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2016’s patient-approved agenda

08:30 - 09:00
Opening Remarks from Chairman

S3 Connected Health Jim O’Donoghue Vice President S3 Connected Health

09:00 - 09:30
Gain your patients trust and respect by embodying patient centricity to increase collaboration
  • Create a more transparent and open dialogue with your patients to become their trusted partner
  • Improve your company’s reputation by getting patient input throughout every part of your pipeline and being more accessible
  • Expert advice on how to overcome patients’ reluctance towards working with pharma

TEVA Ruth Wilson Director, Global Patient Relations and Advocacy TEVA

09:30 - 10:00
Sharing how patient organisations and pharma can partner via “open house days”
  • Hear how one pharma company opened their doors to better engage with the patients they want to work with
  • Show patients how your daily work is improving the lives of people just like them
  • Get patients on board by running in-house workshops to explain how they can be involved in developing new treatments and solutions for their condition

Janssen James Fitzpatrick Government Affairs and Patient Advocacy Lead Janssen

Janssen Barbara Donalson Patient Advocacy & Engagement Manager Janssen

09:30 - 10:00
Bridge the gap between digital and physical solutions to improve patient outcomes
  • Hear how LEO Innovation Lab is redefining the way they do business, with just one goal - making a difference to people living with psoriasis
  • Become truly patient-centric by helping patients with other aspects of daily life while living with an illness
  • Learn why you must co-design solutions with patients to truly understand and address their unmet needs

LEO Innovation Lab Kristian Hart-Hansen CEO LEO Innovation Lab

09:30 - 10:00
Patient insight, input and outcomes: delivering value through effective engagement
  • Mapping the many touchpoints where pharma can engage with patients throughout the product development lifecycle
  • Understand how to deliver and measure value to patients as well as your own business through this approach
  • Real world case examples from our panel of experts from industry, advocacy groups and the healthcare profession

Ashfield Healthcare Communications Jo Fearnhead-Wymbs Patient Engagement Director Ashfield Healthcare Communications

Ashfield Clinical Anita Osborn Clinical Services Director Ashfield Clinical

ViiV Healthcare Dr Oleksandr Gorbenko Global Patient Affairs Medical Lead ViiV Healthcare

Findacure Flóra Raffai Executive Director Findacure

09:30 - 10:00
Create well-informed patients and groups who are able to collaborate with pharma while maintaining their independence
  • Hear about the various ways patients have been able to become involved with pharma on research and development since completing training programs such as EUPATI’s
  • Learn how ABPI and AMRC’s online guides have helped to create a transparent collaboration between patient organisations and pharma while maintaining their credibility, integrity and independence
  • Assess the benefits and challenges of partnership over funding to patient groups and align your efforts in improving outcomes for patients

EUPATI Jan Geissler Director EUPATI

ABPI Dr Jacintha Sivarajah Head of Medical Affairs ABPI

AMRC Aisling Burnand Chief Executive AMRC

09:30 - 10:00
Give your patients the digital revolution - the impact of new technologies on data collection and patient communication
  • Understand both the limitations and opportunities around using patient data
  • Learn how to unlock the power of digital platforms to gather useful feedback from both patients and clinicians
  • Improve clinical outcomes by utilising digital communication channels between patients, caregivers and clinicians

Grünenthal Emma Sutcliffe Consultant Director, Patient Engagement Grünenthal

09:30 - 10:00
Case study: Witness patients and pharma educating each other for common goals
  • Understand barriers to recruitment in pediatric studies from the perspective of the patient and their guardians
  • Hear how the Kindernetzwerk support group and Bayer have formed a relationship to work together in overcoming these barriers
  • Learn how patients’ advice can help pharma to improve educational material and facilitate informed consent

Bayer Vital, Germany Jens Lipinski Head Patient Relations Bayer Vital, Germany

Kindernetzwerk (German Children’s Network) André Habrock patient Kindernetzwerk (German Children’s Network)

09:30 - 10:00
Patient benefits when Digital-only Mobile Apps become Medical Devices
  • A case study of validating a software only mobile app as a Class 1 CE marked medical device
  • Why and how would this impact patient benefits and the implications for the app creator

GSK Ashley George Global Head of Innovation and Consumerisation Centre of Excellence GSK

