competitors offer?
  • Does your program only provide information or does it build relationships that change behavior?
  • How are you measuring enrollment and ongoing engagement to drive the success of your program?
  • Come join our workshop to discover with your peers how to build a differentiated, engaging and integrated patient-centric support program to elevate your offering from good to great

QuintilesIMS QuintilesIMS

3:30pm
-
3:55pm
Exhibition & Networking Coffee Break
3:55pm
-
4:25pm
PANEL: Make patient involvement routine – and more relevant
  • Facilitate patient and caregiver involvement with your organization
  • Approaches that allow for internal stakeholders to access relevant insights from patients and caregivers’ organizations
  • Make your system easier for patients to interact with – and for employees to initiate
  • Incorporate innovative engagement approaches that allow for virtual input and engagement

Boehringer Ingelheim Jaye Bea Smalley Associate Director, Patient Advocacy and Professional Relations-Patient Engagement Boehringer Ingelheim

Eli Lilly and Company Joseph Kim Senior Advisor, Clinical Innovation Eli Lilly and Company

Arthritis Foundation Suz Schrandt Director of Patient Engagement Arthritis Foundation

Merck Rubi Burlage Executive Director, Sterile Formulation Sciences Merck

FDA Perspective: Clinical Trial Inclusion - Challenges and Opportunities
  • Outline the issue of lack of diversity in clinical trials and why it is crucial that it be addressed
  • Present FDA clinical trial inclusion data to illustrate the depth of the problem
  • Discuss how FDA is addressing clinical trial diversity through policy and outreach and communication

FDA Martin Mendoza Director of Extramural Research, Office of Minority Health FDA

4:25pm
-
4:55pm
PANEL: Bridging the lines of communication between biopharma and the patient advocacy community 
  • Recognize differences and identify agendas involved when engaging with a rare disease community
  • Establish mutual understanding and uncover methods of respectful communication
  • Grow the trust needed in order to meet outcomes

Living in the Light LLC Levi Gershkowitz Founder and Executive Director Living in the Light LLC

EDSers United Foundation Nadia Bodkin Board Member EDSers United Foundation

Audentes Therapeutics Barbara Wuebbels Vice President of Global Patient Relations Audentes Therapeutics

Sangamo Therapeutics Heather Erickson Chief of Staff Sangamo Therapeutics

Overcoming barriers to increased clinical trial diversity and inclusion
  • Understand the compelling data reality
  • Discuss overcoming barriers through a multi-stakeholder approach
  • Discuss opportunities for enrollment of diverse patient populations in clinical research

Merck Luther Clark Global Director, Scientific, Medical and Patient Perspective Merck

Merck Mary Elmer Associate Director, Global Patient Engagement Strategy Office Merck

4:55pm
-
5:25pm
Patient centric marketing strategy and patient support
  • Understand how to deepen patient insights to uncover holistic patient needs and design an end-to-end patient experience
  • Determine how to engage with patients to co-create meaningful programs and services for patients and caregivers
  • Evaluate various approaches to impact measurement leveraging the four pillars

ZS Associates Hensley Evans Principal ZS

Patient centric drug development
  • Understand how to advocate and implement patient centric programs in R&D
  • Gain insight into how the pillars of patient centricity can be implemented into clinical development, to include case studies from industry
  • Identify approaches to gain a deep understanding of patient needs and co-create meaningful solutions for patients and their caregivers in clinical development

ZS Associates Aaron Mitchell Managing Principal ZS

5:25pm
-
5:50pm
Solutions that stick: designing innovative patient support in a complex ecosystem
  • Mapping the baseline – understand the parameters that shape effective program design
  • Design tools and services that improve outcomes for patients
  • Strategies for de-risking programs in a regulated industry
  • Decision-making in a dynamic environment

Otsuka America Shabnam Kazmi Former Vice President, Patient Access & Adherence Otsuka America

Exploring patient preferences in a phase 3 multiple sclerosis trial
  • Hear how regulatory authority requirements are changing regarding the inclusion of patient preferences in the regulatory decision making process
  • Understand why the method for collecting this data should be grounded in the principles of decision theory to be easily integrated into a clinical trial or post-authorization setting
  • Learn about Actelion’s Measuring Attractiveness by a Categorical Based Evaluation TecHnique (MACBETH) approach and how it is being used to elicit preferences from MS patients in an ongoing phase 3 trial

Actelion Daniele D’Ambrosio Senior Director, Clinical Science Program Head Actelion

