eyeforpharma is extremely proud that the Patient Summit Europe 2016 was accredited as a Patients Included conference. We believe that it is vital to walk the talk in the same way that we expect the pharma industry to do – to co-design and cooperate with patients throughout. As such, we are committed to incorporating patient experience and insight into this event.
Please read on to find out how we met the expectations of each of the Charter’s 5 clauses:
1. Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.
The content for the 2016 summit was thoroughly researched and contributed to via conversations with pharma, patients, advocacy groups, and charities, from the outset. The agenda was then reviewed by patients, and their suggestions for improvements and additions incorporated. Some of these contributors who are happy to have their names published here are:
- Ian Talmage, Cancer Survivor and Senior VP, Strategic Marketing, Bayer Pharma
- Sarah Lindsell, CEO, the Brain Tumour Charity
- Carolyn Cleveland, Patient Safety Champion, Founder & MD of C&C Empathy Training Ltd
2. Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.
Several patient and patient group speakers participated in the event, for example:
- Oliver Timmis, CEO, the AKU Society
- André Habrock, patient, Kindernetzwork
- Flóra Raffai, Executive Director, Findacure
- Lotte Klim, Type 1 diabetes patient, Board Member, Type 1
- Malene Madsen, Board Member, Nyreforeningen (Danish Kidney Association)
We welcome the further participation of any patients who would like to be part of our Patient Panel. Something which is becoming a feature of eyeforpharma conferences is that, after each session or panel discussion, we will open the floor for comments and questions from the Patient Panel before the rest of the audience. We believe that this holds every speaker - even if they’re talking about something ‘internal’ - accountable. If you are a patient and you’re interested in getting involved in 2017, please email Cintia Hernandez Marco or apply for a Scholarship here. (Note: we cannot guarantee to offer every applicant a place at the conference, however we do intend for free, supported passes to be issued for as many patients as possible).
3. Travel and accommodation expenses for patients or carers participating in the advertised programme are paid in full, in advance. Scholarships are provided by the conference organisers to allow patients or carers affected by the relevant issues to attend as delegates.
All travel and accommodation expenses for patient speakers participating in the Patient Summit Europe 2016 were paid in full. In addition, we have budgeted for travel and accommodation expenses to be paid for a limited number of general patient participants as part of our ‘Scholarship’ scheme – to apply for 2017, please click here. Entry to the conference will also be free of charge to any patients who are affected by the topics addressed in our programme, who have their attendance agreed by eyeforpharma.
4. The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other programme elements are open to patient delegates.
All venues used by eyeforpharma cater to any disability requirements – we do ask that specific requirements are notified to us in advance of the event, however. Please contact Cintia Hernandez Marco. Once on-site, patient delegates have full access to any part of the conference that they wish to attend.
5. Access for virtual participants is facilitated with free streaming video provided online wherever possible.
The conference can be easily followed throughout the 2 days via #efppatients. We also use Slido, a live Q&A and polling site, to crowdsource questions to pose to each of our speakers after each session, and patients not present at the conference are welcome to contribute to this. Post-event materials will be available to patients free of charge.