The EarthWorks Richard Jones Patient Services Director The EarthWorks

09:30 - 10:00
Case study: Collaborative success: The AKU Society, Sobi and the EC
  • Think outside the box - hear how a patient group approached pharma for help and initiated a new clinical trial
  • The power of 3: patients, pharma and the EC working together to change the lives of rare disease sufferers
  • Learn how a rare disease group recruited half of their patient population for a clinical trial, and understand how you can put these lessons into practise within your company

The AKU Society Oliver Timmis CEO The AKU Society

Sobi Mattias Rudebeck Global Medical Science Director Sobi

09:30 - 10:00
Synergise efforts for meaningful patient involvement throughout the lifecycle of medicine
  • Get an expert breakdown of existing initiatives and frameworks aimed at integrating the voice of the patient throughout the lifecycle of medicine​s
  • Learn how you can contribute to efforts in mapping the current landscape in order to advance patient engagement
  • Identify best practices and critical success factors for effective patient engagement by having an efficient, actionable​ and reliable meta-framework for patient partnerships

PFMD Nicholas Brooke Chief Executive PFMD

09:30 - 10:00
Case study: Proof that working with patients to design their own treatment improves their health
  • A must-hear case study demonstrating how patient-centric trial development is helping patients make strides in their treatment
  • Co-presented expert advice from patients and pharma who worked together to solve patient issues
  • Proven effective methods for incorporating patient input into pharma’s lifecycle which you can put into practise

ViiV Healthcare Dr Oleksandr Gorbenko Global Patient Affairs Medical Lead ViiV Healthcare

08:30 - 09:00
Chairman

UCB Lode Dewulf VP, Chief Patient Affairs Officer UCB

08:30 - 09:00
Make the benefits of patient-centricity tangible to validate its importance
  • Determine what metrics you should use to measure the impact of patient-centricity in your company
  • Prove its value to all stakeholders and increase buy-in
  • Demonstrate that patient-centricity works by providing patients with solutions that are even more useful than those designed solely by pharma

Sanofi Anne Beal Chief Patient Officer Sanofi

Sanofi Anjali Trasy Global Head, Patient Engagement Strategy Sanofi

08:30 - 09:00
Case study: Creating a cultural change to ingrain patient engagement into every part of your organisation
  • Hear how stakeholders are stepping into their patients’ shoes to help them empathize with their customers
  • Get ideas for how you can instill a change in your organisation’s mindset
  • Discover how to use internal advocates to spread the patient-centric message and help transform your organisation’s way of thinking

Bayer Pooja Merchant Head, External Medical Affairs Bayer

BMJ Rosamund Snow Patient Editor BMJ

08:30 - 09:00
Using the power of film to gain an intimate glimpse into the lives of individuals living with terminal cancer
  • Combining patient submitted video diaries with in-home interviews, we created a global documentary video series aimed at improving the treatment and care of patients with Multiple Myeloma
  • Starting with the question, “what does patient support really look like?” and finishing with real patient stories, gathered through impactful, deeply personal video footage, we discuss our collaboration, the power of the patient first approach and learning from this project

C Space Health Chris Jackson Director C Space Health

Takeda Dr. Susanne Weissbaecker Head of Trade & Patient Services Takeda

08:30 - 09:00
Capacity building and health literacy programs to make pharma more accessible for patients
  • Improve patient groups’ understanding about working with pharma – hear how one charity is providing free training for patient groups on how they can become partners
  • Understand the advantages of making health literature accessible to patients as well as clinicians
  • Appreciate the effects of better disease comprehension on adherence and patient outcomes

Findacure Flóra Raffai Executive Director Findacure

Oxford PharmaGenesis Ltd Lizzie Perdeaux Medical Writer Oxford PharmaGenesis Ltd

08:30 - 09:00
Case study: Internalizing the perspectives and advice of patient leaders in medicines R&D
  • EUPATI enacted: A must-hear case study demonstrating the emerging role of patients as disease experience experts in medicines R&D
  • Co-presented expert advice from patients and pharma who work together to address patients’ unmet needs
  • The potentials and pitfalls when changing your ‘business as usual’: fundamental critical success factors transforming your patient relationships from ‘transaction’ to ‘partnering’