5:50pm
-
7:20pm
Exhibition & Networking drinks

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Day 2

Patient Pathways & Services
Legal and compliance & Patient-centric management
Patient-led Clinical
Digital & Data
8:55am
-
9:00am
Chairman opening remarks
Chairman opening remarks
9:00am
-
9:25am
Sneak peek… Aurora Project: 2017 patient-centric benchmarks survey
  • Exclusive insights into The Aurora Project’s global benchmarking survey of pharma’s patient-centric efforts (first and largest survey of its kind!)
  • Be the first to see preliminary results and explore questions such as:
    • Are we closing the importance/confidence gap in becoming patient centric?
    • How are we doing – as defined by patients?
    • Are we truly proud of our patient-centric missions?
    • Do we feel we deserve patients’ and HCPs’ trust?
  • Assess what these findings mean to YOU in your efforts to improve outcomes for patients, HCPs, yourself and your company?

The Aurora Project Jill Donahue Co-founder The Aurora Project

Mobile in clinical trials: new data on potential research participant perspectives from CTTI
  • Understand potential research participants’ perceived benefits and concerns of using mobile technology to collect and share personal data in clinical trials
  • Discuss potential participants’ preferred and undesirable attributes of devices and technologies, and willingness to participate
  • Focus on the use of mobile technology for collection of objective trial data
  • Discuss potential impacts of mobile on participant experiences in clinical trials, and implications for the research enterprise

Patient and Partners LLC Cindy Geoghegan Principal Patient and Partners LLC

9:25am
-
9:55am
Unmet patient needs: when and why to use a clinical educator for your brand
  • Addressing unmet patient needs: breaking down barriers to improve outcomes
  • Why engage a Clinical Educator: how CE’s address unmet patient needs
  • Differentiated patient support: when and how to engage an effective Clinical Educator solution

VMS BioMarketing Andrea Heslin Smiley President and Chief Executive Officer VMS BioMarketing

The potential for Artificial Intelligence in influencing patient centricity and health outcomes
  • Learn how Artificial intelligence in making “Real” progress across industries
  • Understand the importance of a T-Switch when using AI, especially in healthcare
  • Learn how social determinants of health influence patient health
  • Discuss how AI could influence human behavior towards better health outcomes

Pega Jitesh Rohatgi Director, Global Industry Principal - Life Sciences Pegasystems

09:55am
-
10:20am
The journey to the beginning: How AstraZeneca defined patient centricity and the impact on the organisation
  • Learn how AZ has established some basic principles for a patient centric transformation program as it begins to refocus on how to engage patients
  • Listen to how AZ is creating that momentum for change to build sustainable practices for the future
  • How is AZ demonstrating impact for patients?

AstraZeneca Dawn DiCandilo Patient Centricity Excellence Director AstraZeneca

Leverage EHRs to support population health management and drive patient engagement
  • Learn how to utilize EHRs to support managing chronic populations
  • Understand how to position EHRs to be a driving force in patient engagement
  • Focus on the patient journey to create synergies across the care continuum

Boehringer Ingelheim Patricia Cunningham Associate Director Health Information Technology Boehringer Ingelheim

10:20am
-
10:45am
Exhibition & Networking Coffee Break
10:45am
-
11:15am
PANEL: Benefit from an enterprise-wide engagement process when developing strong patient-focused capabilities
  • Avoid duplication and improve communication with centralized co-ordination of patient-centric efforts
  • Ensure organizational transparency and rapid access for all functional areas via a portal with tools and resources
  • Instil a process to help teams know how and when to engage with patients
  • Create a personalized patient experience regardless of their touchpoint with your organization

Moderator INC Research / inVentiv Health Marie Emms Head, Global Clinical Trial Engagement INC Research / inVentiv Health

Amgen Jessica Nora Executive Director Patient Engagement Strategies Amgen

Novartis Emmanuel Fombu Medical Director Novartis

PANEL: Create actionable insights by mapping the patient journey through data
  • Understand the patient experience in real life, beyond trials, by collecting meaningful data
  • Learn how data on patient experience can improve your programs long-term
  • Drive tangible benefits including increased adherence, reduced cost and patient and payer engagement

Moderator: ZS Hensley Evans Principal ZS

Janssen Ramana Sonty Director of Strategy, Global Medical Organization Janssen

ViiV Healthcare Frank Spinelli Medical Director, Patient Affairs, US ViiV Healthcare

American Living Organ Donor Fund Michael Mittelman VP Patient Advocacy & Strategic Partnerships American Living Organ Donor Fund

