Resources

Download the PDF

The Needs of Young People who have, or have had, Cancer.

This research focused on measuring the psychosocial needs of young people (aged 12-24) who have, or have had, cancer, using the 2006 version of the Cancer Needs Questionnaire for Young People (CNQ-YP; Shakeshaft, Sanson-Fisher & Girgis, unpublished). Additionally, 14 young people aged 18-24 were interviewed in order to identify any additional needs potentially not covered by the CNQ-YP. This allowed us to examine the types of needs experienced and to determine if these needs were being met for these young people. The study also measured levels of psychological functioning and explored the associations between psychological functioning and unmet needs.

This research was conducted by CanTeen Australia, in conjunction with the University of Western Sydney.

Download the PDF

The ASyMS©-YG Study: Final Report

The ASyMS©-YG study involved a complex intervention, developing and evaluating an advanced symptom management system (ASyMS©) for use with young people to monitor and manage chemotherapy related toxicity using mobile phone technology. The system involved young people recording and sending symptom reports to the hospital and receiving tailored self-care advice.

This research was conducted by Great Ormond Street Hospital for Children and London South Bank University

View Videos

A Selection of Videos from Jimmyteens.tv

jimmyteens.tv is a video website aimed at educating people about the effects of cancer on young people; not just the medical effect, but also the emotional effects upon the patient and their friends and family. This selection of videos give entrants a real insight into the issues facing young patients, straight from the patients themselves.

Videos supplied courtesy of Jimmyteens.tv, with thanks to those patients and families featured.

Download the PDF

Closing the Gap: Research and Care Imperative for Adolescents and Young Adults with Cancer

In 2005-2006, the National Cancer Institute (NCI) partnered with the Lance Armstrong Foundation (LAF) to conduct a Progress Review Group (PRG) to address the special research and cancer care needs of the adolescent and young adult age group and solicit recommendations for a national agenda to improve cancer prevention, early detection, diagnosis, treatment (including survivorship care), and outcomes among these patients. An Adolescent and Young Adult Oncology Progress Review Group (AYAO PRG) was convened, drawing together more than 100 experts from diverse disciplines across the research enterprise, the cancer control continuum, and the advocacy and survivor communities.

This comprehensive report from the Adolescent and Young Adult Oncology Progress Review Group (PRG) is a collaborative effort between the US National Cancer Institute and the Lance Armstrong Foundation.

Download the PDF

MedAssist QuickList™: High Level Market Analysis

This report provides an overview on the Quicklist medication management application fundamental use by geography, age, gender, and peak usage time. This provides a macro view on health care tools in the mobile space.

These analytics were provided by Flurry.

Selection of content from I'm Too Young For This! Cancer Foundation

72,000 Americans between 15-40 are diagnosed with cancer each year. That's one every eight minutes. This is not OK! The I'm Too Young For This! Cancer Foundation produces award-winning programs and content to raise awareness that young adults can and do get cancer. This is how they get busy living.

Essays and Videos from Stupid Cancer

• Essay: "Childhood Cancer's Forgotten Moral Imperative"
  http://huff.to/hlA5R1
  
  
• Essay: "Young Adult Cancer Gets It's Hollywood Closeup"
  http://huff.to/x8URNU
  
  
• Video: "It's Not OK"
  http://youtu.be/SbV4-h6ilyg
  
  
• Video: 4th Annual OMG! Cancer Summit Highlight Reel
  http://youtu.be/945DZETett8

Download the PDF

Teenage Cancer Management: Is There a Gap in the App Market?

There has been a shifting focus within cancer management to provide environments tailored to adolescents' needs, as their unique requirements become more widely known. However, it seems that adolescent oncology is lagging behind in the mobile app market, even though teenagers are the leading group in terms of smartphone penetration. Mobile app usage in this area has the potential to draw attention to issues such as the transition from paediatric care centres to adult ones.

Georgiana Murariu
http://creationhealthcare.com