Novo Nordisk Camilla Krogh Lauritzen Director and Global Head of R&D Communication and Patient Partnering Novo Nordisk

Type 1 Lotte Klim Type 1 diabetes patient, Board Member Type 1

nyreforeningen Malene Madsen Board Member Nyreforeningen (Danish Kidney Association)

08:30 - 09:00
Break through the barriers to patient engagement
  • Understand when, how and why patients should be brought in to work with you
  • Work with, not against, your legal team to produce an internal guide to compliance during engagement that everyone across your company can use
  • Recognise and overcome the regulatory obstacles in each country you operate in

Pfizer Maria Pia Ruffilli Senior Director International Public Affairs - Therapeutic Area Support Team Leader Pfizer

05:30 - 07:00
Workshops
10:30 - 11:00
Patient centricity: measuring impact and value

Patient-centricity is now a central part of most pharma companies’ priorities. However QuintilesIMS research indicates there are differing perspectives among healthcare stakeholders on how successful pharma has been to date in delivering on the patient-centric promise. One reason behind this is the challenge in measuring the value of patient-centric initiatives.

Join us for an interactive session to explore opportunities for leveraging novel metrics and methodologies to measure the value of patient centricity at corporate, brand and programme level. We will share our perspective on how to demonstrate the true value of patient-centricity to a diverse range of stakeholders with differing objectives; and how to use performance management to fully embed patient-centricity within the organisation.

QuintilesIMS Nicola Hall VP Technology & Services QuintilesIMS

QuintilesIMS Bianca Martindale Solution Specialist QuintilesIMS

A healthy return for good behaviour

Practical ways to leverage the science of behaviour to drive patient value.

Working in the pharmaceutical industry often means you are developing products and services for some of the most reluctant ‘consumers.’ Using McCann Health’s extensive experience in understanding how to optimise engagement with patients and HCPs, this workshop will provide you with an appreciation of some of the key behavioural science-based principles, what drives behaviour in healthcare and how to develop solutions and interventions that lead to positive and effective behaviour change to benefit patient health.

McCann Health Mike Brzozowski EVP, Managing Director - Patient Engagement McCann Health

McCann Health Hilary Farrington Global Head of Insights McCann Health

McCann Health Caroline Ellwood Senior Analyst, Consulting McCann Health

08:30 - 09:00
Get deep insight from your patients to help solve their unmet needs and improve clinical outcomes
  • Understand which aspects of life negatively affect patients so that you can add real value beyond the pill
  • Learnings from drug development failures and successes: Real world examples of where working with patients had a real impact on the bottom line
  • Create a win-win with your patients to make your engagement more meaningful and beneficial for them

AstraZeneca Katja Rüdell Director, Patient Reported Outcomes AstraZeneca

08:30 - 09:00
Real world application: How patient insights are being used to optimize clinical trials
  • By utilizing a 360° approach to obtaining actionable patient insights, we can positively impact both the design and execution of clinical studies. Through engaging case studies, we will share how these insights are being used to influence trial protocols and optimize clinical trial operations.
  • Participants will learn how patient insights can be used to shape:
    • Protocol development
    • Population-specific recruitment and retention methods
    • Patient and caregiver engagement and communication

Mapi Group Kelly Franchetti Vice President Global Patient Insights and Engagement Mapi Group

08:30 - 09:00
The impact of the UK’s Accelerated Access Review on pharma-patient relationships
  • Hear from the Review’s Patient Champion on how the report aims to give patients and service users a say at every stage of innovation
  • Understand the method of the Review process, its conclusions and recommendations
  • Recognise the implications and expectations for the future for pharma working with UK healthcare authorities

National Voices Hilary Newiss Chair National Voices

08:30 - 09:00
Signs of success - the positive outcomes of patient-centricity across the whole healthcare industry
  • Increase adherence by involving patients in designing their own treatment
  • Improve clinicians’ job satisfaction with better patient outcomes
  • Be more profitable by putting patients at the heart of everything you do – a health economist’s assessment

European Society for Person Centered Healthcare Professor Andrew Miles Senior Vice President & Secretary General European Society for Person Centered Healthcare