11:15am
-
11:45am
A patient centric approach - using mobile capabilities to connect people to cures
  • Mobile technology is changing how patients interact with their health, and failing to fully embrace this change can significantly impact your position in the market and your ability to provide therapies to the people that need them most
  • Healthcare companies are using mobile technologies to engage patients, and provide better outcomes
  • See a demonstration of a patient enrolling in your organization’s Patient Access Program, collaborating with care teams, browsing specific content, and locating patient events in their area
  • See the advantages that mobile experiences provide to organizations and patients, including real-time and historical insight into your customer and increased user satisfaction and loyalty

Mavens Brian Aggen Patient Services Lead Mavens

The inclusive clinical trial: involving diverse populations in clinical trial design
  • Appreciate why it is both an ethical imperative as well as a smart business decision to develop clinical trial designs that meet the needs and address the concerns of diverse populations
  • Learn methodologies for including diverse populations early in the clinical development process to obtain their valuable input and increase the probability of successful clinical trials

Mapi Kelly Franchetti Vice President, Global Patients Insights and Engagement, Patient-Centered Sciences Mapi

11:45am
-
12:15pm
A roadmap to working with patients in an ethical and transparent manner
  • Establish firm principles and a generic engagement framework
  • Incorporate patient insights faster and overcome barriers
  • Understand regional differences in regulations and mindsets

Pfizer Louisa Daniels Vice President & Assistant General Counsel Pfizer

The next step for BMS’ Universal Patient Language – a guide to implementation
  • A look at how BMS’ patient experience has been transformed since the inception of the UPL for patient communications
  • Learn how the UPL is now being used to redesign informed consent forms for clinical trials and other areas of patient engagement
  • Better engage patients and improve their experience with an easier to navigate engagement process

Bristol-Myers Squibb Debra Reinhard Lead, Translational Medicine Enabling Solutions Bristol-Myers Squibb

Bridgeable Susan Bartlett Principal Bridgeable

12:15pm
-
12:40pm
How to overcome the barriers to patient involvement
  • Understand the current environment and its impact on barriers and perceived barriers to patient engagement
  • Learn best practices in sponsor-patient interactions, developed by a multi-stakeholder collaboration

National Health Council Eric Gascho Vice President of Policy and Government Affairs National Health Council

How greater data-sharing and collaboration advances drug development and benefits all stakeholders
  • Benefits of multi-sector collaboration
  • How data collaboration accelerates development across industries and sectors
  • How a data-sharing in a cross-sector consortium works to deliver meaningful results

Critical Path Institute Rick Liwski Chief Technology Officer; Director, Data Collaboration Center Critical Path Institute

12:40pm
-
1:55pm
Exhibition & Networking Lunch Break

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Closing Keynotes
Patient experience & Measurement
1:55pm
-
2:25pm
Healthcare Trends 2018: the new patient experience (and expectation)
  • See an exclusive preview of the eighth annual healthcare trends report from inVentiv Health Communications
  • Dig into important systemic shifts, understand important new mindsets in key segments of patients, and learn about new patient experiences and behaviors
  • Get first access to new data on patient perspectives on virtual nurse assistants and the next generation of AI-powered patient support

inventiv_health_communications_tag Leigh Householder Managing Director of Innovation inVentiv Health Communications

2:25pm
-
3:05pm
PANEL: Enhancing the patient access and experience in a clinical trial through collaboration: TransCelerate's innovative approaches
  • Hear about plans to create greater understanding of clinical research and clinical trial opportunities for patients and their health care professionals
  • What efforts and innovative technologies can enhance the patient experience and reduce patient burden in clinical trials
  • How capabilities like eConsent and eLabels can be used to empower patients, families, and providers

MODERATOR: UCB Stephen Yates Clinical Program Director and Head, Patient Engagement Strategy UCB

Merck Madeline Geday Associate Director, Patient and Stakeholder Engagement Lead Merck

Bristol-Myers Squibb Debra Reinhard Lead, Translational Medicine Enabling Solutions Bristol-Myers Squibb

Eli Lilly and Company Joseph Kim Senior Advisor, Clinical Innovation Eli Lilly and Company

- James Metcalf Patient

3:05pm
-
3:35pm
Understand your goals to instil the right measurement and evaluation criteria
  • Appreciate which practises need to change before you can begin to measure progress
  • Make sure there is endorsement of what will be measured, and keep things simple in order to drive behaviour
  • See how the results will follow as you incorporate increasingly more patient insights across your organization

Janssen Katherine Capperella Global Patient Engagement Leader Janssen

3:35pm
End of Summit

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