08:30 - 09:00
Opening Remarks from Chairman

S3 Connected Health Jim O’Donoghue Vice President S3 Connected Health

09:00 - 09:30
Gain your patients trust and respect by embodying patient centricity to increase collaboration
  • Create a more transparent and open dialogue with your patients to become their trusted partner
  • Improve your company’s reputation by getting patient input throughout every part of your pipeline and being more accessible
  • Expert advice on how to overcome patients’ reluctance towards working with pharma

TEVA Ruth Wilson Director, Global Patient Relations and Advocacy TEVA

09:30 - 10:00
Sharing how patient organisations and pharma can partner via “open house days”
  • Hear how one pharma company opened their doors to better engage with the patients they want to work with
  • Show patients how your daily work is improving the lives of people just like them
  • Get patients on board by running in-house workshops to explain how they can be involved in developing new treatments and solutions for their condition

Janssen James Fitzpatrick Government Affairs and Patient Advocacy Lead Janssen

Janssen Barbara Donalson Patient Advocacy & Engagement Manager Janssen

09:30 - 10:00
Bridge the gap between digital and physical solutions to improve patient outcomes
  • Hear how LEO Innovation Lab is redefining the way they do business, with just one goal - making a difference to people living with psoriasis
  • Become truly patient-centric by helping patients with other aspects of daily life while living with an illness
  • Learn why you must co-design solutions with patients to truly understand and address their unmet needs

LEO Innovation Lab Kristian Hart-Hansen CEO LEO Innovation Lab

09:30 - 10:00
Patient insight, input and outcomes: delivering value through effective engagement
  • Mapping the many touchpoints where pharma can engage with patients throughout the product development lifecycle
  • Understand how to deliver and measure value to patients as well as your own business through this approach
  • Real world case examples from our panel of experts from industry, advocacy groups and the healthcare profession

Ashfield Healthcare Communications Jo Fearnhead-Wymbs Patient Engagement Director Ashfield Healthcare Communications

Ashfield Clinical Anita Osborn Clinical Services Director Ashfield Clinical

ViiV Healthcare Dr Oleksandr Gorbenko Global Patient Affairs Medical Lead ViiV Healthcare

Findacure Flóra Raffai Executive Director Findacure

09:30 - 10:00
Create well-informed patients and groups who are able to collaborate with pharma while maintaining their independence
  • Hear about the various ways patients have been able to become involved with pharma on research and development since completing training programs such as EUPATI’s
  • Learn how ABPI and AMRC’s online guides have helped to create a transparent collaboration between patient organisations and pharma while maintaining their credibility, integrity and independence
  • Assess the benefits and challenges of partnership over funding to patient groups and align your efforts in improving outcomes for patients

EUPATI Jan Geissler Director EUPATI

ABPI Dr Jacintha Sivarajah Head of Medical Affairs ABPI

AMRC Aisling Burnand Chief Executive AMRC

09:30 - 10:00
Give your patients the digital revolution - the impact of new technologies on data collection and patient communication
  • Understand both the limitations and opportunities around using patient data
  • Learn how to unlock the power of digital platforms to gather useful feedback from both patients and clinicians
  • Improve clinical outcomes by utilising digital communication channels between patients, caregivers and clinicians

Grünenthal Emma Sutcliffe Consultant Director, Patient Engagement Grünenthal

09:30 - 10:00
Case study: Witness patients and pharma educating each other for common goals
  • Understand barriers to recruitment in pediatric studies from the perspective of the patient and their guardians
  • Hear how the Kindernetzwerk support group and Bayer have formed a relationship to work together in overcoming these barriers
  • Learn how patients’ advice can help pharma to improve educational material and facilitate informed consent

Bayer Vital, Germany Jens Lipinski Head Patient Relations Bayer Vital, Germany

Kindernetzwerk (German Children’s Network) André Habrock patient Kindernetzwerk (German Children’s Network)

09:30 - 10:00
Patient benefits when Digital-only Mobile Apps become Medical Devices
  • A case study of validating a software only mobile app as a Class 1 CE marked medical device
  • Why and how would this impact patient benefits and the implications for the app creator

GSK Ashley George Global Head of Innovation and Consumerisation Centre of Excellence GSK

The EarthWorks Richard Jones Patient Services Director The EarthWorks

09:30 - 10:00
Case study: Collaborative success: The AKU Society, Sobi and the EC
  • Think outside the box - hear how a patient group approached pharma for help and initiated a new clinical trial
  • The power of 3: patients, pharma and the EC working together to change the lives of rare disease sufferers
  • Learn how a rare disease group recruited half of their patient population for a clinical trial, and understand how you can put these lessons into practise within your company

The AKU Society Oliver Timmis CEO The AKU Society

Sobi Mattias Rudebeck Global Medical Science Director Sobi

09:30 - 10:00
Synergise efforts for meaningful patient involvement throughout the lifecycle of medicine
  • Get an expert breakdown of existing initiatives and frameworks aimed at integrating the voice of the patient throughout the lifecycle of medicine​s
  • Learn how you can contribute to efforts in mapping the current landscape in order to advance patient engagement
  • Identify best practices and critical success factors for effective patient engagement by having an efficient, actionable​ and reliable meta-framework for patient partnerships

PFMD Nicholas Brooke Chief Executive PFMD

09:30 - 10:00
Case study: Proof that working with patients to design their own treatment improves their health
  • A must-hear case study demonstrating how patient-centric trial development is helping patients make strides in their treatment
  • Co-presented expert advice from patients and pharma who worked together to solve patient issues
  • Proven effective methods for incorporating patient input into pharma’s lifecycle which you can put into practise

ViiV Healthcare Dr Oleksandr Gorbenko Global Patient Affairs Medical Lead ViiV Healthcare

Pre-order your event brochure

Full speaker list • Full conference agenda • Audience breakdown

08:30 - 09:00
Chairman

UCB Lode Dewulf VP, Chief Patient Affairs Officer UCB

08:30 - 09:00
Make the benefits of patient-centricity tangible to validate its importance
  • Determine what metrics you should use to measure the impact of patient-centricity in your company
  • Prove its value to all stakeholders and increase buy-in
  • Demonstrate that patient-centricity works by providing patients with solutions that are even more useful than those designed solely by pharma

Sanofi Anne Beal Chief Patient Officer Sanofi

Sanofi Anjali Trasy Global Head, Patient Engagement Strategy Sanofi

08:30 - 09:00
Case study: Creating a cultural change to ingrain patient engagement into every part of your organisation
  • Hear how stakeholders are stepping into their patients’ shoes to help them empathize with their customers
  • Get ideas for how you can instill a change in your organisation’s mindset
  • Discover how to use internal advocates to spread the patient-centric message and help transform your organisation’s way of thinking

Bayer Pooja Merchant Head, External Medical Affairs Bayer

BMJ Rosamund Snow Patient Editor BMJ

08:30 - 09:00
Using the power of film to gain an intimate glimpse into the lives of individuals living with terminal cancer
  • Combining patient submitted video diaries with in-home interviews, we created a global documentary video series aimed at improving the treatment and care of patients with Multiple Myeloma
  • Starting with the question, “what does patient support really look like?” and finishing with real patient stories, gathered through impactful, deeply personal video footage, we discuss our collaboration, the power of the patient first approach and learning from this project

C Space Health Chris Jackson Director C Space Health

Takeda Dr. Susanne Weissbaecker Head of Trade & Patient Services Takeda

08:30 - 09:00
Capacity building and health literacy programs to make pharma more accessible for patients
  • Improve patient groups’ understanding about working with pharma – hear how one charity is providing free training for patient groups on how they can become partners
  • Understand the advantages of making health literature accessible to patients as well as clinicians
  • Appreciate the effects of better disease comprehension on adherence and patient outcomes

Findacure Flóra Raffai Executive Director Findacure

Oxford PharmaGenesis Ltd Lizzie Perdeaux Medical Writer Oxford PharmaGenesis Ltd

08:30 - 09:00
Case study: Internalizing the perspectives and advice of patient leaders in medicines R&D
  • EUPATI enacted: A must-hear case study demonstrating the emerging role of patients as disease experience experts in medicines R&D
  • Co-presented expert advice from patients and pharma who work together to address patients’ unmet needs
  • The potentials and pitfalls when changing your ‘business as usual’: fundamental critical success factors transforming your patient relationships from ‘transaction’ to ‘partnering’

Novo Nordisk Camilla Krogh Lauritzen Director and Global Head of R&D Communication and Patient Partnering Novo Nordisk

Type 1 Lotte Klim Type 1 diabetes patient, Board Member Type 1

nyreforeningen Malene Madsen Board Member Nyreforeningen (Danish Kidney Association)

08:30 - 09:00
Break through the barriers to patient engagement
  • Understand when, how and why patients should be brought in to work with you
  • Work with, not against, your legal team to produce an internal guide to compliance during engagement that everyone across your company can use
  • Recognise and overcome the regulatory obstacles in each country you operate in

Pfizer Maria Pia Ruffilli Senior Director International Public Affairs - Therapeutic Area Support Team Leader Pfizer

05:30 - 07:00
Workshops
10:30 - 11:00
Patient centricity: measuring impact and value

Patient-centricity is now a central part of most pharma companies’ priorities. However QuintilesIMS research indicates there are differing perspectives among healthcare stakeholders on how successful pharma has been to date in delivering on the patient-centric promise. One reason behind this is the challenge in measuring the value of patient-centric initiatives.

Join us for an interactive session to explore opportunities for leveraging novel metrics and methodologies to measure the value of patient centricity at corporate, brand and programme level. We will share our perspective on how to demonstrate the true value of patient-centricity to a diverse range of stakeholders with differing objectives; and how to use performance management to fully embed patient-centricity within the organisation.

QuintilesIMS Nicola Hall VP Technology & Services QuintilesIMS

QuintilesIMS Bianca Martindale Solution Specialist QuintilesIMS

A healthy return for good behaviour

Practical ways to leverage the science of behaviour to drive patient value.

Working in the pharmaceutical industry often means you are developing products and services for some of the most reluctant ‘consumers.’ Using McCann Health’s extensive experience in understanding how to optimise engagement with patients and HCPs, this workshop will provide you with an appreciation of some of the key behavioural science-based principles, what drives behaviour in healthcare and how to develop solutions and interventions that lead to positive and effective behaviour change to benefit patient health.

McCann Health Mike Brzozowski EVP, Managing Director - Patient Engagement McCann Health

McCann Health Hilary Farrington Global Head of Insights McCann Health

McCann Health Caroline Ellwood Senior Analyst, Consulting McCann Health

08:30 - 09:00
Get deep insight from your patients to help solve their unmet needs and improve clinical outcomes
  • Understand which aspects of life negatively affect patients so that you can add real value beyond the pill
  • Learnings from drug development failures and successes: Real world examples of where working with patients had a real impact on the bottom line
  • Create a win-win with your patients to make your engagement more meaningful and beneficial for them

AstraZeneca Katja Rüdell Director, Patient Reported Outcomes AstraZeneca

08:30 - 09:00
Real world application: How patient insights are being used to optimize clinical trials
  • By utilizing a 360° approach to obtaining actionable patient insights, we can positively impact both the design and execution of clinical studies. Through engaging case studies, we will share how these insights are being used to influence trial protocols and optimize clinical trial operations.
  • Participants will learn how patient insights can be used to shape:
    • Protocol development
    • Population-specific recruitment and retention methods
    • Patient and caregiver engagement and communication

Mapi Group Kelly Franchetti Vice President Global Patient Insights and Engagement Mapi Group

08:30 - 09:00
The impact of the UK’s Accelerated Access Review on pharma-patient relationships
  • Hear from the Review’s Patient Champion on how the report aims to give patients and service users a say at every stage of innovation
  • Understand the method of the Review process, its conclusions and recommendations
  • Recognise the implications and expectations for the future for pharma working with UK healthcare authorities

National Voices Hilary Newiss Chair National Voices

08:30 - 09:00
Signs of success - the positive outcomes of patient-centricity across the whole healthcare industry
  • Increase adherence by involving patients in designing their own treatment
  • Improve clinicians’ job satisfaction with better patient outcomes
  • Be more profitable by putting patients at the heart of everything you do – a health economist’s assessment

European Society for Person Centered Healthcare Professor Andrew Miles Senior Vice President & Secretary General European Society for Person Centered Healthcare

Pre-order the detailed event brochure

Complete speaker line-up • Program for all tracks & sessions • Audience breakdown